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Search: Posts Made By: Karenphillips
Forum: Infantile, Juvenile and Congenital Scoliosis Room 20th January 2013, 10:43 PM
Replies: 7
Views: 749
Posted By Karenphillips
Smile 5 days after surgery

Hi all


Well, I am sitting in hospital 5 days after my daughter age 11 had full spinal fusion.

I am happy for anyone to contact me with any questions they may have!

It's been an interesting...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th January 2013, 01:24 PM
Replies: 21
Views: 7,485
Posted By Karenphillips
Smile Re: What to take to hospital - suggestions please!

Thank you. I have written a list, my daughter who is 11 is having full spinal fusion in a week so thank you for the info x x
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th January 2013, 01:15 PM
Replies: 11
Views: 742
Posted By Karenphillips
Smile Re: Got a surgery date

Thanks all, and good luck to the lady going to stab more for surgery the same day.

I have been a bit tearful with it all, she has so much to contend with and when this is sorted there is so much...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd January 2013, 08:01 AM
Replies: 11
Views: 742
Posted By Karenphillips
Question Got a surgery date

Hi all
After waiting for over 2 years, got a surgery date for full spinal fusion for Imogen my daughter age 11 for the 16 th January.

I now really scared.

Have not told Imogen yet as she has a...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 25th November 2012, 12:18 AM
Replies: 3
Views: 737
Posted By Karenphillips
Smile Genetic link with scoliosis

Hi all, I have been in this support group for awhile since my daughter age 9 was diagnosed with scoliosis in October 2010.

It rapidly progressed and she has been wearing a brace since jan this...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 14th October 2012, 11:10 PM
Replies: 10
Views: 1,322
Posted By Karenphillips
Smile Re: My daughter's first appointment

Hi all
It all sounds so familiar. My daughter was diagnosed with severe rapid progressive scoliosis 2 years ago. Has been wearing a brace for the last 6 months and is due surgery anytime in November....
Forum: Infantile, Juvenile and Congenital Scoliosis Room 14th October 2012, 11:02 PM
Replies: 17
Views: 2,203
Posted By Karenphillips
Smile Re: new diagnosis very scared

Hi
You are not alone. I think the large majority of us are mums with children with scoliosis. My daughter is 11, she was diagnosed 2 years ago with sever curvature, she has been wearing a brace and...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th October 2012, 11:58 PM
Replies: 1
Views: 396
Posted By Karenphillips
Smile Hello again

Hi
I have not been on here for ages.
My daughter is Imogen, she is due to have full final fusion in about a month.
She is only 11, I am beginning to really worry.
Say hi anyone? X x
Forum: Infantile, Juvenile and Congenital Scoliosis Room 6th November 2011, 02:02 AM
Replies: 15
Views: 2,004
Posted By Karenphillips
Smile Re: Hi all, back again

Hi all
We have our pre anaesthetic checks for Imogen at queens medical next week. Surgery going ahead!

Also in hospital having heart scans on Tuesday, looking for marafans.

Anyone know anything...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 2nd October 2011, 08:58 AM
Replies: 15
Views: 2,004
Posted By Karenphillips
Smile Re: Hi all, back again

Hi Claire
Thanks for your reply.

They are saying imogen will have fusion, not growth rods.

Did your daughter have fusion because they said at her age it was what they should do?

Are you able to...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 1st October 2011, 01:35 AM
Replies: 12
Views: 1,656
Posted By Karenphillips
Red face Re: Age 11 ... is this adolescence?

Hi all
A very similar story to my daughter. She has just been told she needs surgery on her scoliosis and hers will be fusion also. I am/worried about her growth being stunted also x
Forum: Infantile, Juvenile and Congenital Scoliosis Room 30th September 2011, 11:08 PM
Replies: 15
Views: 2,004
Posted By Karenphillips
Question Re: Hi all, back again

Hi all
Well, where do I start? Imogen my daughter is 10. She has scoliosis, only noticed last October, curve now 47 degrees in the lumbar area, looks to me as an s though.
I was given two choices as...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 19th September 2011, 11:31 PM
Replies: 15
Views: 2,004
Posted By Karenphillips
Unhappy Re: Hi all, back again, update from today

