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Old 26th November 2011, 11:19 PM
Round The Twist's Avatar
Round The Twist Round The Twist is offline
Tattoed, Crafty & Twisted
 
Join Date: Jan 1970
Location: Essex, UK
Posts: 2,357
Default Re: Scoliosis SOS Clinic, Suffolk, Ipswich

Yes, of course, my daughter is wearing a TLSO brace made at the RNOH, she was cast for it and the chap who made it was very particular!
So far this is her second brace as she outgrew the first one in 6 weeks, it has reduced her thoratic curve by 10 degrees and her lumbar curve by 3 - 5 degrees, she is stable at 33degrees T & L Hopefully it will stay that way until our next appt in Feb 2012 & beyond.

I'm really sorry to read about your daughters Diagnosis of the Chiari Malformation and Syringomyelia.
We haven't investigated the cause of my daughters Scoliosis as I have so far assumed it is hereditary as I have it too, but I don't know why I have it either, suffice to say in my 23 years of treatment I have never had a full spine MRI, although I did have a Myelogram in 1991 which was pre MRI and I believe that was designed to show up major problems with the Spinal Cord.
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Liz aka Kat - I will answer to either Diagnosed with AIS at the age of 13. 1st surgery - Mr Ransford @RNOH in 1991, curves = 55T 45L, fused T2 - L2. 2nd surgery - Mr Harrison @RNOH in 2006 - revision of original surgery due to broken rod.
Now have Degenerative Disc Disease above and below my fusion and have recently been diagnosed with HMS and Fibromyalgia and therefore am in a lot of pain daily.
PM me if you want to know more.
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