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Old 10th March 2010, 07:36 PM
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tonibunny tonibunny is offline
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Default Re: Went To Scoliosis Sos Today

Ouch, do you know what's causing the pain - is it that the muscle is in spasm, or do you have pinched nerves underneath?

Have you ever been referred to a pain clinic, and tried things like trigger point/nerve blocking injections? There are plenty of nonsurgical options for pain relief that can be tried, but you need to see a specialist pain doctor rather than a physio for many of them. Do you take any painkillers? If your pain is neurological in origin, many of us have amazing relief from a drug called gabapentin. Similarly, amitriptyline can work wonders for muscle spasms.

It sounds like your scoliosis has been stable for years (otherwise it would have progressed a lot by now) so I doubt any surgeon would want to actually fuse your spine, but if you have a trapped nerve or bulging disc then a tiny surgery could help enormously.

If you're still in that corner of England, it might be worth getting a referral to the Pain Clinic at Oswestry. This is headed by a Consultant Anaesthetist called Dr Gaspar and he is brilliant. He can also get you onto their Functional Restoration Programme, which is 3 weeks of intensive physio, hydrotherapy and all sorts of methods which can really help.

Exercise is usually great for pain, but after all this time I think you should maybe see a doctor again, as you might be causing more damage rather than helping things
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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