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Search: Posts Made By: Katherine66
Forum: Infantile, Juvenile and Congenital Scoliosis Room 8th September 2010, 03:34 PM
Replies: 33
Views: 8,027
Posted By Katherine66
Re: Beths journey from Ward 11, a story all children and mums should read

My daughter, Alex, also has a scoliosis op story on this website - look for Alexandra's story. Hope it is of help to others going through the surgery.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 21st February 2010, 02:52 PM
Replies: 14
Views: 1,088
Posted By Katherine66
Re: Experience with Royal Orthapeadic Hospital

Hi Sonia
just wanted to welcome you on board. My daughter who is just 12 has been under Mr Marks since she was 9 months old and has had two spinal fusions - the last being in May 2009 . Whilst I...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd November 2009, 09:26 AM
Replies: 54
Views: 5,482
Posted By Katherine66
Re: New member

Hi

My daughter, who is now 11 (going on 22!) was diagnosed with congenital scoliosis when she was 9 mths old. She had a hemivertebra at L2 which was the problem. She also had a small syrinx at...
Forum: General Discussions 25th September 2009, 04:50 PM
Replies: 11
Views: 918
Posted By Katherine66
Re: Marfan Syndrome

Hi

Just to comment on your original post - my daughter is under Mr Marks at the Royal Orthopaedic in Birmingham. If you get to see him your daughter will be in very good hands - he really knows his...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 14th August 2009, 12:08 PM
Replies: 21
Views: 1,214
Posted By Katherine66
Re: Larissa

With very best wishes for an uneventful and speedy recovery (see, I told you Larissa would be fine!) Remember to look after yourself as well - these girls have a tendancy to take it out on their...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 22nd July 2009, 01:12 PM
Replies: 11
Views: 885
Posted By Katherine66
Re: Larissa has date for surgery

Wishing Larissa all the very best for her surgery - she'll be just fine.

Please keep us updated on her progress. She may find it helpful to take a look at the Royal Orthopaedic Hospital in...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 14th July 2009, 07:17 PM
Replies: 8
Views: 659
Posted By Katherine66
Re: Daughters pain

I would have thought that most MRI units would allow parents in the room. My daughter had a MRI last November when she was 10. I (husband wasn't allowed as he has some metal in one eye following a...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 6th July 2009, 09:50 AM
Replies: 11
Views: 1,683
Posted By Katherine66
Re: my 14 month old just been told he has scoliosis

Hi Louise

Welcome to the site - it really is a great support and a mine of information.

Please don't feel guilty for not spotting your son's condition. Infantile scoliosis is much rarer than...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 1st July 2009, 09:47 AM
Replies: 21
Views: 1,691
Posted By Katherine66
Re: New Here

Hi

Firstly welcome to this site - you've come to the right place - everyone is very helpful and if they don't know the answer they will point you in the right direction. I'm sorry to hear of your...
Forum: General Discussions 15th June 2009, 03:56 PM
Replies: 7
Views: 752
Posted By Katherine66
Re: Going private

Hi

we see Mr Marks privately for our daughter Alexandra and have done since she was first diagnosed over 10 years ago. I would agree with Becky that the cost of a consultation is approx 200 and...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 15th June 2009, 09:27 AM
Replies: 5
Views: 549
Posted By Katherine66
Update on Alexandra

Hi All

just thought that I would pop in and give an update on Alexandra's progress. It is now exactly 4 weeks since her op - and she's back at school this morning!!! We saw Mr Marks last Thursday...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 30th May 2009, 07:37 AM
Replies: 16
Views: 1,214
Posted By Katherine66
Re: Need some answers please please?

Dear Nat

your post brought tears to my ears as I read of your distress at your daughter's condition and I just wanted to reach out to you and give you a big cyber hug. I think that there is a mum...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 27th May 2009, 10:38 AM
Replies: 6
Views: 832
Posted By Katherine66
We are home!

