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Old 7th May 2014, 11:16 AM
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tonibunny tonibunny is offline
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Join Date: Jan 1970
Posts: 15,256
Default Re: Cant Move - SURGERY 7 YEARS AGO

How awful have you seen your GP recently? If you need to be carried to bed and can't walk then you really ought to be seen by a specialist much faster than July!! If things get really bad, please get yourself to A&E. No-one should put up with this level of pain and disability, and it sounds as though something is badly wrong.

In what ways is your movement limited - please could you describe this more for us? Are you having trouble moving your arms and legs? Obviously your spine is fused so you won't be able to bend, twist or otherwise move the fused vertebrae, but although you have a long fusion (according to your photo) this shouldn't limit you to the extent that you're experiencing.

Please don't despair

Toni xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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