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Aly123 29th May 2014 03:31 PM

Post magnetic rod surgery, how many lenghtenings?
Just want to ask about magnetic rod lengthenings and on average how many are you supposed to have per year. My daughter is 7 and had her operation last July, since then she has had a lengthening in January and is having another next month, which means twice a year. I know they only do a few mm but at this rate she will not grow much during the year! How do the doctors know when to lengthen these rods?? Any advice/comments appreciated! Also she had her op at BCH under Mr Marks and they have now transferred me to Manchester (because its closer for me)for future lengthenings, even though manchester have not yet done any magnetic rod ops.

titch 3rd June 2014 07:47 PM

Re: Post magnetic rod surgery, how many lenghtenings?
I don't know much about the magnetic rods, as they haven't been in use for all that long (and I've had a bit of a hiatus from the site), but I did want to say that although Manchester may not have done any rod insertion surgeries yet, I wouldn't see this as any reason for concern regarding them doing the lengthenings.

As far as the frequency goes, I wouldn't expect it to be less than twice a year, but I would guess that they'll need to see how much correction they're able to obtain before they consider whether to change how regularly they're doing it. Perhaps you could discuss with them what the procedure would be for you to contact them to see about bringing it forward (or at least getting a review) if you feel there's been a big change before the next lengthening is due? The other thought that occurs to me - which is just guesswork, so I don't know how likely it is - is that children tend to have their major growth spurts at relatively reliable ages, and between those times, growth is slower, so it may be that frequency of lengthening is partly based on that - this might be something else that you could ask the docs about.

GillyG 4th June 2014 06:22 PM

Re: Post magnetic rod surgery, how many lenghtenings?
I thought they were usually lengthened about every 3-4 months, but it probably depends on many factors. Worth asking questions of the team at Manchester though!

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