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tonibunny
2nd March 2010, 01:44 PM
Hi everyone,

Very often, we have people coming to SSO who are worried that their life will be terribly limited after they've had a spinal fusion. I know we have a lot of very fit and active people here on the forum, so I thought I'd start this thread to show what people CAN do despite having fused spines :) Please join in if you'd like to! All info is optional, so it doesn't matter if you don't want to put your age or if you don't know the sort of metalwork you have. Also, please don't use this thread to post what you cannot do; this thread is to focus solely on what you can do.

I'll start!

My age: 34
My fusion length: T1-L4
My instrumentation: Harrington Rod T1-L3, Zielke L1-L3, Pedicle screws L3-L4
Things I enjoy doing: long distance cycle rides, climbing mountains, scrambling around under hedges and climbing over gates and stiles looking for geocaches. In my early 20s I went clubbing three times a week. I can also do sit-ups despite my long fusion - you tend to pull using your abdominal muscles rather than bending your back, which is better for you anyway, and it helps if you use a decline bench.

titch
2nd March 2010, 02:20 PM
I'm quite limited in what I can do now, but that's not really to do with the fact I've got a fusion - when I eventually get as far as a revision surgery which fuses me to the sacrum, I expect to be back to being considerably more active and able again.

My original surgery was:
Fusion length: T10-L2
Instrumentation: anterior rod T12-L2, Hartshill rectangle T10-L2

After recovering from this, I used to routinely walk up to 100 miles per week (and yes, I do mean 100!), clambered all over cliffs and up hills and over rock formations round Cornwall, and took up body building. I also played quite a bit of badminton when I had the chance.

After my revision surgery which helped to re-balance my spine (due to an imbalance which does not occur with modern surgeries done by properly trained specialists), I was able to return to body building for a while. I've got issues now, but that's still stuff related to the original surgery which was done by a non-specialist rather than being related to being fused in general.

Rodsrme
2nd March 2010, 04:37 PM
2 years post surgery I am finally getting a life back. ;)


My fusion length: T5 - T11
My instrumentation: 2 stainless steel rods 7 inches long, 3 hooks, and 9 pedicle screws.

I am doing, hiking, pleasure horseback riding, competing horseback riding (barrel racing, reining/cutting). Swimming (laps... latest time was 18 seconds for one long lap!) I do all kinds of stuff.. pretty much like normal. :D

BeckyH
2nd March 2010, 04:52 PM
fusion length: T11-L3
instrumentation: synergy i think? not sure to be honest.
age: almost 23, had surgery aged 18

activities: horse riding (including jumping), swimming, skiing (went for the first time 18 months after surgery) and my job/lifestyle dictates that i have to be on my feet for 12+ hours at a time, doing all sorts of lifting and stand-building because i'm an event manager. i do fun stuff sometimes too :D

mark
2nd March 2010, 04:59 PM
Age 39

Posterior / anterior release for Scueremanns kyphosis

Operated on at the age of 39, now 3 months post op (just over)

Fused T1 to L4 2 titanium rods, don't know how may pedicle screws but i think its a lot

Things i am now doing - Taking the dog out for a walk, driving, shopping, itching to get back into the mountains cause i miss my walking in the mountains

Dancerr..
2nd March 2010, 06:38 PM
Age: 15
Fused: T5-L1

Activities: There are plenty of things i like doing, erm.. swimming, dancing, walking, bit of gymnastics, shopping - dragging mum round the shops :p basically back to normal :)

461992
3rd March 2010, 09:22 PM
Age: 15
Fused: T3-L5, 1 year 2 months post op

Well, I can paint my toe-nails! Very important! I can shop, walk, swim. I can't really run, I was always slow though!

Jen
3rd March 2010, 10:10 PM
I went snorkelling at 6 months and at about 8-9 months I started back kayaking. No problems. Swimming on my front I find awkward but swimming on my back is the same as pre-op.

Fast walking, gardening, no problem. Have been told no running or lifting heavy loads that might put stress on the vertebra above my fusion.

BeckyH
3rd March 2010, 10:13 PM
Age: 15
Fused: T3-L5, 1 year 2 months post op

Well, I can paint my toe-nails! Very important! I can shop, walk, swim. I can't really run, I was always slow though!

i forgot toenail painting! that's one of those basic things which i totally take for granted but yes, i too can still touch my toes, cut my nails etc. people are always surprised by that.

tonibunny
3rd March 2010, 10:34 PM
Jen! Kayaking is something I'd love to try, I have friends who are instructors. I worried that I might have trouble flipping myself up again when I capsized though. Are you still able to do that despite being fused to the pelvis?

