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Search: Posts Made By: conni60640@gmail.com
Forum: General Discussions 5th February 2007, 10:06 PM
Replies: 38
Views: 3,619
Welcome Holly! My son has VATERS/VACTERLS and...

Welcome Holly! My son has VATERS/VACTERLS and many of the children only have issues internally, so you would NEVER know by looking at them there was anything wrong. Usually the most obvious things...
Forum: General Discussions 24th January 2007, 05:52 PM
Replies: 5
Views: 485
When you say an extra vertebra that is abnormal,...

When you say an extra vertebra that is abnormal, not sure what you mean...

Does she have a piece of one, like a hemivertebra (half vertebra), stuck in the wrong place (Billy has one of these, stuck...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 23rd January 2007, 11:41 PM
Replies: 14
Views: 968
My daughter had about a 9 degree idiopathic curve...

My daughter had about a 9 degree idiopathic curve at 10 years of age. They just had her back in six months for a visit, and it hadn't done anything, and they followed up one more time, and then...
Forum: General Discussions 19th January 2007, 04:22 PM
Replies: 86
Views: 28,124
Billy was treated by Dr. Richard Bowen AI duPont...

Billy was treated by Dr. Richard Bowen
AI duPont Hospital for Children
Wilmington, DE

We've had great care from the hospital and docs there for all of Billy's medical issues.
Forum: General Discussions 19th January 2007, 04:14 PM
Replies: 2
Views: 451
That was cool, I watched that when it happened in...

That was cool, I watched that when it happened in September, soon after Billy's scoliosis surgery. He saw parts of it, and asked some questions, but didn't seem too impressed, haha... He knows they...
Forum: General Discussions 19th January 2007, 04:03 PM
Replies: 38
Views: 3,619
Here are pics of the one boy on Surgery Saved my...

Here are pics of the one boy on Surgery Saved my Life, who also had ninety degree kyphosis, with scoliosis also...

http://dsc.discovery.com/fansites/surgery/...pine/spine.html...
Forum: General Discussions 19th January 2007, 03:56 PM
Replies: 38
Views: 3,619
My son Billy has VACTERLS, and this was a much...

My son Billy has VACTERLS, and this was a much discussed topic on our boards, LOL... Including the pronunciation, syndrome vs. association, and genetic thing, however we ended up deciding that even...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 18th January 2007, 01:02 PM
Replies: 28
Views: 1,728
Glad to hear it, good luck in March!!! :-)

Glad to hear it, good luck in March!!! :-)
Forum: Infantile, Juvenile and Congenital Scoliosis Room 17th January 2007, 10:50 PM
Replies: 28
Views: 1,728
Welcome! My son Billy is six and has congenital...

Welcome! My son Billy is six and has congenital scoliosis also. He had a lumbar hemivertebra also, along with a half sacrum, tilted pelvis, etc that caused his lower spine to be unstable, needing a...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 10th December 2006, 08:34 PM
Replies: 8
Views: 1,059
Billy has only had one cast removed on his back...

Billy has only had one cast removed on his back from postop fusion, but he wears an ankle foot orthosis that requires plaster casting of foot to knee fairly often (so they can make a form to mold...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd December 2006, 02:12 AM
Replies: 26
Views: 1,833
Great news, although sorry you guys had such a...

Great news, although sorry you guys had such a scare! I can relate to the recovery part, my son just had a fusion in August, and it took a bit of getting used to everything before he was up and...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd December 2006, 02:05 AM
Replies: 26
Views: 2,116
I noticed Billy's curve when he was about...

I noticed Billy's curve when he was about eighteen months to two years old, but his situation is a bit different since he has congenital scoliosis and I knew from birth he had a chance to develop a...
Forum: General Discussions 3rd December 2006, 01:54 AM
Replies: 9
Views: 753
I laughed at the golf tees and chopsticks, LOL......

I laughed at the golf tees and chopsticks, LOL... With sixteen screws and two rods, Billy looks pretty much the same...

What I am curious about is if anyone has a picture of the spine after not just...
Forum: General Discussions 8th November 2006, 02:10 AM
Replies: 29
Views: 1,471
Abbi, that's a nice sentiment and maybe the laws...

Abbi, that's a nice sentiment and maybe the laws have changed, but I know too many people whose information has been thrown out after a certain period of time to really believe that.

In the US, if...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th October 2006, 05:57 PM
Replies: 3
Views: 1,245
Thanks Andrea and Toni, turns out it's really a...

Thanks Andrea and Toni, turns out it's really a non issue. His TLSO is a wilmington brace, which is very light weight and form fitting, so his undies and pants pull up right over the brace with no...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th October 2006, 02:54 PM
Replies: 24
Views: 3,686
Sealy, I checked out that lecture by McMaster,...

Sealy, I checked out that lecture by McMaster, wow that was great! I linked that on the congenital scoliosis group! Lots of great xrays and pics, and good descriptions of the different types of...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th October 2006, 01:58 PM
Replies: 24
Views: 3,686
Hi Shirley. My son Billy also has congenital...

Hi Shirley. My son Billy also has congenital scoliosis. His main problems are also at the base of his spine. He just turned six this summer, and watch and wait was the story of our lives for the...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 28th September 2006, 10:20 PM
Replies: 3
Views: 1,245
Hi everyone, it's been a while since I posted. ...

Hi everyone, it's been a while since I posted. My son Billy is six and has congenital scoliosis and is now six weeks post fusion (T11 - sacrum with pedicle screws and rods). He is currently in a...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 25th July 2006, 06:32 PM
Replies: 4
Views: 941
For those who have had this done, I'm looking to...

For those who have had this done, I'm looking to find out how Billy will be feeling in the weeks after surgery... how long in the hospital, what kind of complications have you had happen, when do...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 25th July 2006, 06:30 PM
Replies: 5
Views: 867
Erin, we have no personal feedback from wearing a...

Erin, we have no personal feedback from wearing a Halo device but I do know a mom on a Congenital Scoliosis group whose son did wear one... she may be able to offer some support/advice... You can...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 29th December 2005, 03:36 PM
Replies: 4
Views: 1,287
Has the MRI (I think I saw there was one?) been...

Has the MRI (I think I saw there was one?) been read by a pediatric neurosurgeon? Low back pain and leg numbness can be a sign of a tethered spinal cord, in which the base of the spinal cord is...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 12th October 2005, 04:48 PM
Replies: 18
Views: 1,108
Carlos, there is a website specifically for...

Carlos, there is a website specifically for families looking for information or who have already had the surgery and are living with the VEPTR implants at http://veptr.com/

It is a great bunch of...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th October 2005, 02:40 PM
Replies: 18
Views: 1,108
Welcome Carlos. My son Billy is 5 and has a...

Welcome Carlos. My son Billy is 5 and has a hemivertebra also, although his is "behaving" so far. He has scoliosis mainly from an uneven pelvis due to sacral anomalies causing his lumbar spine to...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 18th September 2005, 02:14 PM
Replies: 14
Views: 816
Thanks for the welcome! Better late than never...

Thanks for the welcome! Better late than never has ALWAYS been my motto, LOL... ;-)

Glad to hear that you have been skeletally stable since your surgeries, although that's pretty extreme for such...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 17th September 2005, 07:45 PM
Replies: 11
Views: 832
Cathy, left you several notes, but email me (...

Cathy, left you several notes, but email me ( conni60640@aol.com ) and I'll give you the addy for the program coordinator... maybe she can help some?
Showing results 1 to 25 of 27

 
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