Well, I saw a yahoo answers page. Someone had asked a question about scoliosis and In a reply someone posted this link
I'm very glad I found you guys!
I found SSO after watching Kody's videos on YouTube. So glad I did!
Good work, Sparkles!
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
Google is how i found this.
I stumbled across the site while searching online for info on posterior fusion surgery. So glad I did!!! It's amazing to realize how many other folks are out there with similar issues and histories to mine.
Was googling for info....the same site seems to be popping up with ally concerns about whay I was facing. I starting going directly to the site quietly stalking the posts. I started reading the new posts everyday. Then I signed up. The other site that I was getting info from was robin paige blog since we were similar. I saw she was on and davedrummer from youtube. I then joined. Took me a day or 2 to build up the courage to post....now im a regular postop poster!
I searched for scoliosis forums on Google. It was actually more of an experiment than anything, to see if anything like this even existed.
Google, was looking for information on Halo traction
Google as well. Hey, it would be great to see more activity on this site. Any way to better advertise the site or to get the word out there in any other ways? Low/no cost methods would have to do of course!! I'd love to have access to more of those suffering like myself to discuss experiences and "best practices", etc. So many of the posts are from years past...