Just to let you know that Alex is home! She is doing really well and last night managed 8 hours sleep without waking for painkillers. I can't believe how quickly she has recovered from such a huge...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 23rd May 2009, 09:32 PM
Replies: 8
Views: 825
Posted By Katherine66
Re: Todays appointment

Hi

I thought that, in some inadequate way, I would try and reassure you at this stressful time.

My daughter Alexandra, who is 11 (but going on 17!), is currently in the Royal Orthopaedic Hospital...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 22nd May 2009, 08:06 PM
Replies: 7
Views: 681
Posted By Katherine66
Update on Alexandra's Surgery

Hi All

just to give you a quick update on Alex's surgery as I have been at the ROH all week and have just come home for a couple of nights (having swapped with DH). She was in theatre for 10...
Forum: General Discussions 11th May 2009, 08:36 PM
Replies: 10
Views: 1,016
Posted By Katherine66
Re: Can a GP refuse to send you for a 2nd opinion?

I would second Gilly's remarks. I can't speak highly enough of Mr Marks - he really is a good guy and knows his stuff. If you want his private secretary's email address and mobile number then PM...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 11th May 2009, 05:40 PM
Replies: 13
Views: 909
Posted By Katherine66
Re: Alexandra Surgery Monday 18th May

Thanks everyone - you are all so lovely and generous with your kind words.

Oh no, I'm welling up now ...

Katherine x
Forum: General Discussions 11th May 2009, 12:27 PM
Replies: 10
Views: 1,016
Posted By Katherine66
Re: Can a GP refuse to send you for a 2nd opinion?

Sorry you are having such a frustrating time. Just a thought and I may be entirely off the mark, but what about giving Professor Fairbanks' secretary a call and explaining the situation? She may be...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 11th May 2009, 12:14 PM
Replies: 13
Views: 909
Posted By Katherine66
Re: Alexandra Surgery Monday 18th May

Wishing you lots of luck (although I'm sure luck doesn't come into it!) and very best wishes for Thursday.

Katherine x
Forum: Infantile, Juvenile and Congenital Scoliosis Room 11th May 2009, 09:54 AM
Replies: 13
Views: 909
Posted By Katherine66
Alexandra Surgery Monday 18th May

Just to let you all know that Alex's surgery is all confirmed for next Monday. We are off to Birmingham for pre-op bloods, etc on Wednesday and then go in Sunday afternoon.

I know that this week...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 6th May 2009, 02:47 PM
Replies: 8
Views: 628
Posted By Katherine66
Re: Katie's 3 month check

Great news! Delighted to hear that Katie is doing so well - long may it continue.

Katherine
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd May 2009, 12:49 PM
Replies: 5
Views: 624
Posted By Katherine66
Unhappy Alex's Operation Date

Dear All

just to let you know that my 11 yr old daughter, Alexandra, has her surgery scheduled for Monday, 18th May, (subject to confirmation by spinal cord monitoring team). This is to be carried...
Forum: General Discussions 28th April 2009, 09:39 AM
Replies: 21
Views: 1,328
Posted By Katherine66
Re: Recent diagnosis - practically no help from NHS!!

Hi

I just wanted to say that I strongly recommend that you get a referral to ROH, Birmingham. Mr Marks is fantastic, makes you feel like he really cares and never dismisses any concerns, however...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 17th March 2009, 11:20 AM
Replies: 7
Views: 741
Posted By Katherine66
Re: Consultants' Secretarys - BIG Moan!

Hi Rachie

nope, this is private which, whilst I in no way think gives us priority, I am paying for the priviledge of being ignored!

Katherine
Forum: Infantile, Juvenile and Congenital Scoliosis Room 17th March 2009, 11:09 AM
Replies: 7
Views: 741
Posted By Katherine66
Angry Consultants' Secretarys - BIG Moan!

Hi

have just got to have a moan about my daughters consultants secretary and her questionable communication skills. We now know that Alex has to have surgery again (she had a lumbar fusion at...
Showing results 1 to 25 of 32

 
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