View Poll Results: How Did You Come To Find SSO !!

Voters
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  • Was It Though a Search Engine .Ie Google/Yahoo

    203 85.65%
  • Was It Though A Member Already On Sso If so What Member was it

    16 6.75%
  • Did you see a link on another Internet Page Ie Facebook/Nsf

    15 6.33%
  • Was It Though Word Of Mouth .

    5 2.11%
Multiple Choice Poll.
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Thread: Poll !!!!

  1. #16
    Join Date
    Jan 1970
    Location
    Essex, UK
    Posts
    2,365

    Default Re: Poll !!!!

    I met Titch on a Flatback group on Yahoo/msn groups quite a few years ago now, she informed me of her forum as i had other issues aswell as flatback and I've been here ever since, I think its been since about 2004ish
    I'd like to add thankyou Titch you pretty much saved my life! x

  2. #17
    Join Date
    Jan 1970
    Location
    Brighton, UK
    Posts
    470

    Default Re: Poll !!!!

    I think through wikipedia... but it was so long ago (I was 10 or 11!) that it's kind of hard to remember...
    And there was a surgey in the middle so I think my memory has been addled somewhat by the variety of different meds...

    But I think we were linked through wikipedia
    "to read make our speaking english good" - xander harris

    not good with maths, generally unqualified, but can play lots of instrument and is sometimes funny

  3. #18
    Join Date
    Aug 2009
    Location
    'мistleч.
    Posts
    1,097

    Default Re: Poll !!!!

    I think Toni caught me too.. but i also found it on google.. x
    Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
    NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.

  4. #19
    Join Date
    Jan 2010
    Location
    East Lancashire (UK)
    Posts
    86

    Default Re: Poll !!!!

    The great omniscient Google

  5. #20
    Join Date
    Aug 2008
    Location
    Norwich
    Posts
    6,606

    Default Re: Poll !!!!

    I actually can't remember! It seems like I joined such a long time ago, but in reality it was less than 2 years ago! Google sounds likely though

    I was so ignorant about a lot of things to do with my spine before I found this place - all I had were my medical notes, which didn't make a lot of sense to me, so this forum really did help to 'enlighten' me!
    I'm Sally, 31, and I have congenital kyphoscoliosis in association with Spina Bifida, Diastematomyelia and tethered cord. Surgery to detether spinal cord and remove bone spur at Addenbrooke's in 1984 aged 3. Developed 'pes cavus' and weakness in legs, various foot surgeries between '92 and '94. Decompression of spinal cord, hemivertebrectomy and fusion L2-L4 with instrumentation by Mr Crawford and Mr Laing (neurosurgeon) in 1998 aged 17. Had two stage anterior-posterior T10 to pelvis fusion surgery on 27th February 2012 at NNUH by Mr Crawford and Mr Lutchman. Fused well but now curving over top of fusion, so facing fusion extension up to T1. Trying a brace first in order to put off surgery til next year

  6. #21
    Join Date
    Jun 2010
    Posts
    5

    Default Re: Poll !!!!

    I found it on yahoo search.

  7. #22
    Join Date
    Aug 2009
    Location
    Scotland
    Posts
    23

    Default Re: Poll !!!!

    Google when i was down and looking for someone to talk too

  8. #23
    Join Date
    Jul 2010
    Location
    New Hampshire
    Posts
    4

    Talking Re: Poll !!!!

    ok i also found the site from google! im seeing a trend here? hahahaha

  9. #24
    Join Date
    Jan 1970
    Location
    South Shields via Bradford
    Posts
    14,037

    Default Re: Poll !!!!

    Quote Originally Posted by penny1997 View Post
    ok i also found the site from google! im seeing a trend here? hahahaha
    Isn't google brilliant lol
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  10. #25
    Join Date
    Jan 2009
    Location
    Ipswich, Suffolk
    Posts
    155

    Default Re: Poll !!!!

    Dr Harrison at Stanmore told me about the site

  11. #26
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
    Jan 1970
    Posts
    15,424

    Default Re: Poll !!!!

    Mr Harrison!! That's really wonderful, I knew that a couple of the consultants recommend us but I didn't know that he did too!!
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  12. #27
    Join Date
    Jul 2009
    Location
    Cavan, Ireland
    Posts
    133

    Default Re: Poll !!!!

    Hi my GP gave us the web site at one of our appointments and coincidently I had come across it the day before while surfing the internet trying to educate myself

  13. #28
    Join Date
    Jul 2010
    Posts
    60

    Smile Re: Poll !!!!

    I am soooo glad I found SSO!!!! I love it soo much It has helped me so much already! Its feels good to know there are so many people like me

    -Samantha

  14. #29
    Join Date
    Jul 2010
    Location
    US, Northern Virginia
    Posts
    50

    Default Re: Poll !!!!

    Not sure who posted it, but I saw a link to this forum over at the National Scoliosis Foundation. I was never able to post there because they never confirmed my registration. But I was grateful for the posted link as I did not find this forum in searches.

  15. #30
    Join Date
    Aug 2010
    Location
    Sydney, Australia
    Posts
    18

    Default Re: Poll !!!!

    Hi folks,
    I was googling for info over the last couple of days & found the forum that way.
    Lizzie

    Congenital scoliosis (no treatment), diastematomyelia; aged 52.

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