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Search: Posts Made By: nerak
Forum: General Discussions 7th October 2014, 12:19 PM
Replies: 11
Views: 441
Posted By nerak
Re: Mr Tucker

Hi Burdle

Sorry for not replying sooner. The reason Mr Malloy didn't operate in my case is due to the extent of rotation of the spine/rib cage, the degree of my curvature (over 100) and other...
Forum: General Discussions 1st October 2014, 11:58 AM
Replies: 11
Views: 441
Posted By nerak
Re: Mr Tucker

I was referred to Mr Molloy and although he couldn't do anything surgically for me he had a wonderful bedside manner and always took time to explain things to me in a way that was very...
Forum: General Discussions 27th September 2014, 12:04 PM
Replies: 21
Views: 526
Posted By nerak
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

This is fascinating! I always put my not being able to do joined up writing and sloping the paper side ways down to being left handed! It never occurred to me that it could be due to being hyper...
Forum: General Discussions 15th September 2014, 12:01 PM
Replies: 3
Views: 182
Posted By nerak
Re: For anyone newly diagnosed/in a brace

Wow! What lovely news and congratulations to Nicol :mwave:
Forum: Non Surgical Room 21st August 2014, 12:32 PM
Replies: 7
Views: 421
Posted By nerak
Re: Bracing young teen, need support...


Having a brace as a teenager is very hard. Normal teenage feelings of body image, finding your place in this world and hormones are magnified by the brace. I had a brace when I was a teen...
Forum: General Discussions 21st June 2014, 11:18 AM
Replies: 36
Views: 1,090
Posted By nerak
Re: Mr Tucker resigning from Stanmore! :-(


That's really sad that Mr Tucker is leaving the team. Can I recommend Mr Molloy? He has been my consultant and although in my case we agreed surgery is too risky I have heard he is an...
Forum: General Discussions 22nd May 2014, 12:19 PM
Replies: 15
Views: 506
Posted By nerak
Re: I really hate it��

Hi Abby,

Brace's suck :( But you will get used to it and it will help in the long term. Keep going, one day at a time. I remember trying to focus on some fun stuff when I had a brace - like a...
Forum: General Discussions 17th May 2014, 12:26 PM
Replies: 3
Views: 199
Posted By nerak
Re: Down day help

Hi Ellen,

Having a brace sucks:( but hang on in there because this will help you in the long run. Its been many years since I had a brace but I remember just trying to think of all the good things...
Forum: Non Surgical Room 24th April 2014, 11:49 AM
Replies: 6
Views: 565
Posted By nerak
Re: School with a brace


I had a brace quite a few years ago now but I asked for a large locker so that I could store my brace in there if I needed to take it off. All my teachers were aware of what was going on so if...
Forum: General Discussions 2nd April 2014, 04:19 PM
Replies: 4
Views: 262
Posted By nerak
Re: Working fewer hours :)


Thanks for sharing this - I'm so glad for you. I have also decreased my hours of work after an occupational health assessment and am feeling the benefit of shorter working hours and more time...
Forum: General Discussions 29th March 2014, 12:15 PM
Replies: 10
Views: 507
Posted By nerak
Re: Should we wait to have surgery



As a teenager I had a large curve but was in no pain. As a family we decided not to go for surgery (there were other circumstances that made it risky). As a result my curve...
Forum: General Discussions 1st February 2014, 02:20 PM
Replies: 34
Views: 2,386
Posted By nerak
Re: Thinking about life - how do you feel about your life?

Just finished reading The Fault in our Stars and all I can say is that it is beautifully written and has made me think about my life in a new perspective! Thanks for recommending it!

love Karen
Forum: General Discussions 1st February 2014, 02:16 PM
Replies: 29
Views: 1,208
Posted By nerak
Re: End of the line...

