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Old 10th March 2010, 02:04 PM
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tonibunny tonibunny is offline
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Join Date: Jan 1970
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Default Re: Went To Scoliosis Sos Today

Hi Sue,

Are you under the care of an NHS spinal consultant (ie a doctor), rather than a physio? And has the Latissimus Dorsi pain been going on for long? Hopefully it's just a temporary pull rather than an ongoing thing.

Which hospital did you attend when you were younger, and do you know the degree of your curvature? It sounds like the Milwaukee brace worked well for you, as you had scoliosis at 8 and managed to avoid surgery - you did very well there! Juvenile scoliosis is often very progressive.

37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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