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brmorris
15th April 2010, 10:49 PM
We are living in Edmonton, AB, CAN and have just started this journey of scoliosis with our 7 year old daughter. I have done a LOT of reading and research and through lots of prayers and people, have found many different people and disciplines in Edmonton who are working with us. I wanted to let anyone know that if they want any of these contacts to let me know. I would love to pass them along! We are working with a chiropractor who has the largest pediatric office in Alberta, a certified Rolfer and Massage Therapist, a physiotherapist, who has worked with many children and breath support, and is getting information on the Schroth method, a Pilates instructor who is setting up a home program for us, and a certified CranioSacral Massage Therapist. None have worked with anyone as young as Kaeli, but they all have worked with people with scoliosis, and have had some amazing results!!

I'm really excited! They all know about each other. I have told them that I believe in a team approach and that it will take everyone. The other key element I told them is that they had to believe they could make a difference! They are all excited and so are we! She is still going to wear her brace full time and we are still (definitely) seeing the scoliosis specialist regularly, however, I really believe this team can make a real difference for her! I'm keeping a on going journal that I write in at every appointment and pass on the information to the other members of our "team".

So... if anyone wants any of these contacts... let me know!
Rachelle

Joy
18th April 2010, 05:10 PM
Hi,

I'm in Edmonton. PM me if you want my phone number. I'm moving to Toronto in two weeks, but I'll be back in Edmonton in January.

I had surgery when I was 13 (I'm 21 now) so I'm afraid I won't be much help with non-surgical treatment info, but it sounds like you have a good team. I'm glad you're keeping your daughter under a specialist as well - they can be really helpful. Which specialist do you see? Dr. Mahood did my surgery but all of them at the Glenrose/Stollery are really good.

Trish
7th December 2010, 04:57 AM
I am in edmonton alberta and my specialist is Dr. Mahood. I am 47 years old and have scoliosis that was never treated as a child and have a curve of 49 degrees. I have been thinking of the Schroth method and BRMORRIS you were saying that you have a physiotherapist for your daughter who is looking into the Schroth method. Who are you seeing for physiotherapy and did the therapist learn anything.

I know that there is a clinical trial starting for the Schroth method here in Edmonton and my daughter is on the list and hopefully she get chosen but the therapist who will be doing the therapy has indicated that it will be years before it is approved and even longer for an adult clinical trial to take place.

Also, who have you seen for the Pilates because I would also like to get a home program for myself and my daughter.

I would appreciate your response.

thanks ph

daresands
8th February 2011, 08:04 PM
Dear Rachelle, Joy, and Trish,

We also live in Edmonton. I have a daughter with a 50 degree upper thoracic "c" curve (right side). She is 14 and began a growth spurt about a year ago. I would like to explore forms of exercise (for example, torso rotation with resistance)and Rolfing before choosing an operation. Imagination Kat refers to some physiotherapists who specialize in scoliosis on Vancouver Island -- do you know anyone in Edmonton who similarly does? Our daughter is quite active, and dances (in the same folkdance troupe that I do, rehearsing at least weekly). She has intermittent pain which she rates 2-4 out of 10. In any case, given the next appointment and wait to surgery, it could likely be 8 months before an operation could happen, should we want it (which she seems to). I am less so inclined, and the waiting period gives us a chance to try other means. Our doctor/surgeon is Douglas Hedden and the nurse practitioner (pediatric scoliosis) is Sarah Southon, both at Stollery Children's Hospital. This is new ground for us.

We welcome your thoughts, suggestions, and referrals,

Dare

Concerned Father

Chrishu
13th February 2011, 02:07 AM
Would you be able to give me more information about the clinical trial in edmonton. I am suffering from breathing impairment from a curve and thoracic rotation. I am very interested in this method. I tried to find the trial on the internet, but have had no luck. Any further information would be greatly appreciated :)

daresands
13th February 2011, 05:44 PM
For information, contact the Stollery Children's Hospital, scoliosis clinic, and in particular nurse practitioner (pediatric scoliosis) Sarah Southon would be a good contact to start with. I was told that the clinical trial is for curvatures between 20 and 40.

My daughter is somewhat above that. So we are starting with a set of physical therapies and Rolfing in consultation with the doctor, nurse, and a physical therapist.

Best of luck!

Dare

Joy
14th February 2011, 01:07 AM
I don't know of any physiotherapists to recommend. I only had physio post-op. Dr Hedden has a very good reputation, so if your daughter does need surgery she'll be in very capable hands. I waited 11 months for surgery, but that was years ago and I'm not sure how the list is now.

If your daughter would like to meet up or just talk on the phone or email, please PM me and we can make arrangements.