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Search: Posts Made By: Rachie
Forum: General Discussions 27th September 2014, 02:00 PM
Replies: 13
Views: 267
Posted By Rachie
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

A quick update. Last Friday I emailed Maddy's year head with my concerns and asked what the process was in terms of assessing whether she is entitled to extra time in exams. He replied that the SENCO...
Forum: General Discussions 18th September 2014, 08:17 PM
Replies: 13
Views: 267
Posted By Rachie
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

I showed Maddy your post and she is ecstatic! She held a pen next to your photo images and her grip is exactly the same as yours! Her hand cramps when she tries to write properly. I am definitely...
Forum: General Discussions 18th September 2014, 04:47 AM
Replies: 13
Views: 267
Posted By Rachie
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

Toni, Maddy writes vertically up the page with the paper turned 90 degrees from 'normal'! She hasn't complained about writing taking a long time but she prints rather than writing joined up. I will...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th August 2014, 12:32 PM
Replies: 4
Views: 411
Posted By Rachie
Re: Magnetic Rods - Delay in Treatment- Risks/Complications

Dear Lorraine,

I know the awfulness of having to wait. Scoliosis consumes your thoughts. I do understand. The reality is, even if you could see Mr Noordeen next week, it would be very unlikely he...
Forum: General Discussions 4th August 2014, 07:03 AM
Replies: 6
Views: 470
Posted By Rachie
Re: Mistake with pins

I'm so sorry to hear what you gave been through. Best wishes. X
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th August 2014, 06:53 AM
Replies: 4
Views: 411
Posted By Rachie
Re: Magnetic Rods - Delay in Treatment- Risks/Complications

Dear Lorraine,

If you are getting a second opinion Mr Noordeen is your man. My daughter used to be under him at GOSH. He is a lovely man, very easy to talk to, answers all your questions and (most...
Forum: General Discussions 5th July 2014, 10:09 PM
Replies: 36
Views: 1,048
Posted By Rachie
Re: Mr Tucker resigning from Stanmore! :-(

Gosh this is a surprise. Though I always thought how dumb it was that he had a clinic at Stanmore on the morning of the same day he had his afternoon clinic at GOSH. He was often stuck in traffic and...
Forum: General Discussions 11th May 2014, 12:23 PM
Replies: 2
Views: 194
Posted By Rachie
Three years on...hope for those facing surgery.

Hi everyone. Three years ago Maddy was about to go into hospital for halo traction then spinal fusion. We don't really think about scoliosis any more...yay! We have the normal teenage stresses not...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 1st May 2014, 10:26 PM
Replies: 4
Views: 400
Posted By Rachie
Forum: General Discussions 30th April 2014, 10:54 AM
Replies: 11
Views: 522
Posted By Rachie
Re: Scared Mom

You're welcome. That's what we're here for. You can always try searching on the internet for studies on the effectiveness of bracing if you want more information/statistics.
Forum: General Discussions 28th April 2014, 08:58 PM
Replies: 11
Views: 522
Posted By Rachie
Re: Scared Mom

Hi Scared Mom. I too was a scared mom for a long time! My daughter's scoliosis was seriously huge and she endured 10 surgeries from age 7 to age 10. She is now 3 years post fusion and living life to...
Forum: General Discussions 28th April 2014, 08:48 PM
Replies: 3
Views: 174
Posted By Rachie
Inspirational!

http://focos.squarespace.com/journal/2014/4/25/patient-transformations-their-incredible-stories.html
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th April 2014, 10:13 PM
Replies: 1
Views: 308
Posted By Rachie
Re: update

That sounds like good news. Thanks for the update. X
Forum: General Discussions 9th April 2014, 10:10 PM
Replies: 7
Views: 312
Posted By Rachie
Re: Rods at an early age

Hi Sarah Jane and welcome :-)
My daughter was diagnosed aged 4 and I now know she should have been cast or given growth rods asap as her curve was bad. But her consultant decided to watch and wait....
Forum: General Discussions 14th February 2014, 01:18 PM
Replies: 8
Views: 459
Posted By Rachie
Re: I had a 2nd opinion yesterday

Definitely. We weren't happy, got a second opinion and switched.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th February 2014, 09:10 AM
Replies: 13
Views: 2,352
Posted By Rachie
Re: New and seeking info on Magnetic Growth Rods

Hi. I just want to add that GOSH is a great hospital to be at. The spinal team, together with that at RNOH Stanmore, is leading the way and has a large growth rod programme. Magnetic rods came too...
Forum: General Discussions 26th January 2014, 02:00 PM
Replies: 10
Views: 855
Posted By Rachie
Re: Ronnie going to spinal injuries unit at stamore at last e

It sounds like you are having a terrible time. I hope its some comfort to know he's in the best place to help him. Best wishes. X
Forum: General Discussions 20th January 2014, 08:39 PM
Replies: 10
Views: 855
Posted By Rachie
Re: Ronnie going to spinal injuries unit at stamore at last e

Sue. I hope you are coping with all this. How is Ron?
Forum: General Discussions 20th January 2014, 08:35 PM
Replies: 7
Views: 422
Posted By Rachie
Re: Message for AishaA

Hello Aisha. I'm so sorry things took a turn for the worse. It sounds like the consultant has a lot of questions to answer like why he didnt adequately pass on his patient to someone who could...
Forum: General Discussions 18th January 2014, 08:57 AM
Replies: 15
Views: 1,875
Posted By Rachie
Re: Feel down that there is nothing that can be done about rib hump :-(

Hi. Another member of the Mr Tucker fan club here! I thinks its always wise to get a second opinion and I know that Mr T relishes the more difficult cases. I also know that he will say if he cant...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 24th December 2013, 04:07 PM
Replies: 9
Views: 818
Posted By Rachie
Re: Newbie with magnetic rods

Welcome. You have been through a lot with your little one. We only have a few children on here with magnetic growth rods so we would love to hear how she gets on.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 21st December 2013, 08:19 AM
Replies: 32
Views: 2,079
Posted By Rachie
Re: Good luck Andrea and Erin

I am pleased to report that Andrea and Erin have made it home in time for Christmas!
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th December 2013, 10:31 PM
Replies: 32
Views: 2,079
Posted By Rachie
Re: Good luck Andrea and Erin

Erin's chest drain is out and she is back on the ward. Hopefully home by Christmas.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 12th December 2013, 04:50 PM
Replies: 32
Views: 2,079
Posted By Rachie
Re: Good luck Andrea and Erin

Erin has been in HDU since her fusion on Tuesday. Hopefully she will be on the ward soon.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 6th December 2013, 08:14 PM
Replies: 32
Views: 2,079
Posted By Rachie
Re: Good luck Andrea and Erin

Erin is doing well. Not in much pain but the boredom is kicking in. Now its the weekend Tuesday shouldn't seem too far away.
Showing results 1 to 25 of 500

 
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