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Search: Posts Made By: lucinda
Forum: Infantile, Juvenile and Congenital Scoliosis Room 10th February 2009, 11:34 PM
Replies: 9
Views: 817
Posted By lucinda
Re: Yippee - Ellen's had her Chiari Surgery

Hi Alison, nice to hear it all went so well! When I had my chiari surgery when I was younger, I remember my mother and I arguing. I believe it was from built-up emotions and just being around each...
Forum: General Discussions 11th August 2008, 06:28 PM
Replies: 48
Views: 6,344
Posted By lucinda
Re: What to take to hospital - back by popular demand!

Nice list, BeckyH! I'd like to add:

- earplugs or earbuds/headphones for a music player, because sometimes hospitals can be quite noisy.
- a notebook and pencil for by your bed -- if you have a...
Forum: General Discussions 13th April 2008, 04:12 PM
Replies: 31
Views: 1,982
Posted By lucinda
I'm late to this thread, but I must say that it...

I'm late to this thread, but I must say that it has been interesting reading. I had a complicated birth -- apparently my mother was in labour for five days! The pain I put her through there set her...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th April 2008, 03:44 PM
Replies: 72
Views: 5,167
Posted By lucinda
Yes, it is gone, thank goodness! I have a Chiari...

Yes, it is gone, thank goodness! I have a Chiari malformation (where the tonsils in the cerebellum hang down into the spinal cord cavity, causing an obstruction of cerebral spinal fluid), and after...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 8th April 2008, 07:15 AM
Replies: 72
Views: 5,167
Posted By lucinda
I do believe that syrinxes can cause back pain,...

I do believe that syrinxes can cause back pain, even if they are in the cervical part of the spine. There are quite a few medical articles online about it. I had a cervical syrinx myself, that...
Forum: General Discussions 7th April 2008, 07:12 AM
Replies: 29
Views: 1,339
Posted By lucinda
I think that usually anterior comes first -...

I think that usually anterior comes first - someone else on the board probably knows for sure, though.



I had to blow bubbles through this colourful, twisted straw. It was horrible at the time,...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 5th April 2008, 11:38 AM
Replies: 72
Views: 5,167
Posted By lucinda
Hi Claire, It seems you've received some very...

Hi Claire,

It seems you've received some very good advice in this thread, and I'm glad that your appointment was able to be brought forward a few weeks at least.

I was just wondering when the last...
Forum: General Discussions 12th March 2008, 11:39 PM
Replies: 20
Views: 1,175
Posted By lucinda
I spent over two years on the waiting list for my...

I spent over two years on the waiting list for my two stage surgery. However, it should be noted that this was in Australia, and was between 1999-2001. I sure hope things have improved here since...
Forum: General Discussions 1st October 2007, 08:44 PM
Replies: 7
Views: 671
Posted By lucinda
Great work Toni! With the amount of...

Great work Toni! With the amount of misinformation around the internet that is all too easy to stumble across with an easy click of the mouse, I think it's completely understandable that you may be...
Forum: General Discussions 1st October 2007, 08:02 PM
Replies: 86
Views: 29,045
Posted By lucinda
I'm so sorry for the late reply, I haven't...

I'm so sorry for the late reply, I haven't visited the forum in ages and only just saw this.

I can definitely recommend Dr Torode and I regard him highly. The amount of doctors I have seen in my...
Forum: General Discussions 26th March 2006, 03:58 AM
Replies: 86
Views: 29,045
Posted By lucinda
Dr. Ian Torode Private Consulting Rooms Royal...

Dr. Ian Torode
Private Consulting Rooms
Royal Children's Hospital
Parkville 3052
Victoria Australia
Phone no. +614 03 9347 4275
Forum: General Discussions 14th April 2005, 03:20 AM
Replies: 61
Views: 3,708
Posted By lucinda
ivy, whatever happened to your intake of the...

ivy, whatever happened to your intake of the godly banana and mango nectar?

woe. </3
Forum: General Discussions 28th September 2004, 02:40 PM
Replies: 9
Views: 823
Posted By lucinda
I've always wondered this .. yay Jess for asking...

