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Search: Posts Made By: clairabella68
Forum: General Discussions 27th July 2012, 12:19 AM
Replies: 23
Views: 2,047
Posted By clairabella68
Re: Before and After Surgery Pics

Wow Daniel. The change is very impressive. You must be really pleased with the correction.

Hope you recovery quick. Love Claire xx
Forum: General Discussions 3rd July 2012, 09:20 AM
Replies: 14
Views: 618
Posted By clairabella68
Re: Flying before my fusion

Hi

I took Katie on holiday last year and she had her surgery a week later. We went to Tunisia and the flight is just under 3 hours!!

I would phone up pre-assessment at the hospital you are...
Forum: General Discussions 26th June 2012, 11:19 PM
Replies: 4
Views: 819
Posted By clairabella68
Re: Surgery with Mr Dunsmuir at LGI

Hi Jenna

Mr Dunmuir is excellent. He was one of the surgeons who helped out in my daughters surgery. He is a lovely Consultant with an excellent bedside manner and explained everything. He is...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th May 2012, 10:28 AM
Replies: 25
Views: 2,197
Posted By clairabella68
Re: Stanmore here we come!!!!!

Hi Izzi's mum

Just wanted to ask if you have been referred for Occupational Therapy via school.

My daughter Katie was struggling with pain and school was real bad. Occupational Therapy got...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th May 2012, 08:22 PM
Replies: 21
Views: 1,115
Posted By clairabella68
Re: Karen2e : Reply From The Prof :

HI Sandra

I'm so pleased to hear that you got a reply from the Prof.

And, don't feel silly for having any doubts. If he had done his job in the first place by coming to see you after the surgery...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 28th April 2012, 08:10 AM
Replies: 50
Views: 2,399
Posted By clairabella68
Re: KAREN2E :GP visit post surgery

Oh Sandra. My heart breaks for you! After all you have gone through! Yet, still looks like there is more to come!

I would definitely go for a second opinion, whether you hear from Prof or not!!! ...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 8th April 2012, 08:42 PM
Replies: 24
Views: 1,480
Posted By clairabella68
Re: Karen2e : Finally Gets Home After 3rd Surgery

Oh Sandra

I am so pleased to hear that Karen is now home. What a tough week you have had.

I hope that Karen continues well in her recovery now she is home.

Enjoy your food - and WINE...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 8th April 2012, 03:17 PM
Replies: 14
Views: 2,152
Posted By clairabella68
Re: Low oxygen levels are major factor in congenital Scoliosis

OH MY GOD - she is left handed??? Very weird!!!!! :-)
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th April 2012, 07:02 PM
Replies: 14
Views: 2,152
Posted By clairabella68
Re: Low oxygen levels are major factor in congenital Scoliosis

Thanks for the link. I don't have any explanation regarding Katie's abnormalities. She was a twin pregnancy, and one baby became non-viable at around 11 weeks. I presumed that was why, but this...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th April 2012, 12:28 AM
Replies: 14
Views: 2,152
Posted By clairabella68
Re: Low oxygen levels are major factor in congenital Scoliosis

Thanks for that!

No, it isn't heredity. All chromosone tests came back normal too! They queried a syndrome as she has coloboma but in the end they said it could be an undiagnosed syndrome?? ...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 6th April 2012, 06:02 PM
Replies: 14
Views: 2,152
Posted By clairabella68
Re: Low oxygen levels are major factor in congenital Scoliosis

Mmmmmm...... very interesting seen as Katie was born with anomalies of her heart, kidneys, spine, AND MORE!!!!

I will read more..........?!?!?!
Forum: Infantile, Juvenile and Congenital Scoliosis Room 5th April 2012, 03:57 PM
Replies: 27
Views: 1,454
Posted By clairabella68
Re: Karen2e - 3rd Surgery :(

Hi Sandra

Great news that Karen is now out of HDU and on St Pauls (sounds fab by the way).

I pray that Karen will now continue to recover uneventfully and fast, and starts to feel better...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 5th April 2012, 02:02 PM
Replies: 27
Views: 1,454
Posted By clairabella68
Re: Karen2e - 3rd Surgery :(

Oh Sandra - I'm drained just ready your post. My heart hurts for you all.

