No Recent Activity
About magnumlady

Basic Information

Date of Birth
February 17, 1968 (46)
About magnumlady
Biography:
I'm a wife and mum, always taking photos.
Location:
Ireland
Interests:
photography
Scoliosis History

A few fields to allow you to share some of your scoliosis history if you want to.

What type of spinal curvature?:
Kyphosis
Diagnosis Details:
My son has kyphosis. It was around 90 degrees. After a long wait he had his surgery 15th December 2009.
Following a check up on Feb. 19th 2010 we found out that his curve is progressing upwards and he may need surgery to extend the rods to T1.
Another check up on May 21st. Jono now has 'junctional kyphosis' where there is a gap above the original fusion, at the moment they will keep monitoring him.

Jono got to tell his story in the Irish Daily Mail and on TV3 because of the long wait he had for surgery. The tv show is on youtube:
http://www.youtube.com/watch?v=8bJM-0oQzqw
http://www.youtube.com/watch?v=w4ES4slGJCc&feature=related

Jono also has asperger's syndrome.
What curve pattern?:
Other kyphosis with scoliosis
Had surgery?:
Posterior surgery
Surgery Details:
15th Dec. 2009 Fused from T4-L1
Worn a brace?:
Other
Bracing Details:
He was given an awful brace, which was very uncomfortable for him (he also has Asperger's syndrome), when we got seen by the specialist in Dublin they said his curve was too bad to have been given the brace.

Signature


Statistics


Total Posts
Total Posts
704
Posts Per Day
0.04
General Information
Last Activity
27th November 2012 09:10 PM
Join Date
1st January 1970
Referrals
1

4 Friends

  1. daniel7 daniel7 is offline

    OrangeD

    daniel7
  2. greenhouse12 greenhouse12 is offline

    RedL

    greenhouse12
  3. juliemc juliemc is offline

    Senior Member

    juliemc
  4. mark mark is offline

    Mod with a rod (or two)

    mark
Showing Friends 1 to 4 of 4