I've always wondered this .. yay Jess for asking the question! I get confused with the definitions, but from what I've read .. a thoracoplasty is where there is a remodelling/reshaping of the...
Forum: General Discussions 15th September 2004, 12:20 PM
Replies: 43
Views: 2,921
Posted By lucinda
Oh yes! It is the same in Australia as what it...

Oh yes! It is the same in Australia as what it is in the UK .. I thought you were all talking about what type of car to purchase, not to learn to drive in. Sorry!
Forum: General Discussions 15th September 2004, 09:10 AM
Replies: 43
Views: 2,921
Posted By lucinda
Hey! This little Aussie girl adores her...

Hey! This little Aussie girl adores her automatic transmission!

I don't really have anything else to add to this thread Toni, as the problems I have and what I do to fix them have all been said...
Forum: General Discussions 9th September 2004, 06:51 AM
Replies: 14
Views: 1,072
Posted By lucinda
I'm an Aussie, so I didn't have to wait on the...

I'm an Aussie, so I didn't have to wait on the NHS .. but I did have to wait 2 and a half years for my scoliosis surgery on our public health system .. :soapbox:

I used to try and feel better by...
Forum: General Discussions 9th September 2004, 06:44 AM
Replies: 10
Views: 1,122
Posted By lucinda
I haven't been able to find anything on casting...

I haven't been able to find anything on casting for infants here in Aussie Land either .. but that's not to say that no one does it. If anyone does find anything could you let us know here in this...
Forum: General Discussions 13th August 2004, 12:39 PM
Replies: 12
Views: 843
Posted By lucinda
I do yoga, and pilates, and I've been fused and...

I do yoga, and pilates, and I've been fused and have rods and everything. There's this perception around that you have to be flexible to do yoga .. but I find that a touch strange, as generally...
Forum: General Discussions 2nd August 2004, 06:09 AM
Replies: 56
Views: 3,445
Posted By lucinda
I can do it! I am very bendy everywhere,...

I can do it! I am very bendy everywhere, actually ..

To throw a bit more into the topic at hand .. a few years ago in first year psych at uni, we were taught that a lot of people who are double...
Forum: General Discussions 23rd July 2004, 03:16 AM
Replies: 66
Views: 3,845
Posted By lucinda
Yay a Kimberly grin! Jonny, to keep the...

Yay a Kimberly grin!

Jonny, to keep the discussion going .. has anybody here tried pain relief in a gel form? As in, it comes in a tube and you rub the gel onto the area where you are in pain? I...
Forum: General Discussions 22nd July 2004, 07:35 PM
Replies: 66
Views: 3,845
Posted By lucinda
Yes, I was told by the pain management team on my...

Yes, I was told by the pain management team on my ward and also by my surgeon to stay away from ibuprofen (which falls into that category of nsaids, right? I'm a little sleepily muddled right now .....
Forum: General Discussions 22nd July 2004, 07:22 PM
Replies: 66
Views: 3,845
Posted By lucinda
Jonny - in both of my spine surgeries I had a PCA...

Jonny - in both of my spine surgeries I had a PCA which worked fine for me. To begin with, I was reeeeally nauseous from it, but since I had such a good experience pain relief wise with it in my...
Forum: General Discussions 15th July 2004, 05:34 AM
Replies: 56
Views: 3,445
Posted By lucinda
Well, from what I've read, like that article...

Well, from what I've read, like that article said, the exact cause of the Chiari is unknown .. but the most widely accepted generalisation is that it is present in birth.

That being said, there's...
Forum: General Discussions 14th July 2004, 05:53 PM
Replies: 56
Views: 3,445
Posted By lucinda
It is something that is present at birth, but may...

It is something that is present at birth, but may not cause any problems until you are older .. sometimes some people can walk around living with a chiari with no symptoms at all.

From what I've...
Forum: General Discussions 10th July 2004, 10:11 PM
Replies: 259
Views: 10,597
Posted By lucinda
Sounds like a perfect system to me, titch. =)

Sounds like a perfect system to me, titch. =)
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