View Poll Results: How Did You Come To Find SSO !!

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  • Was It Though a Search Engine .Ie Google/Yahoo

    202 85.59%
  • Was It Though A Member Already On Sso If so What Member was it

    16 6.78%
  • Did you see a link on another Internet Page Ie Facebook/Nsf

    15 6.36%
  • Was It Though Word Of Mouth .

    5 2.12%
Multiple Choice Poll.
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Thread: Poll !!!!

  1. #31
    Join Date
    Jul 2008
    Location
    west midlands
    Posts
    4,376

    Default Re: Poll !!!!

    Quote Originally Posted by tonibunny View Post
    Mr Harrison!! That's really wonderful, I knew that a couple of the consultants recommend us but I didn't know that he did too!!
    Mr Ahmed also recommended this site at my daughters 1st consultation-he even wrote it down on a bit of paper!
    Thoracic 72 degrees, lumber 30 degrees-fused aged 44, T2-L4, posterior fusion with costoplasty (8 ribs were chopped) on 3/11/10 under the care of Mr Ahmed at North Staffs Hospital. Now nice and straight

  2. #32
    Join Date
    Aug 2008
    Location
    Norwich
    Posts
    6,606

    Default Re: Poll !!!!

    Woo hooooo! We totally rock
    I'm Sally, 31, and I have congenital kyphoscoliosis in association with Spina Bifida, Diastematomyelia and tethered cord. Surgery to detether spinal cord and remove bone spur at Addenbrooke's in 1984 aged 3. Developed 'pes cavus' and weakness in legs, various foot surgeries between '92 and '94. Decompression of spinal cord, hemivertebrectomy and fusion L2-L4 with instrumentation by Mr Crawford and Mr Laing (neurosurgeon) in 1998 aged 17. Had two stage anterior-posterior T10 to pelvis fusion surgery on 27th February 2012 at NNUH by Mr Crawford and Mr Lutchman. Fused well but now curving over top of fusion, so facing fusion extension up to T1. Trying a brace first in order to put off surgery til next year

  3. #33
    Join Date
    Apr 2009
    Location
    Guildford
    Posts
    4,362

    Default Re: Poll !!!!

    Quote Originally Posted by Mustang Sal View Post
    Woo hooooo! We totally rock
    True "dat" - as they say, lol
    "Your time is limited, so don't waste it living someone else's life. Don't be trapped by dogma - which is living with the results of other people's thinking. Don't let the noise of other's opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary..." - Steve Jobs

  4. #34
    Join Date
    Jan 2011
    Location
    London
    Posts
    34

    Default Re: Poll !!!!

    Google, I don't normally look up things about my condition but I get random moments when I do, this time during one of my random moments I found the forum, I was browsing the forum and well here I am. lol

  5. #35
    Join Date
    Apr 2009
    Location
    Cheshire, UK
    Posts
    2,325

    Default Re: Poll !!!!

    I found it on Google too, when I was stressed about needing surgery!
    I had been on a while just reading all the posts before I plucked up the courage to actually write my own!
    Hiya i'm Louise, i'm 27 & had posterior surgery + costoplasty for an 84degree double curve on 29th July 2010 at RJAH Orthopaedic Hospital, Oswestry. Under the care of Mr Trivedi. I'm now fused T3 to L3.
    Facebook:
    http://www.facebook.com/home.php?sk=lf#!/louise.laurie
    Twitter: http://twitter.com/#!/missloobie
    My Blog: http://helpformyscoliosis.blogspot.com/

  6. #36
    Join Date
    Apr 2011
    Location
    Manchester, England
    Posts
    11

    Default Re: Poll !!!!

    I ran into Toni on another forum, and she referred me here when she found out I had scoli too.

  7. #37
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
    Jan 1970
    Posts
    15,400

    Default Re: Poll !!!!

    Yay! Welcome Tria
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  8. #38
    Join Date
    Apr 2011
    Location
    Manchester, England
    Posts
    11

    Default Re: Poll !!!!

    Thanks hon!

  9. #39
    Join Date
    May 2011
    Location
    Scotland
    Posts
    10

    Unhappy Re: Poll !!!!

    Quote Originally Posted by ssoAdmin View Post
    We'd love to know where you all heard about SSO, and how you came to join us!

    The Staff xx

    Came across you simply by searching for "Scoliosis" on-line. Have just been diagnosed with idiopathic adolescent scoliosis and am trying to find out as much as poss and get my head round it.

  10. #40
    Join Date
    Aug 2008
    Location
    Norwich
    Posts
    6,606

    Default Re: Poll !!!!

    Quote Originally Posted by chocolate View Post
    Came across you simply by searching for "Scoliosis" on-line. Have just been diagnosed with idiopathic adolescent scoliosis and am trying to find out as much as poss and get my head round it.
    Hi there, glad you found us! Why not post a message on the main discussions forum telling us a bit about yourself? We're very friendly and supportive, and can try to help you navigate the world of scoliosis you've just found yourself in
    I'm Sally, 31, and I have congenital kyphoscoliosis in association with Spina Bifida, Diastematomyelia and tethered cord. Surgery to detether spinal cord and remove bone spur at Addenbrooke's in 1984 aged 3. Developed 'pes cavus' and weakness in legs, various foot surgeries between '92 and '94. Decompression of spinal cord, hemivertebrectomy and fusion L2-L4 with instrumentation by Mr Crawford and Mr Laing (neurosurgeon) in 1998 aged 17. Had two stage anterior-posterior T10 to pelvis fusion surgery on 27th February 2012 at NNUH by Mr Crawford and Mr Lutchman. Fused well but now curving over top of fusion, so facing fusion extension up to T1. Trying a brace first in order to put off surgery til next year

  11. #41
    Join Date
    Jan 1970
    Location
    South Shields via Bradford
    Posts
    14,026

    Default Re: Poll !!!!

    Hi Chocolate

    Welcome to SSO, i hope we can support you through your scoliosis journey

    If you have any questions just post away

    once again welcome

    Mark
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  12. #42
    Join Date
    Feb 2010
    Location
    Camberley, Surrey
    Posts
    165

    Default Re: Poll !!!!

    Found it through another member who also appears on the BBC Ouch website.
    Hi I'm Tracy - mum to Cameron 17yrs who had anterior release, costoplasty, and posterior fusion at RNOH Stanmore 2009 under care of Mr Sean Molloy. All procedures done in one 9 hour operation. Thorocolumbular curve reduced from 74 to 16 degrees. Fused T3 to L2. Adolescent Idiopathic Scoliosis.

  13. #43
    Join Date
    Jul 2011
    Location
    Baltimore, Maryland USA
    Posts
    6

    Default Re: Poll !!!!

    Our daughter was just scheduled for surgery on August 10th, after nearly 10 years of bracing, so it set off a flurry of on-line searching. Googling "Scoliosis Operation Support Groups" brought this site up first. We have been reading various posts, and just accepted to post back today, and appreciate all the good information.

  14. #44
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
    Jan 1970
    Posts
    15,400

    Default Re: Poll !!!!

    Welcome Bneubrand!

    I hope we can help support you as your daughter has her surgery xx
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  15. #45
    Join Date
    Feb 2010
    Posts
    1,901

    Default Re: Poll !!!!

    Early 2010 I was browsing around online looking at scoliosis journals etc and having never thought about joining a community with like-minded people etc it suddenly dawned on me that there might be something out there

    So went onto google and searched for "scoliosis support forums" and I ended up here and I'm glad I did

    Good old google

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