Thanks for your honesty,

I am in a similar position as you in that I am having to admit that there are no more answers the Dr's can give me. This is my life and I have to make the most of it. I...
Forum: General Discussions 29th January 2014, 09:25 AM
Replies: 1
Views: 252
Posted By nerak
Shortness of breath?

Hi Everyone,

Just needed a bit of advice. Over the last couple of days I've found it hard to take a deep breath without pain between my shoulder blades. My breathing feels shallow and it feels...
Forum: General Discussions 23rd January 2014, 12:19 PM
Replies: 34
Views: 2,386
Posted By nerak
Re: Thinking about life - how do you feel about your life?


I haven't read the book but your comments have come at a good time for me too;) I've been feeling a bit sorry for myself recently but you are all so right - there is always someone in a better...
Forum: General Discussions 28th November 2013, 11:58 AM
Replies: 12
Views: 731
Posted By nerak
Re: Something's bothering me!


First of all, I'm so sorry you've experienced this attitude. It is surprising how many people don't realise what living with Scoliosis is like not only for the patient but for the family too. ...
Forum: General Discussions 27th November 2013, 12:10 PM
Replies: 31
Views: 1,881
Posted By nerak
Re: dreadful news

Dear Sue,

I've only just seen your post and I am so sorry to read this. I am praying for you both in this distressing time. Please remember to take care of yourself as well as Ron. Hugs and love...
Forum: Non Surgical Room 25th September 2013, 11:52 AM
Replies: 6
Views: 1,138
Posted By nerak
Re: Do you know where I can find a driving cushion? Please read the whole question

my friends laugh at my cushions in my car! I have three to boost me up. I just point out to them that its better for me to have cushions than to have a car accident because I can't see over the...
Forum: Non Surgical Room 25th September 2013, 11:50 AM
Replies: 16
Views: 2,119
Posted By nerak
Re: Randomized study on bracing shows effectiveness


thanks for posting this! For a variety of reasons I couldn't have surgery even though my curves are large. Bracing was the only other option available so we went for it! I wore a brace for...
Forum: General Discussions 11th September 2013, 01:28 PM
Replies: 19
Views: 1,078
Posted By nerak
Re: Other aches and pains...


As I've got older I have increasing more pain:( Although I have curves of over 100 degrees I suffered virtually no pain in childhood or in my twenties. When I went to the Dr in my thirties...
Forum: General Discussions 22nd August 2013, 12:11 PM
Replies: 5
Views: 412
Posted By nerak
Re: Newbie intro and my story.

Hi Rick

Welcome :) You have certainly found a friendly place here to share info, ask questions and chat! It sounds like its been a long road for you but your story is also inspiring and goes to...
Forum: General Discussions 17th August 2013, 12:13 PM
Replies: 27
Views: 1,221
Posted By nerak
Re: Is scoliosis your only health issue?

Hi All,

I have a split cord causing my Scoliosis. I also have self-diagnosed hypermobility but this is good because my bendy bits compensate for my stiff back! I also have low blood pressure and...
Forum: General Discussions 17th July 2013, 11:30 AM
Replies: 17
Views: 1,137
Posted By nerak
Re: Devastating News

Hi Sue

Sorry I'm coming to this post a bit late - I am just so sad to hear this news. I can understand why both you and Ron are devastated - take your time to grieve and come to terms with this. ...
Forum: General Discussions 24th June 2013, 12:08 PM
Replies: 33
Views: 1,573
Posted By nerak
Re: Common misconceptions about spinal deformity

I hate the derogatory terms used for a medical conditions such as 'hunchback'. This came back into the British media big time recently when Richard III's skeleton was found.

Forum: General Discussions 20th June 2013, 11:46 AM
Replies: 3
Views: 269
Posted By nerak
Travelling with painkillers?

Hi Everyone,

I'm going to Italy in July and I was wondering if I ought to get a Dr's letter about my medication. I take a variety of painkillers and will have quite a bit with me as I am going for...
Showing results 1 to 25 of 148

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