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Search: Posts Made By: madmclw
Forum: General Discussions 20th November 2014, 05:54 PM
Replies: 11
Views: 232
Posted By madmclw
Re: Nicol's surgery 20/11/14

Good luck to Nicol :gvibes:

And best wishes to you too! This can't be easy as a parent, but it sounds like you are all taking a very positive approach and that's half the battle won, I think. Stay...
Forum: General Discussions 13th November 2014, 10:16 AM
Replies: 8
Views: 304
Posted By madmclw
Re: INFORMATION

The majority of cases of scoliosis are idiopathic - meaning that there is no known cause - and this is far more common in adolescents than in infants or adults. This means that it is entirely...
Forum: General Discussions 6th November 2014, 10:26 PM
Replies: 14
Views: 252
Posted By madmclw
Re: Question about rods

I think there is quite a big misconception about what the rods and screws are for and how the surgery actually works. The metalwork is there to act as a kind of scaffolding - the important part is...
Forum: General Discussions 5th November 2014, 01:01 AM
Replies: 7
Views: 213
Posted By madmclw
Re: Do you have friends that have Scoliosis?

I had never heard of scoliosis before I was diagnosed, but since then I've heard of quite a few people who've got it - some of my friends too! In fact, when I found out I had a place on my...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 7th October 2014, 05:24 PM
Replies: 2
Views: 190
Posted By madmclw
Re: new: question on bras

Despite being post-surgery I still have significant rotation of my ribcage, meaning I still have a noticeable rib hump and my breasts look very uneven (they are about the same size, but because of...
Forum: General Discussions 7th October 2014, 10:55 AM
Replies: 14
Views: 422
Posted By madmclw
Re: Revision surgery tomorrow - if they don't cancel it again!

Best of luck Jan - and :fingersx: it actually goes ahead this time!!
Forum: General Discussions 4th October 2014, 10:49 AM
Replies: 2
Views: 250
Posted By madmclw
Re: 4.5 years postop

Congratulations Kara! :D that is an awesome milestone. How are things with your back now?
Forum: General Discussions 4th October 2014, 10:47 AM
Replies: 1
Views: 163
Posted By madmclw
Re: Six Week Post Op

Congratulations on getting to 6 weeks! It's good news that your surgeon seems to think it's gone well. :) Did you mention your foot problems to him? I hope it doesn't cause you too much trouble and...
Forum: General Discussions 23rd September 2014, 07:19 PM
Replies: 26
Views: 721
Posted By madmclw
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

Well this is EXACTLY how I write too! And I empathise entirely with the issues when it comes to writing slowly and hand cramping, especially during exams. I don't *believe* I have EDS, but this is...
Forum: General Discussions 15th September 2014, 08:02 PM
Replies: 13
Views: 342
Posted By madmclw
Re: Appointment while at uni...

Like Bronte, I've been discharged from the hospital but when I moved to uni I registered with the uni health centre, so that I knew I had easy access to a GP should anything go wrong and I needed...
Forum: General Discussions 9th September 2014, 06:05 PM
Replies: 4
Views: 228
Posted By madmclw
Re: Question for Parents

Glad to hear that the majority of your friends and family are being supportive, but sorry that some are acting strangely :( What sort of things are they saying/doing? I'm not a parent myself but I do...
Forum: General Discussions 9th September 2014, 06:02 PM
Replies: 8
Views: 327
Posted By madmclw
Re: Relieved its come to an end :)

That's such exciting news!!! I'm so pleased for you and your daughter :D :fingersx: things stay well for your daughter and scoliosis never bothers her again :)

Party time!! :party::party:
Forum: General Discussions 20th August 2014, 10:13 AM
Replies: 5
Views: 215
Posted By madmclw
Re: Sleeping

That is how I always slept after my surgery! Even in the hospital I would lay on my side, the nurses would turn me periodically and prop me up with pillows to support my back as you describe. I even...
Forum: General Discussions 17th August 2014, 11:32 PM
Replies: 118
Views: 6,087
Posted By madmclw
Re: Scoliosis in the news - Richard III?

Haha, good to know! ;) You should write in and inform them of that fact. It's probably about as useful a comparison as whatever they were trying to do with that poor guy!

I have very little clue...
Forum: General Discussions 17th August 2014, 10:31 PM
Replies: 118
Views: 6,087
Posted By madmclw
Re: Scoliosis in the news - Richard III?

Is anyone else watching this??

I'm finding the whole testing the capabilities of the 'body double' thing very random...
Forum: General Discussions 30th July 2014, 03:10 PM
Replies: 8
Views: 287
Posted By madmclw
Re: post op-can anyone HELP me??

Hi James :welcome2:

Sorry to hear how you feel these problems are affecting you - but PLEASE try not to worry!! 9 days is still so early on in the recovery period and you're bound to feel like some...
Forum: General Discussions 26th July 2014, 06:20 PM
Replies: 12
Views: 730
Posted By madmclw
Re: Not One Answer?

Barbara,

I understand your upset and frustration, and I know that some of the advice offered above may not have been exactly what you wanted or needed to hear at this time, but please can we...
Forum: General Discussions 25th July 2014, 10:37 AM
Replies: 12
Views: 730
Posted By madmclw
Re: Not One Answer?

Hi Barbara,

I am one of the moderators on this forum and let me first apologise for the lack of response on your thread. I understand that it must be incredibly frustrating for you not getting the...
Forum: General Discussions 2nd June 2014, 10:27 PM
Replies: 94
Views: 2,422
Posted By madmclw
Re: More surgery Thursday!

Oh my! Sorry you have to have more surgery Jay, but glad to hear nothing is wrong and I guess it makes sense to get it all out of the way in one go! Hope they find a bed for you and :fingersx: it all...
Forum: General Discussions 27th May 2014, 03:33 PM
Replies: 7
Views: 374
Posted By madmclw
Re: Daughters surgery approaching & have a question.

I don't recall what the process was for pain relief once I came home - I assume the hospital issues the prescription - but I do remember that even once I was home I was still getting my...
Forum: General Discussions 27th May 2014, 01:10 PM
Replies: 7
Views: 374
Posted By madmclw
Re: Daughters surgery approaching & have a question.

Hi there :welcome2:

I had my surgery at the Stanmore when I was 14 too (though that was 6.5 years ago now!!)

Thought I would weigh in, because just like your daughter I too couldn't swallow...
Forum: General Discussions 6th May 2014, 09:04 PM
Replies: 21
Views: 699
Posted By madmclw
Re: Foot appt next Tuesday

:fingersx: for you Kara
Forum: General Discussions 19th April 2014, 11:31 AM
Replies: 4
Views: 300
Posted By madmclw
Re: Scoliosis Artwork

That's amazing! :D Thanks for sharing Andy :)
Forum: General Discussions 14th April 2014, 12:31 PM
Replies: 6
Views: 331
Posted By madmclw
Re: feeling overwhelmed

:welcome2:

I'm really sorry to hear people are being that way - unfortunately it can be all too common with illnesses and conditions that aren't so visible to other people :( I would like to echo...
Forum: General Discussions 18th March 2014, 09:21 PM
Replies: 1
Views: 202
Posted By madmclw
Re: Week 4 update

Don't make yourself feel guilty about any of this!!! As you said, no-one wants to see their child in pain but surgery is such a massive, massive decision and I doubt anyone wants to see their child...
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