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Old 24th November 2013, 09:12 PM
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tonibunny tonibunny is offline
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Join Date: Jan 1970
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Default Re: Has your infant child been recently diagnosed with scoliosis? READ THIS FIRST.

Consultants can be so arrogant the frustrating thing is that most surgeons think a cast is a cast is a cast, so they just stick the kids into a basic cast and then decide that casting can be ineffective because they're not getting good results.

I am unsure which doctors now take the time to adhere to Min's technique. It is so, so frustrating. There are kids in America growing up with completely straight spines due to proper application of Mehta style EDF casts. In England, I believe your best bet is to see Mr Stewart Tucker as he's not arrogant and will listen if you have something to say. I am working with ISOP to try to get the word out there but due to medical issues of my own - I'm fighting cancer - I'm not able to focus on this at the moment.

Even more frustratingly, the Scoliosis Association UK (SAUK) refuses to help promote Mehta Casting even though they used to do so and despite Min being one of their trustees. They're happy to use her name to promote themselves, but when approached about helping to promote the technique with a campaign, they said to us "oh no, hardly any surgeons do that now, it's seen as old hat". Min is very old and frail now and doesn't have anything to do with SAUK anymore. I met her in the summer and she is distraught and frustrated that so many children are missing the opportunity of having their spines straightened due to the arrogance of ignorant consultants today.

It doesn't help that casts in the UK are applied by cast technicians and not by the surgeons themselves. Min and the US surgeons who she trained would physically derotate the child's spine by hand before applying the cast, rather than using cast frame derotational straps. Most cast techs do not learn about Mehta casting or maybe they would apply the refinements themselves when they are given an IIS infant to cast. The most frustrating thing for me is that I was retraining as an orthoapedic technician myself with hopes to train other cast techs and spread word of the method, but just as I was beginning to be offered work I was diagnosed with cancer. I'm still getting phonecalls offering me work and hope I can get back to it!
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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