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Search: Posts Made By: Rachie
Forum: Infantile, Juvenile and Congenital Scoliosis Room 8th October 2014, 02:16 PM
Replies: 3
Views: 244
Posted By Rachie
Re: New to group

Hi Meisha. My daughter had traditional growth rods which meant surgery every 6 months. She had 10 surgeries in all and was terrified before each one. Attacking the anaesthetist, etc and having to be...
Forum: General Discussions 8th October 2014, 02:01 PM
Replies: 13
Views: 335
Posted By Rachie
Re: Help! at my wits end and totally depressed

I'm so sorry for your suffering. You need to see someone else. You need to trust them and have confidence in them. We changed our daughter's consultant because of a bad bedside manner which freaked...
Forum: General Discussions 8th October 2014, 01:31 PM
Replies: 7
Views: 229
Posted By Rachie
Re: Fusion before stopped growing

Hi there. My daughter had growth rods from the age of 7 til 10. She was fused at 10 years 11 months because her spine had grown too stiff and had caused the growth rod to break! When they do spinal...
Forum: General Discussions 7th October 2014, 07:33 PM
Replies: 19
Views: 497
Posted By Rachie
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

Aaaaaaaaaaaaah! So happy! Just had this email below:

"We will be able to offer Maddy rest breaks during her examinations. This means that Maddy will complete examinations in a smaller room with...
Forum: General Discussions 27th September 2014, 02:00 PM
Replies: 19
Views: 497
Posted By Rachie
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

A quick update. Last Friday I emailed Maddy's year head with my concerns and asked what the process was in terms of assessing whether she is entitled to extra time in exams. He replied that the SENCO...
Forum: General Discussions 18th September 2014, 08:17 PM
Replies: 19
Views: 497
Posted By Rachie
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

I showed Maddy your post and she is ecstatic! She held a pen next to your photo images and her grip is exactly the same as yours! Her hand cramps when she tries to write properly. I am definitely...
Forum: General Discussions 18th September 2014, 04:47 AM
Replies: 19
Views: 497
Posted By Rachie
Re: Pen-grip / handwriting problems for those of us with joint hypermobility

Toni, Maddy writes vertically up the page with the paper turned 90 degrees from 'normal'! She hasn't complained about writing taking a long time but she prints rather than writing joined up. I will...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th August 2014, 12:32 PM
Replies: 4
Views: 457
Posted By Rachie
Re: Magnetic Rods - Delay in Treatment- Risks/Complications

Dear Lorraine,

I know the awfulness of having to wait. Scoliosis consumes your thoughts. I do understand. The reality is, even if you could see Mr Noordeen next week, it would be very unlikely he...
Forum: General Discussions 4th August 2014, 07:03 AM
Replies: 6
Views: 488
Posted By Rachie
Re: Mistake with pins

I'm so sorry to hear what you gave been through. Best wishes. X
Forum: Infantile, Juvenile and Congenital Scoliosis Room 4th August 2014, 06:53 AM
Replies: 4
Views: 457
Posted By Rachie
Re: Magnetic Rods - Delay in Treatment- Risks/Complications

Dear Lorraine,

If you are getting a second opinion Mr Noordeen is your man. My daughter used to be under him at GOSH. He is a lovely man, very easy to talk to, answers all your questions and (most...
Forum: General Discussions 5th July 2014, 10:09 PM
Replies: 36
Views: 1,080
Posted By Rachie
Re: Mr Tucker resigning from Stanmore! :-(

Gosh this is a surprise. Though I always thought how dumb it was that he had a clinic at Stanmore on the morning of the same day he had his afternoon clinic at GOSH. He was often stuck in traffic and...
Forum: General Discussions 11th May 2014, 12:23 PM
Replies: 2
Views: 201
Posted By Rachie
Three years on...hope for those facing surgery.

Hi everyone. Three years ago Maddy was about to go into hospital for halo traction then spinal fusion. We don't really think about scoliosis any more...yay! We have the normal teenage stresses not...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 1st May 2014, 10:26 PM
Replies: 4
Views: 422
Posted By Rachie
Forum: General Discussions 30th April 2014, 10:54 AM
Replies: 11
Views: 546
Posted By Rachie
Re: Scared Mom

You're welcome. That's what we're here for. You can always try searching on the internet for studies on the effectiveness of bracing if you want more information/statistics.
Forum: General Discussions 28th April 2014, 08:58 PM
Replies: 11
Views: 546
Posted By Rachie
Re: Scared Mom

Hi Scared Mom. I too was a scared mom for a long time! My daughter's scoliosis was seriously huge and she endured 10 surgeries from age 7 to age 10. She is now 3 years post fusion and living life to...
Forum: General Discussions 28th April 2014, 08:48 PM
Replies: 3
Views: 184
Posted By Rachie
Inspirational!

http://focos.squarespace.com/journal/2014/4/25/patient-transformations-their-incredible-stories.html
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th April 2014, 10:13 PM
Replies: 1
Views: 327
Posted By Rachie
Re: update

That sounds like good news. Thanks for the update. X
Forum: General Discussions 9th April 2014, 10:10 PM
Replies: 7
Views: 332
Posted By Rachie
Re: Rods at an early age

Hi Sarah Jane and welcome :-)
My daughter was diagnosed aged 4 and I now know she should have been cast or given growth rods asap as her curve was bad. But her consultant decided to watch and wait....
Forum: General Discussions 14th February 2014, 01:18 PM
Replies: 8
Views: 481
Posted By Rachie
Re: I had a 2nd opinion yesterday

Definitely. We weren't happy, got a second opinion and switched.
Forum: Infantile, Juvenile and Congenital Scoliosis Room 9th February 2014, 09:10 AM
Replies: 13
Views: 2,613
Posted By Rachie
Re: New and seeking info on Magnetic Growth Rods

Hi. I just want to add that GOSH is a great hospital to be at. The spinal team, together with that at RNOH Stanmore, is leading the way and has a large growth rod programme. Magnetic rods came too...
Forum: General Discussions 26th January 2014, 02:00 PM
Replies: 10
Views: 889
Posted By Rachie
Re: Ronnie going to spinal injuries unit at stamore at last e

It sounds like you are having a terrible time. I hope its some comfort to know he's in the best place to help him. Best wishes. X
Forum: General Discussions 20th January 2014, 08:39 PM
Replies: 10
Views: 889
Posted By Rachie
Re: Ronnie going to spinal injuries unit at stamore at last e

Sue. I hope you are coping with all this. How is Ron?
Forum: General Discussions 20th January 2014, 08:35 PM
Replies: 7
Views: 446
Posted By Rachie
Re: Message for AishaA

Hello Aisha. I'm so sorry things took a turn for the worse. It sounds like the consultant has a lot of questions to answer like why he didnt adequately pass on his patient to someone who could...
Forum: General Discussions 18th January 2014, 08:57 AM
Replies: 15
Views: 1,928
Posted By Rachie
Re: Feel down that there is nothing that can be done about rib hump :-(

Hi. Another member of the Mr Tucker fan club here! I thinks its always wise to get a second opinion and I know that Mr T relishes the more difficult cases. I also know that he will say if he cant...
Forum: Infantile, Juvenile and Congenital Scoliosis Room 24th December 2013, 04:07 PM
Replies: 9
Views: 847
Posted By Rachie
Re: Newbie with magnetic rods

Welcome. You have been through a lot with your little one. We only have a few children on here with magnetic growth rods so we would love to hear how she gets on.
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