Re: Hi all, back again
Hello! I'm so sorry to hear of your loss. I'm glad that you're now back on your feet. What kind of things has Imogen been poorly with? Is this what has led you to think of Marfan's? I don't know too much about Marfan's (Ivan is our resident expert) although i understand it's hard to diagnose. Hopefully your consultant will be able to put your mind at rest or refer her for further tests.
I hope the appointment goes well
Mum to Erin, 10, diagnosed with 62 degree curve in May 04, aged 21 months. Serial casting '04-'07. Growth rods inserted June '08 under Mr Tucker at RNOH, Stanmore, UK. Surgery October '11 to replace a broken rod.