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Old 12th June 2014, 01:48 PM
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tonibunny tonibunny is offline
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Join Date: Jan 1970
Posts: 15,340
Default Re: Hospital appointment today

Hi Holly, welcome to SSO

It's interesting to see someone who had Juvenile Scoliosis here, we don't get many How old were you when you were diagnosed, and how old were you when you had your first surgery? Do you know what caused your scoliosis - was it congenital or idiopathic or was it caused by another condition? And did you wear braces or plaster body casts after you were diagnosed?

Sorry for all the questions! Welcome again

Toni xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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