I had my first appointment with Mr Gardner on the 25th of November and yesterday (24th of December) I received a copy of the letter he sent to my GP. In it he said that I also have hypokyphosis, I wasn't told this at my appointment so it came as rather a shock. Not knowing anything about the condition, I looked it up on the internet. I read that it can have a profound effect on the pulmonary system and that surgery can make the condition worse (and cause that condition if it's not already present).
I'd really appreciate any information and advice from those of you that know about the condition, as it's really scared and upset me. Thank you! xxx
Diagnosed at 12 now 31. 63 degree thoracolumbar scoliosis, from T9 to L4. I also have hypokyphosis and a syrinx which is under investigation. I also have low-lying cerebellum tonsils.
Currently under Mr Gardner, at ROH, Birmingham. Previously seen by Mr Sell (Leicester), Mr Hutchinson (Bristol) & Mr Grevitt (Nottingham). No surgery.