It is so difficult when they are in so much pain and they have to move, go for xrays etc etc. It's so cruel.

(I...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 27th March 2012, 12:26 AM
Replies: 90
Views: 6,279
Posted By clairabella68
Re: New Member - daughter just diagnosed

Oh Tiff - I would help you ALL if I could hun! Don't massage for my career. I trained in massage and then did an extra year to do Sports Massage too! I love it, but it just doesn't pay enough!! ...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 27th March 2012, 12:08 AM
Replies: 90
Views: 6,279
Posted By clairabella68
Re: New Member - daughter just diagnosed

Hi Izzi's mum

My daughter suffered with pain for a long time with her scoliosis. I got a referral to physiotherapy, and this helped a great deal!!! Massage didn't help at all - it hurt when I...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th March 2012, 11:45 PM
Replies: 14
Views: 762
Posted By clairabella68
Re: KAREN2E : Private Consult with the Prof

Hi Sandra.

I'm so glad you managed to get to see him and discuss all your fears. You really do seem more positive after this appointment.

How's Karen feeling about it all now??

I know Katie's...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd March 2012, 08:39 PM
Replies: 8
Views: 427
Posted By clairabella68
Re: KAREN2E - Will 3rd surgery go ahead?

Oh Sandra. THANK GOD!!!!!!

I am an Orthopaedic secretary and I know that ALL of our Consultants react to a personal letter - hence the suggestion to write to him. I also wrote to my Consultant -...
Forum: General Discussions 29th February 2012, 10:49 PM
Replies: 21
Views: 977
Posted By clairabella68
Re: Update

Hi Hannah

It's great to hear that Amy is doing amazingly well and that her sickness settled for her birthday :-)
I hope she continues to come on in leaps and bounds!

Regarding the brace, Katie was...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 15th February 2012, 02:01 AM
Replies: 11
Views: 1,051
Posted By clairabella68
Re: New member, 7 month old just diagnosed

Hi Sally

Welcome to this wonderful support site!

I have to say that problems with Ffion (sorry how do you pronounce that???) are very much the same as I had with my daughter (now 14 years ago)!!! ...
Forum: General Discussions 11th February 2012, 04:40 PM
Replies: 40
Views: 2,322
Posted By clairabella68
Re: Massage or not to Massage?

Ouch Tiff!!! I would never attempt massage without ANY base on? There are many things you could use - cream or talc, tea tree products!!! To try and work/soften muscles without is a NO GO for me!!! ...
Forum: General Discussions 11th February 2012, 08:16 AM
Replies: 13
Views: 665
Posted By clairabella68
Re: Should I have heard something by now?

Good morning Hannah

I never had a letter of confirmation regarding Katie's surgery, but I would give them a ring just for confirmation. You need to speak to the Paediatric Pre-Op Nurses - they deal...
Forum: General Discussions 9th February 2012, 11:55 PM
Replies: 202
Views: 5,735
Posted By clairabella68
Re: Best wishes to Ronnie and Sue (wildcats56)

Wow... that's great news. Hope he does get home next week.

thinking of you both, love Claire xx
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th February 2012, 10:10 PM
Replies: 12
Views: 1,016
Posted By clairabella68
Re: Karen's 'PROVISIONAL' date for 3rd surgery

Hi Sandra

No its not selfish - its natural.

I, like you, did ALL hospital appointments. It was ME that had to try and calm her at every appointment when all she did was scream. It was ME that...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 8th February 2012, 11:17 PM
Replies: 12
Views: 1,016
Posted By clairabella68
Re: Karen's 'PROVISIONAL' date for 3rd surgery

Oh Sandra

With all this going on, there is no wonder you feel like you do!

I have been there (many years ago I might add). Hospital appointments, tests, illnesses and sickness, day in, day out etc...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th February 2012, 11:51 PM
Replies: 21
Views: 1,165
Posted By clairabella68
Re: KAREN2E : Finally get to see/talk to prof - looks like 3rd surgery for Karen

Hi Sandra

Wow - what a day!

I'm sorry that Karen needs her metalwork taking out, and I do hope she gets relief when they do! Seeing them in pain everyday just breaks your heart!

Regarding the...
Showing results 1 to 25 of 500

 
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