Re: The all official 'Good luck JayMoe' thread!
Yeah, have just got some WiFi at the hospital so I'll be able to carry on, as in early ran out of internet on my phone,
They haven't yet,but they have said they want to do them about Tuesday and then they will decide if it's enough or if I need more.
Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14