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Search: Posts Made By: DeborahBen
Forum: General Discussions 11th October 2012, 01:21 PM
Replies: 3
Views: 367
Posted By DeborahBen
Things to do in October half term when not feeling great...

Half term is approaching but is is a late one this year 29th - 2nd Nov. I have a very sad and miserable 12 year old son who is really suffering with back pain and arthritis in his feet and knees. I...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 26th June 2012, 01:09 PM
Replies: 4
Views: 443
Posted By DeborahBen
Re: Getting an educational statement

Thanks Titch. Yes Ollie due to have insoles fitted. The problem with his knees and feet are either growth plates OSD and plantar or arthritis waiting for results and Drs to make up mind but they have...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 25th June 2012, 10:16 PM
Replies: 4
Views: 443
Posted By DeborahBen
Getting an educational statement

Hi, Oliver is still having problems with his back. The Dr has stated that his spine is stable but he will have continued back pain. He is also struggling with knee and foot pain which makes it...
Forum: General Discussions 18th June 2012, 10:49 PM
Replies: 15
Views: 955
Posted By DeborahBen
Re: Help at School

We are three years down the line from the first surgery and the school he was at then was really unsupportive and year five was hard work. I learnt to fight a bit more in year six for Oliver's rights...
Forum: General Discussions 17th June 2012, 09:47 PM
Replies: 15
Views: 955
Posted By DeborahBen
Re: Help at School

Oliver is just 12. He carries a medical card at school which means he does not get in to trouble if he is late for lessons as the school is REALLY big. He is also allowed to miss PE if he wants, he...
Forum: General Discussions 23rd May 2012, 10:43 PM
Replies: 12
Views: 2,079
Posted By DeborahBen
Re: Are you able to do pilates with a fused spine?

Thanks Louise, yes we are waiting for a refferal but I would love something fun and interesting for him to do that would get everything working and sweating! but hopefully the physio might be some...
Forum: General Discussions 22nd May 2012, 10:54 PM
Replies: 12
Views: 2,079
Posted By DeborahBen
Re: Are you able to do pilates with a fused spine?

I am having a problem with Oliver at the moment. He is 18 months post op and still having back pain, I am told that he should be doing core exercises but what can you do with a 12 year old? he is...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 24th April 2012, 02:03 PM
Replies: 6
Views: 596
Posted By DeborahBen
Re: Muscle Pain

by the way this is not connected to his back issues and I think quite common. Ollie is hypomobile too and another child he knows has PF and also hypombile but I do not think there is a connection to...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 24th April 2012, 02:01 PM
Replies: 6
Views: 596
Posted By DeborahBen
Re: Muscle Pain

Hi,
Oliver had really bad pain in his foot after his operation and I though they had caught a nerve and kept telling Mr Tucker. We then went to see our local orpho chap who said it was Plantar...
Forum: General Discussions 20th April 2012, 12:41 PM
Replies: 5
Views: 497
Posted By DeborahBen
Re: Weight Issues

Thanks Liz. Yes the first operation was carried out at Standmore under Mr Harrison and the second at GOSH under Mr Tucker. It has been a very very difficult three years but thankfully Oliver is doing...
Forum: General Discussions 19th April 2012, 10:48 PM
Replies: 5
Views: 497
Posted By DeborahBen
Re: Weight Issues

Hi Liz, I was very interested to read that you also have spondylolisthesis. I have found it really hard to find other people with this. Oliver was diagnoised 2009 (he was nine years old) and I was...
Forum: General Discussions 19th April 2012, 03:46 PM
Replies: 5
Views: 497
Posted By DeborahBen
Weight Issues

Oliver is going to be 12 in June. He had his operation Dec 10 so we are now 16 months post op. He wore his brace for ten months after his first op had a nine month break and wore his second one for...
Forum: General Discussions 28th March 2012, 09:34 PM
Replies: 27
Views: 2,078
Posted By DeborahBen
Re: Mr. Gibson & Mr. Tucker

My nine year old son's first spinal fusion failed and we then went to Mr Tucker at the Wellington for a second option. He operated in Dec 10 and the operation was a success. I think he is an...
Forum: General Discussions 28th December 2011, 03:17 PM
Replies: 2
Views: 325
Posted By DeborahBen
Sports physio or normal?!

Merry Christmas everyone.

Okay, starting the New Year running! Oliver has had a year to recover from the Op we now need to move forward and get fit. I need him to tighten his tummy and lose some...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 20th December 2011, 06:47 PM
Replies: 17
Views: 2,010
Posted By DeborahBen
Forum: Infantile, Juvenile and Congenital Scoliosis Room 19th December 2011, 10:46 PM
Replies: 17
Views: 2,010
Posted By DeborahBen
Re: Mental Health Issue

Thanks for thinking about us. We had an appointment with the mental health team at GOS a few weeks ago but they cancelled due to illness so now waiting until 11th Jan. It seems that as we were...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 18th November 2011, 11:43 PM
Replies: 20
Views: 1,473
Posted By DeborahBen
Re: Woohoo! She's fused!

Brilliant wonderful news, well done both of you for all your hard work. I am so pleased for you and for all the family. Enjoy Christmas and finally relax a little xxxx
Forum: Infantile, Juvenile and Congenital Scoliosis Room 14th November 2011, 12:45 PM
Replies: 35
Views: 3,123
Posted By DeborahBen
Re: Katie's Surgery

Brave Katie and brave mummy, well done both you....big hugs and kisses xxxxxxxxxxxxxx
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd November 2011, 10:07 PM
Replies: 17
Views: 2,010
Posted By DeborahBen
Re: Mental Health Issue

thank you everyone, honestly this support is like a hug thank you so much x
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd November 2011, 07:25 PM
Replies: 17
Views: 2,010
Posted By DeborahBen
Re: Mental Health Issue

Thanks everyone. I have already contacted GOSH this afternoon and spoke to a lovely doctor there who would be happy to help. I have to get Mr Tucker to refer us but he is away until next week. I...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd November 2011, 10:44 AM
Replies: 17
Views: 2,010
Posted By DeborahBen
Mental Health Issue

The last post was all about how well things were going.....Oliver is suffering with his growth plates again which has made him feel really tired. The problem is that he has got really low again and...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 24th October 2011, 11:40 PM
Replies: 27
Views: 1,475
Posted By DeborahBen
Thumbs up Re: Good luck Erin and Andrea

Well done both of you, sending big hugs to you both
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th October 2011, 12:34 PM
Replies: 6
Views: 789
Posted By DeborahBen
Re: Follow up on all my concerns and tests

Thank you both......yes been busy but glad I have made the decision to stop working so I can be at home more to support Ollie and to spend a bit of time for me to recover as well my hair has grown...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th October 2011, 10:27 AM
Replies: 6
Views: 789
Posted By DeborahBen
Follow up on all my concerns and tests

Dear All,

As you know I was concerned about three issues for Oliver following his second surgery in December last year.

1. Firstly Oliver was getting very bad pain in his knees, feet and then...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 5th September 2011, 05:32 PM
Replies: 10
Views: 2,091
Posted By DeborahBen
Re: Links to be wetting at night and muscle pain

will do thanks. I have made an appointment to see Mr Duffy at GOS on the 11th October, that is an inset day as I was mindful of taking Ollie out of school as he would have just started - will let you...
Showing results 1 to 25 of 111

 
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