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Old 9th March 2010, 02:20 PM
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tonibunny tonibunny is offline
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Join Date: Jan 1970
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Default Re: Went To Scoliosis Sos Today

Hi Stana,

It is great that Jessie has been doing so well with her Schroth. I believe Beanstalk's daughter has also been doing very well under the guidance of Joanna Slup You are (as far as we know) the only SSO members who have been to her, and both of you have given very favourable reports about her, which is very encouraging. She is certified by the Schroth clinics, continues to update her knowledge, and her clinic is regulated so patients are protected should something go wrong - this all sounds good to me!

My post here was in reference to adults who are suffering with pain, rather than children. There are a lot more options available to adults with chronic pain - and the three weeks I spent on the programme in Oswestry did include intensive physio, hydrotherapy, pilates, and yoga with an emphasis on building core stability and strength, as well as a lot of education about a variety of issues.

As you say, I don't believe anything like this exists for children, which is a terrible shame. For adults like CurvyClaire though, who have stable curves but are living with chronic pain, things are available on the NHS, and I do think it would be worth looking at these first in case help can be had for free before considering paying thousands of pounds privately.

Toni xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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