Joy
4th March 2010, 02:59 AM
Age: 20, 7 years post-op
Instrumentation: CD
Fusion: T2-L1
Activities: Since surgery, I have show-jumped, sailed, played soccer, run cross-country, travelled, worked outdoors, waitressed, and lots of other things. I can do pretty much whatever I want. I can also bend over and touch my toes.

Jen
4th March 2010, 03:52 AM
Jen! Kayaking is something I'd love to try, I have friends who are instructors. I worried that I might have trouble flipping myself up again when I capsized though. Are you still able to do that despite being fused to the pelvis?

Tonibunny, so far I have not capsized. I did prior to surgery and was able to flip the kayak back up and clamber in. I am fairly sure I would not be able to do that now. My partner insists I wear a life jacket now and we only use the double kayak, so if we flip, I head for shore, while he takes care of the kayak. We don't sea-kayak, only rivers and lakes, for which we're spoilt for choice, around here. It's not difficult to kayak, and being fused seems to have made no difference. I'd definitely recommend it. It's a great pastime!

Rodsrme
4th March 2010, 04:26 AM
Age: 20, 7 years post-op
Instrumentation: CD
Fusion: T2-L1
Activities: Since surgery, I have show-jumped, sailed, played soccer, run cross-country, travelled, worked outdoors, waitressed, and lots of other things. I can do pretty much whatever I want. I can also bend over and touch my toes.

YOU CAN BEND AND TOUCH YOUR TOES!?!?! You have more fusion than me and I can't! Well I can if I bend at the knee! haha ;)

Running.. ya forgot running.. I can do that.
Swimming is completely the same.. though I find I can't float anymore.. I sink. hahhaa :D

Sparkles
4th March 2010, 05:56 AM
Hiya i dont mind telling my age its 38 oh it doesnt sound so bad if i say it quickly!:D any way i have a fused spine obviously or i wouldnt be on this forum, i had mine done in 19.86 at the age of 14 and because of problems with a few vertabraes (not sure if i spelt right!)i have been fused in an "S" shape but before surgery i was a "Z"shape,

i have a Harrington rod fitted too and was told i would be left with a very stiff back for life,and yes its stiff but i cope as many of us do we just adapt,as for things i can do i can just about manage a short ride on my bike not far but its an achievment i suppose,

walk for longer than i used to as i feel the more walking the easier it gets,dance aswell if no twisting oh did i mention put my own footwear on! its a big deal to me that i have learnt to manage it!,

so having our spine fused doesnt mean the end for us it means a start of a different life with some limits.

magnumlady
4th March 2010, 10:34 AM
What great posts. I will have to get Jono to read this :D

Cheski
4th March 2010, 11:58 AM
. No problems. Swimming on my front I find awkward but swimming on my back is the same as pre-op. .

Before my Op, my legs used to sink quite a lot.. even now i get a buz from swimming feeling my feet on the top of the water :D

Cheski
4th March 2010, 12:03 PM
Jen! Kayaking is something I'd love to try

What about Hobie 'kayaking' as an alternative...
http://www.hobiekayaks.co.uk/id2.html

Best for flatter water admittidly but the speed still gives you quite a thrill ;) (I may have let my friend do most the work though hehe) and there is a spot to put your drink etc, and leaves your hands free to take photo's, have a drink...

tonibunny
4th March 2010, 12:05 PM
That looks like wicked fun Cheski! :D I actually think I might be OK flipping a kayak over, despite being fused to L4. I'm hypermobile and still have a lot of movement in my remaining lumbar spine and hips. I'll definitely ask my friends to take me out sometime, I'm confident they won't let me drown :)

cherrybird
4th March 2010, 04:55 PM
I still Ice Skate, have been Banger Racing (not the ideal thing to do with spinal problems), ride roller coasters, walk the dogs, carry a young child, and pretty much everything I could before surgery.

