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Search: Posts Made By: Lucy S
Forum: Non Surgical Room 9th July 2014, 06:30 PM
Replies: 4
Views: 459
Posted By Lucy S
Re: New mum with brace questions

Hi. My son was fitted with a brace when he was 3 after having growth rod surgery. From being cast to brace arriving took two days! He's a patient at GOSH but I don't see why that would make a...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 14th December 2013, 12:17 AM
Replies: 32
Views: 2,129
Posted By Lucy S
Re: Good luck Andrea and Erin

That's great :) Well done Erin. X
Forum: Infantile, Juvenile and Congenital Scoliosis Room 2nd December 2013, 10:57 PM
Replies: 32
Views: 2,129
Posted By Lucy S
Forum: Infantile, Juvenile and Congenital Scoliosis Room 20th November 2013, 12:59 PM
Replies: 6
Views: 1,364
Posted By Lucy S
Re: Halo traction and veptr

Hi. From the ages of 3 to 8 my son has had veptr, growth rods, back to veptr with numerous lengthenings in between. I would say the veptr surgeries are more invasive than the growth rod ones &...
Forum: General Discussions 26th August 2013, 09:38 PM
Replies: 27
Views: 1,221
Posted By Lucy S
Re: Is scoliosis your only health issue?

My 7 year old son has VACTERL Associasion, resulting in congenital scoliosis plus lots of added extras.
Forum: Non Surgical Room 21st July 2013, 10:03 AM
Replies: 2
Views: 684
Posted By Lucy S
Re: Boston Back Brace Pain?

My son used to wear a vest, his brace and a top over it but he'd get so hot. He decided to ditch the vest and wear his brace over his shirt. The only thing that bothered him were the constant...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 11th June 2013, 03:01 PM
Replies: 9
Views: 799
Posted By Lucy S
Re: xray of F's bling

Looks brilliant, what a correction! And what a relief not to have surgical lengthenings. Fingers crossed all goes according to plan.
Forum: General Discussions 2nd October 2012, 10:07 PM
Replies: 367
Views: 16,554
Posted By Lucy S
Re: Good luck Tiff with your Surgery

Not been on here for a while but glad I came on in time to wish you the very best of luck. Will be thinking of you. Xx
Forum: General Discussions 2nd October 2012, 10:01 PM
Replies: 69
Views: 2,993
Posted By Lucy S
Forum: General Discussions 25th July 2012, 10:29 PM
Replies: 9
Views: 624
Posted By Lucy S
Re: Best of Luck Jenna.KB

Good luck! Hope all goes well X
Forum: General Discussions 3rd July 2012, 08:38 PM
Replies: 90
Views: 3,793
Posted By Lucy S
Re: I'm getting surgery!! (and I also have Chiari)

So glad things are finally moving for you. Of course the Chiari (which I know nothing about) is an extra worry but at last your problems are being taken seriously. I guess your journey starts here -...
Forum: Kyphosis, Lordosis and Flatback Room 27th June 2012, 08:35 PM
Replies: 30
Views: 1,470
Posted By Lucy S
Re: Good Luck Storm!!

Good luck - hope all goes well.
Forum: General Discussions 21st June 2012, 10:20 PM
Replies: 51
Views: 1,822
Posted By Lucy S
Re: Go see Mr F tomorrow

What Tiff said.
Forum: General Discussions 3rd June 2012, 09:58 PM
Replies: 10
Views: 780
Posted By Lucy S
Re: Ending up alone

As a parent of a scoliosis sufferer (he's only 6) I can't offer any advice but would really like to give you a virtual hug. X
Forum: General Discussions 27th May 2012, 10:34 PM
Replies: 27
Views: 975
Posted By Lucy S
Re: 2nd stage of operation for Lauren tomorrow....help!

Best of luck for tomorrow. Got to say if it's common for bits to be out of place it wouldn't hurt fot the surgeon to tell you before hand! X
Forum: General Discussions 22nd May 2012, 08:53 PM
Replies: 14
Views: 683
Posted By Lucy S
Re: Update on Laurens surgery yesterday

Sounds like Lauren's doing amazingly well - great news. X
Forum: General Discussions 20th May 2012, 06:34 PM
Replies: 6
Views: 393
Posted By Lucy S
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th May 2012, 09:47 PM
Replies: 14
Views: 1,913
Posted By Lucy S
Re: 4 year old scoliosis, nf1 and pectus excavatum

I'm pretty sure she'll have the MRI under general anaesthetic. Jake had 3 between the age of 2-5 each one under anaesthetic.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 10th May 2012, 09:47 AM
Replies: 16
Views: 2,545
Posted By Lucy S
Re: 4 year old daughter diagnosed with congenital scoliosis

Hi. My 6 year old, Jake, has congenital scoliosis, several hemivertebrae, fused ribs & 3 missing ribs. He had VEPTR surgery when he was 3 & now has growth rods attached to his spine which are...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th May 2012, 01:01 PM
Replies: 4
Views: 280
Posted By Lucy S
Re: Update on Lewis.

Sorry to hear about the diabetes, poor Lewis. My 6 year old has congenital scoliosis (+ some extras, he has VACTERL Association) and has some hypermobility. It doesn't cause him any problems at the...
Forum: General Discussions 18th April 2012, 08:54 PM
Replies: 66
Views: 1,993
Posted By Lucy S
Re: Good luck Gilly :)

Good luck! X
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd April 2012, 10:56 AM
Replies: 11
Views: 676
Posted By Lucy S
Re: KAREN2E : Last Post Before Surgery Tomorrow

The very best of luck! Hope all goes well. X
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd April 2012, 10:54 AM
Replies: 22
Views: 825
Posted By Lucy S
Forum: General Discussions 30th March 2012, 10:17 PM
Replies: 20
Views: 967
Posted By Lucy S
Re: AHHHHHHHHH what do you have to do

Hi Mark, we don't know each other at all but Juliette is right in saying you are such a support to others on here so you've every flipping right to have a good old moan.
Forum: General Discussions 30th March 2012, 04:56 PM
Replies: 16
Views: 745
Posted By Lucy S
Re: Pre & post revision photos

Wow - the difference is amazing!
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