View Poll Results: How Did You Come To Find SSO !!

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  • Was It Though a Search Engine .Ie Google/Yahoo

    203 85.65%
  • Was It Though A Member Already On Sso If so What Member was it

    16 6.75%
  • Did you see a link on another Internet Page Ie Facebook/Nsf

    15 6.33%
  • Was It Though Word Of Mouth .

    5 2.11%
Multiple Choice Poll.
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Thread: Poll !!!!

  1. #1
    Join Date
    Jan 1970
    Posts
    15

    Default Poll !!!!

    We'd love to know where you all heard about SSO, and how you came to join us!

    The Staff xx
    Last edited by tonibunny; 21st June 2010 at 10:59 AM.

  2. #2
    Join Date
    Mar 2009
    Location
    physically in Aylesbury, mentally on another planet
    Posts
    3,451

    Default Re: Poll !!!!

    I found it when toni saw me on nsf
    Adolescent Idiopathic Scoliosis. Started in 1990 with a harrington rod for thoracic curve, 1995 it was removed as interferring with lumbar curve. In 1999 I had left leg shortened to pull hip down, then in 2000 the metalwork was removed. June 2010 had revision surgery, making the entire fusion t2-l5. Unfortunately in worse pain now than before

  3. #3
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
    Jan 1970
    Posts
    15,424

    Default Re: Poll !!!!

    I was here at the start, so I'm going to say I came here through Titch
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  4. #4
    Join Date
    Jan 1970
    Location
    South Shields via Bradford
    Posts
    14,037

    Default Re: Poll !!!!

    Quote Originally Posted by tonibunny View Post
    I was here at the start, so I'm going to say I came here through Titch
    Me too, titch caught me
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  5. #5
    Join Date
    Jan 1970
    Location
    Kent, SE England
    Posts
    3,147

    Default Re: Poll !!!!

    Google! Though I won't take credit for it - my mother signed up here before I did and posted a couple of times, then disappeared once I'd made my own account and she saw how much I was getting from it
    Diagnosed with adolescent idiopathic scoliosis on the 10th April 2007. Seen at the Child Development Centre at the Medway Maritime Hospital on 18th June then referred to Mr Noordeen at the RNOH Stanmore. Seen by consultant on the 13th July x-rays revealed 77o thoracolumbar curve and severe rotation. Surgery planned in 6 months had surgery on 26th November 2007. Admitted for pre-op on 23rd stayed in over the weekend. Curve then 90o, suffering from pain and reduced lung function. Moved from HDU to ward after 24hrs, then into isolation for suspected infection after 3 days. Symptoms turned out to be a bad reaction to antibiotics.

  6. #6
    Join Date
    Jan 1970
    Location
    Newbury, Berkshire
    Posts
    7,507

    Default Re: Poll !!!!

    I was rescued from Slife by Tim (Pikey)
    Born 1981 with Spina Bifida Myelomeningocele. Surgery to close lesion at birth. Anterior fusion T11-L5 aged 12. Laminectomy June 06. Posterior fusion with instrumenation T8-T11. Degenerative Disc C4/C5

    Under the care of Jeremy Fairbank.

  7. #7
    Join Date
    Jan 1970
    Location
    Brisbane, Qld
    Posts
    1,095

    Default Re: Poll !!!!

    Toni picked me up (she's like that ) from a yahoo group scoliosis forum that had about 3 members way back in 2001 or 2002 I think.

    She invited me to Slife. I transferred to SSo along with most others when Titch set it up.

  8. #8
    Join Date
    Apr 2009
    Location
    Guildford
    Posts
    4,362

    Default Re: Poll !!!!

    I think it was a couple months after my fusion and I found it through Gooooogle! x
    "Your time is limited, so don't waste it living someone else's life. Don't be trapped by dogma - which is living with the results of other people's thinking. Don't let the noise of other's opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary..." - Steve Jobs

  9. #9
    Join Date
    Jan 1970
    Location
    Runcorn, cheshire
    Posts
    2,522

    Default Re: Poll !!!!

    Whats SILF ?

    Its great to find out how people found this site seems likemost is from a search engine just proves if ya type in scoliosis support groups this come up first .. well done everyone xx

  10. #10
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
    Jan 1970
    Posts
    15,424

    Default Re: Poll !!!!

    SLife was the forum that a bunch of us belonged to before Titch set up SSO. It no longer exists.
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  11. #11
    Join Date
    Jan 1970
    Location
    Sheffield, UK
    Posts
    16,238

    Default Re: Poll !!!!

    I'm another Toni 'pick up' Rescued from some deadly dull forum where nobody spoke to you and people posted a load of cr*p!
    Me, a Mod? Nah ... I'll always be a rocker

  12. #12
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
    Jan 1970
    Posts
    15,424

    Default Re: Poll !!!!

    I don't go "poaching" other forums' members, btw That would be really rude! If I think they'd benefit from being here I just tell them that SSO exists too, and that plenty of people are members of lots of forums so they'd be welcome to pop by and check us out. Similarly, I'll direct people to NSF or Spinekids too if I think those forums will help them more than we can. The most important thing to me is that people get the right support and info.
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  13. #13
    Join Date
    Oct 2009
    Location
    Ontario, Canada
    Posts
    241

    Default Re: Poll !!!!

    Google was my best 'frenenemy' when we got my daughter's diagnosis. I lived in hope and terror of what I found in my searches. Luckily I found all of you to help us on our journey. Lu

  14. #14
    Join Date
    Jul 2008
    Location
    west midlands
    Posts
    4,384

    Default Re: Poll !!!!

    Toni 'caught' me from a site which I googled and came accross.She sent me a pm telling me there was a uk forum, im glad she did!

  15. #15
    Join Date
    Jan 1970
    Location
    London
    Posts
    2,360

    Default Re: Poll !!!!

    Google, and I'm unbelievably, endlessly grateful too because without this site I just don't think I could have coped!

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