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Old 22nd November 2013, 06:43 PM
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tonibunny tonibunny is offline
T Sr: Admin, Big Sister and Da Police!
Join Date: Jan 1970
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Default Re: Has your infant child been recently diagnosed with scoliosis? READ THIS FIRST.

Hi Jnt,

At ISOP we strongly feel that parent-power can be very very powerful. If you have been having your child cast, take printouts of Min's study "Growth as a corrective force in the Early Treatment of progressive infantile scoliosis," (JBJS 2005, available at the ISOP website) to show their consultant and request that the casts are applied using her recommendations - basically an EDF cast with a mushroom-shaped hole in front and a hole at the back to allow the ribcage to grow and expand evenly. The holes are very important and there aren't many cast technicians who cut them correctly!

Good luck with moving Jake into a brace, and with Schroth

Toni xx
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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