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Search: Posts Made By: DublinPauline
Forum: General Discussions 30th March 2012, 10:45 AM
Replies: 24
Views: 976
Posted By DublinPauline
Re: Newbie

Welcome to SSO Tara and Conor! I live in Dublin. I have congenital kyphoscoliosis and had a spinal fusion in Cappagh way back in 1979 which has held my spine pretty much stable for 33 years,...
Forum: General Discussions 21st June 2011, 11:18 PM
Replies: 6
Views: 980
Posted By DublinPauline
Re: Heartbreaking story from Ireland

That's great news but the overall situation remains poor. I'm surprised that children are facing the same or worse waits in Canada.
Forum: General Discussions 21st June 2011, 11:14 PM
Replies: 16
Views: 1,863
Posted By DublinPauline
Re: anyone 10+ years post op?

I had surgery in 1979, Harrington rods still there and have kept me stable for 32 years.
I have some respiratory limitations because my curves had reached 100 degrees plus by the time I had my...
Forum: General Discussions 2nd November 2010, 10:36 PM
Replies: 9
Views: 1,528
Posted By DublinPauline
Re: Extreme Kyphoscoliosis Heart Problems

Hi Steve
I have congenital scoliosis and around 45% lung capacity. When your lungs are compromised, the lower levels of oxygenation can effect the heart so they both need to be assessed. My...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 22nd October 2010, 12:00 AM
Replies: 48
Views: 5,263
Posted By DublinPauline
Re: Newbie with marfan syndrome

Hi Lenny
Has the surgery taken place yet? It must be so frustrating to have to wait so long when you know your daughter needs the surgery.
Pauline
Forum: General Discussions 21st October 2010, 10:31 PM
Replies: 4
Views: 652
Posted By DublinPauline
Re: Waiting lists in Ireland

Hi
Does anyone know what the current waiting times for surgery for children are like in Ireland? I've been contacted by a journalist and am trying to build up an up to date picture.
Pauline
Forum: General Discussions 23rd April 2010, 12:06 AM
Replies: 6
Views: 672
Posted By DublinPauline
Forum: General Discussions 14th April 2010, 11:30 AM
Replies: 32
Views: 1,557
Posted By DublinPauline
Re: Jono's going to be on TV!

I finally had a chance to watch the interview. You were both brilliant!
It is shocking that a non-specialised orthopaedic surgeon could be so slow to refer you to a specialist clinic. This is...
Forum: Kyphosis, Lordosis and Flatback Room 14th April 2010, 11:25 AM
Replies: 25
Views: 1,589
Posted By DublinPauline
Re: Are you happy with your correction

Nearly 31 years on, I can't complain! Cosmetically, I could be straighter but I am blessed not to have pain and everything has been pretty much stable over the years despite me having "severe"...
Forum: General Discussions 14th April 2010, 11:22 AM
Replies: 23
Views: 1,424
Posted By DublinPauline
Re: Diminished Breathing

Sorry to hear about these breathing problems. I think it might be helpful to ask your GP to get you an appointment to see a Respiratory specialist as well as the Scoliosis one as you would need...
Forum: General Discussions 7th January 2010, 02:44 PM
Replies: 3
Views: 578
Posted By DublinPauline
Re: Most common vertabrae affected by scoliosis

That would be very helpful, Toni, thanks a million. I'll look it up and will direct him there.
All the best,
Pauline
Forum: General Discussions 6th January 2010, 11:27 PM
Replies: 3
Views: 578
Posted By DublinPauline
Most common vertabrae affected by scoliosis

Hi all

We (SSAI) received an enquiry from a student of Mechanical Engineering who is designing computer simulated dummies with skeletal curves to represent affects of scoliosis for a project:

" To...
Forum: General Discussions 4th January 2010, 07:17 PM
Replies: 32
Views: 2,088
Posted By DublinPauline
Re: Before and after photo

Wow, that result is amazing. He must be thrilled.
Forum: General Discussions 18th November 2009, 11:15 AM
Replies: 454
Views: 24,651
Posted By DublinPauline
Re: Good Luck Mark !!

Best of luck Mark. Sending good vibes from Dublin for a speedy recovery.
Pauline
Forum: General Discussions 21st July 2009, 03:37 PM
Replies: 17
Views: 1,272
Posted By DublinPauline
Re: How long did you have to wait for surgery?

This information is really helpful. I'd appreciate it if you'd add your information about waiting times wherever you live in the world, even if you don't have information on the effect of the wait. ...
Forum: General Discussions 14th July 2009, 12:28 AM
Replies: 17
Views: 1,272
Posted By DublinPauline
How long did you have to wait for surgery?

Hi all

A group of us have established a Scoliosis Support Association in Ireland and we are comparing waiting times here with those in other countries. The waiting times here have stretched to a...
Forum: Access, Suggestions & Tech Help 2nd July 2009, 11:32 PM
Replies: 27
Views: 6,021
Posted By DublinPauline
Re: Issues with the new site?

I can't log in as Pauline for some reason. I've tried every password I can think of and none have worked. When I put in a New Password request, it gave one for the DublinPauline account.
THanks for...
Forum: General Discussions 15th February 2009, 10:31 PM
Replies: 10
Views: 2,141
Posted By DublinPauline
Re: Scoliosis and pregnancy

Funny you should mention going outwards to compensate for short torso - that's exactly what happened to me when I was expecting my daughter. I was huge! I had Harrington Rods for 20 years when I...
Forum: General Discussions 19th November 2008, 12:04 AM
Replies: 30
Views: 1,510
Posted By DublinPauline
Re: 26th of January at 2pm!!!!

Great news - must be great to have a date to plan around now.
Pauline
Forum: General Discussions 6th April 2008, 10:55 PM
Replies: 58
Views: 3,456
Posted By DublinPauline
Chele Please please take it easy over the next...

Chele
Please please take it easy over the next few weeks. Lots of books and daytime TV on the cards over the next while your spine fuses and your muscles get used to the changes that have taken...
Forum: General Discussions 10th March 2008, 11:18 PM
Replies: 59
Views: 3,565
Posted By DublinPauline
Wow, great result from that appointment. Sounds...

Wow, great result from that appointment. Sounds like he'll be able to get to the root of the pain which is fantastic!
Forum: General Discussions 10th March 2008, 11:01 PM
Replies: 58
Views: 3,456
Posted By DublinPauline
Chele, I'm glad you don't have to wait too long...

Chele, I'm glad you don't have to wait too long for your surgery date - the very best of luck with it! I'll be in to see you and I promise not to faint this time....
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th February 2008, 10:37 PM
Replies: 12
Views: 769
Posted By DublinPauline
It looks like Sealy's scoliosis is practically...

It looks like Sealy's scoliosis is practically gone now? Wonderful news!
Forum: General Discussions 13th February 2008, 10:30 PM
Replies: 25
Views: 1,187
Posted By DublinPauline
Good luck with the chiropractor Jean. I can't...

Good luck with the chiropractor Jean. I can't think of any intelligent questions to add other than how standard chiro is adjusted for scoliosis and what kind of realistic benefits you should expect...
Forum: General Discussions 11th October 2007, 12:20 PM
Replies: 11
Views: 889
Posted By DublinPauline
Wow - I've just discovered the joys of...

Wow - I've just discovered the joys of wheatfilled shoulder cushions that go in the microwave - magic! A friend lent one to me yesterday and it's having a much better effect than the medication. ...
Showing results 1 to 25 of 336

 
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