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Search: Posts Made By: Rachie
Forum: General Discussions 5th July 2014, 10:09 PM
Replies: 36
Views: 834
Posted By Rachie
Re: Mr Tucker resigning from Stanmore! :-(

Gosh this is a surprise. Though I always thought how dumb it was that he had a clinic at Stanmore on the morning of the same day he had his afternoon clinic at GOSH. He was often stuck in traffic and...
Forum: General Discussions 11th May 2014, 12:23 PM
Replies: 2
Views: 163
Posted By Rachie
Three years on...hope for those facing surgery.

Hi everyone. Three years ago Maddy was about to go into hospital for halo traction then spinal fusion. We don't really think about scoliosis any more...yay! We have the normal teenage stresses not...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 1st May 2014, 10:26 PM
Replies: 4
Views: 321
Posted By Rachie
Forum: General Discussions 30th April 2014, 10:54 AM
Replies: 11
Views: 433
Posted By Rachie
Re: Scared Mom

You're welcome. That's what we're here for. You can always try searching on the internet for studies on the effectiveness of bracing if you want more information/statistics.
Forum: General Discussions 28th April 2014, 08:58 PM
Replies: 11
Views: 433
Posted By Rachie
Re: Scared Mom

Hi Scared Mom. I too was a scared mom for a long time! My daughter's scoliosis was seriously huge and she endured 10 surgeries from age 7 to age 10. She is now 3 years post fusion and living life to...
Forum: General Discussions 28th April 2014, 08:48 PM
Replies: 3
Views: 150
Posted By Rachie
Inspirational!

http://focos.squarespace.com/journal/2014/4/25/patient-transformations-their-incredible-stories.html
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th April 2014, 10:13 PM
Replies: 1
Views: 242
Posted By Rachie
Re: update

That sounds like good news. Thanks for the update. X
Forum: General Discussions 9th April 2014, 10:10 PM
Replies: 7
Views: 258
Posted By Rachie
Re: Rods at an early age

Hi Sarah Jane and welcome :-)
My daughter was diagnosed aged 4 and I now know she should have been cast or given growth rods asap as her curve was bad. But her consultant decided to watch and wait....
Forum: General Discussions 14th February 2014, 01:18 PM
Replies: 8
Views: 397
Posted By Rachie
Re: I had a 2nd opinion yesterday

Definitely. We weren't happy, got a second opinion and switched.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th February 2014, 09:10 AM
Replies: 13
Views: 2,063
Posted By Rachie
Re: New and seeking info on Magnetic Growth Rods

Hi. I just want to add that GOSH is a great hospital to be at. The spinal team, together with that at RNOH Stanmore, is leading the way and has a large growth rod programme. Magnetic rods came too...
Forum: General Discussions 26th January 2014, 02:00 PM
Replies: 10
Views: 750
Posted By Rachie
Re: Ronnie going to spinal injuries unit at stamore at last e

It sounds like you are having a terrible time. I hope its some comfort to know he's in the best place to help him. Best wishes. X
Forum: General Discussions 20th January 2014, 08:39 PM
Replies: 10
Views: 750
Posted By Rachie
Re: Ronnie going to spinal injuries unit at stamore at last e

Sue. I hope you are coping with all this. How is Ron?
Forum: General Discussions 20th January 2014, 08:35 PM
Replies: 7
Views: 382
Posted By Rachie
Re: Message for AishaA

Hello Aisha. I'm so sorry things took a turn for the worse. It sounds like the consultant has a lot of questions to answer like why he didnt adequately pass on his patient to someone who could...
Forum: General Discussions 18th January 2014, 08:57 AM
Replies: 14
Views: 1,455
Posted By Rachie
Re: Feel down that there is nothing that can be done about rib hump :-(

Hi. Another member of the Mr Tucker fan club here! I thinks its always wise to get a second opinion and I know that Mr T relishes the more difficult cases. I also know that he will say if he cant...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 24th December 2013, 04:07 PM
Replies: 9
Views: 698
Posted By Rachie
Re: Newbie with magnetic rods

Welcome. You have been through a lot with your little one. We only have a few children on here with magnetic growth rods so we would love to hear how she gets on.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 21st December 2013, 08:19 AM
Replies: 32
Views: 1,889
Posted By Rachie
Re: Good luck Andrea and Erin

I am pleased to report that Andrea and Erin have made it home in time for Christmas!
Forum: Infantile, Juvenile and Congenital Scoliosis Room 13th December 2013, 10:31 PM
Replies: 32
Views: 1,889
Posted By Rachie
Re: Good luck Andrea and Erin

Erin's chest drain is out and she is back on the ward. Hopefully home by Christmas.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 12th December 2013, 04:50 PM
Replies: 32
Views: 1,889
Posted By Rachie
Re: Good luck Andrea and Erin

Erin has been in HDU since her fusion on Tuesday. Hopefully she will be on the ward soon.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 6th December 2013, 08:14 PM
Replies: 32
Views: 1,889
Posted By Rachie
Re: Good luck Andrea and Erin

Erin is doing well. Not in much pain but the boredom is kicking in. Now its the weekend Tuesday shouldn't seem too far away.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd December 2013, 07:34 PM
Replies: 32
Views: 1,889
Posted By Rachie
Re: Good luck Andrea and Erin

Andrea says they are doing fine. Erin is having fusion next Tuesday and she has to keep the chest drain in until then -poor thing.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 3rd December 2013, 04:15 PM
Replies: 32
Views: 1,889
Posted By Rachie
Re: Good luck Andrea and Erin

The first stage has all gone to plan and Erin is asleep in HDU.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 30th November 2013, 11:58 AM
Replies: 32
Views: 1,889
Posted By Rachie
Good luck Andrea and Erin

Erin (age 11) is having a two-stage spinal fusion surgery beginning on Tuesday. At the moment they don't know if the two stages will be done in one go or a week apart. Mr Tucker was wonderful in...
Forum: General Discussions 26th November 2013, 08:30 PM
Replies: 31
Views: 1,722
Posted By Rachie
Re: dreadful news

Dear Sue, I'm so sorry to hear this scary news. Please pass my best wishes to Ron and know that you are not forgotten. X
Forum: Infantile, Juvenile and Congenital Scoliosis Room 12th November 2013, 02:38 PM
Replies: 6
Views: 1,150
Posted By Rachie
Re: Halo traction and veptr

Sorry I've only just seen your post. My experience is with my daughter on a Stryker Frame, see thread: http://www.scoliosis-support.org/showthread.php?t=12840

It looks like a barbaric form of...
Forum: General Discussions 5th November 2013, 05:37 PM
Replies: 4
Views: 341
Posted By Rachie
Re: Halo - what to bring?

You did mention it. There was a mirror but no one knew how to fix it on so it wasnt used!
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