Hi
Well we went to the appointment at notts today, been confirmed Imogen will have surgery, curve 47 degrees, I really not sure what's going on though.
He could have waited until she a bit older,...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 14th September 2011, 11:30 PM
Replies: 35
Views: 3,119
Posted By Karenphillips
Unhappy Re: Katie's Surgery

Hi, that all sounds great. You have both done so well. I am really worried, my daughter is 10 and has a s curve, 48 degrees top and bottom in feb. It has really got so much worse over the summer. She...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th September 2011, 03:26 PM
Replies: 15
Views: 2,004
Posted By Karenphillips
Exclamation Re: Hi all, back again

Hi
Thankyou for your messages.

Imogen has chronic ITP and also hypermobile joints, also mild learning difficulties and flat feet. All of this seems to have been diagnosed since she developed...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 6th September 2011, 11:50 PM
Replies: 15
Views: 2,004
Posted By Karenphillips
Smile Hi all, back again

Hi
I was on here ages ago, my daughter Imogen has rapid onset scoliosis. She is 10, diagnosed last year. My partner died suddenly in January and Imogen has been really ill with lots of things,...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 16th January 2011, 11:49 PM
Replies: 4
Views: 970
Posted By Karenphillips
Red face Re: Four weeks post op and need help please

Hi
poor ben, I have all of this to come shortly with my daughter who is nearly 10.
I personally would keep him off school, I think he would find it hard having to have someone to help him with...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th January 2011, 12:56 AM
Replies: 90
Views: 6,888
Posted By Karenphillips
Forum: General Discussions 8th January 2011, 10:58 PM
Replies: 26
Views: 1,575
Posted By Karenphillips
Question Re: New and looking for advice

Hi
I know how you feel.
My daughter is 9 and I noticed overnight that her spine was curved.
Took her to gp, x rays which showed an awful s shape.
I was devastated, was told I would have to wait for...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th January 2011, 08:27 PM
Replies: 17
Views: 1,382
Posted By Karenphillips
Smile Re: Help?

Hi
I know how worried you must be, I have gone through very similar with Imogen my daughter who is 9.

I was called back as they found a syrinx in her spine.

I would take some reassurance in the...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 1st January 2011, 09:52 AM
Replies: 90
Views: 6,888
Posted By Karenphillips
Smile Re: Daughter just diagnosed, age 9, could do with some reassurance and friends

Thankyou. This site has really been invaluable. Without the contact and support I would have found this so much harder.
Thankyou to everyone and a healthy and happy 2011 to everyone.
Karen xx
Forum: General Discussions 28th December 2010, 08:04 AM
Replies: 1
Views: 365
Posted By Karenphillips
Question Anyone used notts?

Hi
I usually talk on the adolescent section but thought it worthwhile posting a comment on here. I have a 9 year old daughter who is due to be operated on by mr grevitt at Nottingham. I have read...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 28th December 2010, 12:07 AM
Replies: 90
Views: 6,888
Posted By Karenphillips
Exclamation Re: Daughter just diagnosed, age 9, could do with some reassurance and friends

Hi all

well, all ok, Imogen was admitted with suspected menigitis last week, out
of hospital Xmas eve, her platelets have dropped again to 33.
She has thickening of the thoracic wall in spine which...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 8th December 2010, 10:47 PM
Replies: 90
Views: 6,888
Posted By Karenphillips
Question Re: Daughter just diagnosed, age 9, could do with some reassurance and friends

Hi
thankyou for your messages. I am back to the hospital tomorrow to find out what happens next. Will update. Don't know how bad the syringomylia is and if they will operate. Xx
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th December 2010, 05:38 PM
Replies: 90
Views: 6,888
Posted By Karenphillips
Unhappy Re: Daughter just diagnosed, age 9, could do with some reassurance and friends

Imogen had her MRI yesterday, not good news, she has syringomylia. Don't know
how bad it is, this will explain why her scoliosis has come on so quickly and why it is degenerated so quickly. I am so...
Showing results 1 to 25 of 52

 
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