I have only spoken to the spinal liaison sister about this and she says that PE has to be done wearing a brace, so she can't do forward rolls and stuff like that. And she didn't think she could do anything like monkey bars as this pulls on the spine. She was a bit too vague for my liking so I will be keeping her off PE until I can ask a consultant exactly what is allowed. Swimming is definitely allowed (without a brace!) but no jumping or diving in.
When surgery was first mentioned I was given the impression that ballet would be allowed (without a brace) but Maddy stopped doing this about a year ago anyway so we haven't had to find out for sure.
I think growth rods are prone to breaking because they are only fixed at the top and bottom and so are subject to stresses that normal rods are not.
Sorry I don't know more. You should see a consultant at Erin's pre-op day so you can ask then.
How are you Andrea? I hope you are not feeling like a beached whale! I was thinking - I hope you have supportive friends/family on hand to help you after Erin's surgery as you will be physically knackered and your hormones will be all over the place after the baby arrives.
Mum to Maddy aged 14. Maddy is a patient at Great Ormond Street Hospital and had a growth rod inserted in November 2007. In March 2011 the growth rod was removed because the curve became too strong. In May 2011 Maddy had anterior release, 2 weeks traction on a Stryker Frame and then spinal fusion.