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Old 4th June 2011, 04:24 PM
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Mustang Sal Mustang Sal is offline
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Join Date: Aug 2008
Location: Norwich
Posts: 6,606
Default Re: Maddy's Stryker Frame Experience

Rachie, all I can say is WOW. I just can't imagine what it would feel like to be stuck in that frame, but it sounds like Maddy is a true super star - not many kids would be able to deal with that the way she did. You should be so proud of her, and yourself - what a huge thing for a little girl to go through.

Your write-up of the experience was excellent and I know it will really help other parents of kids facing this surgery. Maddy herself could even read it one day!

I hope everything is now settling into place for Maddy and all the family, and hope her recovery is as uneventful as possible
I'm Sally, 31, and I have congenital kyphoscoliosis in association with Spina Bifida, Diastematomyelia and tethered cord. Surgery to detether spinal cord and remove bone spur at Addenbrooke's in 1984 aged 3. Developed 'pes cavus' and weakness in legs, various foot surgeries between '92 and '94. Decompression of spinal cord, hemivertebrectomy and fusion L2-L4 with instrumentation by Mr Crawford and Mr Laing (neurosurgeon) in 1998 aged 17. Had two stage anterior-posterior T10 to pelvis fusion surgery on 27th February 2012 at NNUH by Mr Crawford and Mr Lutchman. Fused well but now curving over top of fusion, so facing fusion extension up to T1. Trying a brace first in order to put off surgery til next year
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