Cheski
4th March 2010, 05:16 PM
Carrying children is one thing that really knocks me :( Although it doesn't catch me till the next day, so at least it doesnt ruin the day ;)

GloomCookie
4th March 2010, 07:16 PM
What a brilliant idea :D

My age: 28
My fusion length: T10 - L3
Things I love to do: yoga, kickboxing, pole and ballroom/Latin American dancing, T'ai Chi, cardio and weights at the gym, walking/hiking, pretty much anything I fancy I can manage with my fusion actually! I'm fitter, happier and probably more flexible now than I was before surgery :)

greenhouse12
4th March 2010, 07:38 PM
This thread was a very good idea,i do sometimes get down when i find some things (mobility wise) a struggle,but i do get there eventually the majority of the time!

Age: 16
Instrumentated and fusion T2-L3,with titanium rods and screws,and im about 5-6 months post op! <<(OMG!)

Things i've done since surgery:
Swimming,pyshiotherapy,yoga,hip-hop dancing,climbed up nearly a whole mountain in the snow(!),shopping,apperently i have excellent flexation at the hips at 90 degrees (my surgeons words!)! And i try do p:e,but its really hard to run and other bits and bobs,but i can do tennis,bagminteon,netball and so on ..
Also i did work experience in a montesorri and had to lift a few kids of about 3-4 years old!
:)

Quick Question:
Regarding swimming does anyone have difficulty with front stroke,because i find it really uncomfortable and my arms sorta lock when i attempt it?!!?

cherrybird
5th March 2010, 11:13 AM
oh yeah, almost forgot I climbed up a rock climbing wall on holiday, and also had a try at snow boarding, and have a near perfect golf swing according to the wii fit (although I have never played golf in my life).
The thing is, if you really want to do something, you will find a way of adapting the activity to suit you no matter what level of mobility you have.

madmum
15th March 2010, 02:08 PM
My 16 year old son had anterior release and posterior fusion with rod and screws from T2 to L3 at Stanmore last August. This thread has greatly encouraged me in realising that he will be able to do loads in the future. He desperately wants to go climbing and skiing again. This is a great site - so glad I found it.

madmclw
16th March 2010, 01:38 PM
My age: 16 (2 years post op)
My fusion length: T3 - L3
Instrumentation: 2 rods, 15 screws [titanium]
Things I have done: I have also been kyaking, in a conventional 1 man kyak, and also in the kyaks Cheski posted a picture of (in Namibia, no less!) Also whilst in Namibia, I went quad biking in the desert, and sandboarding (lie down), which basically involved hurtling down sanddunes at 80km/h on a piece of hardboard :lol2: All...less than a year post op. That's the most adventurous of my activities, anyway :D

Mustang Sal
16th March 2010, 08:36 PM
Maddy, you totally rock! :rox:

madmclw
16th March 2010, 08:50 PM
Thanks Sal! I have a video of it somewhere :D

GillyG
16th March 2010, 10:15 PM
Get it up on You Tube Maddy, then we can all watch it :D

madmclw
17th March 2010, 12:17 AM
http://www.youtube.com/watch?v=7e2jHwUg52Q

Here ye are then :D You can tell which one is me by the awkward way I had to board :lol2:

Mustang Sal
17th March 2010, 12:51 AM
Maddy, you crazy little thing you! Does look like you all had wicked fun though :D

You really are a great advert for scoliosis surgery though - it certainly hasn't held you back :)

Rodsrme
17th March 2010, 04:02 PM
Maddy that looks like sooo much fun! :D

Rodsrme
17th March 2010, 04:20 PM
Here is the crazy stuff I do. lol After surgery...

http://www.youtube.com/watch?v=S_vByR8I-kU

http://www.youtube.com/watch?v=jRnBnNzcL7w&feature=related

http://www.youtube.com/watch?v=PMPlUUmByIo

*note.. this isn't me in any of them.. but I do the same exact thing. ;)

GillyG
17th March 2010, 05:21 PM
Maddy, that looks AWESOME - I couldn't tell which one was you though?

Rodsrme
17th March 2010, 08:59 PM
Maddy, that looks AWESOME - I couldn't tell which one was you though?

Same here. lol ;)

madmclw
17th March 2010, 11:08 PM
I'm the one with my legs splayed because it was the only way I could lean up enough to pull the board up :lol2:

Just me
18th March 2010, 12:28 PM
Hi All. New here. The only things I can not do are only in my head, I was Diagnosed at the age 6-7 and had my operation when I was 13. I can remember still being in my plaster cast and going off road motor biking with my older brother. I then went on to doing banger racing in my twenties, and still enjoy Karting at the age of 39. I have won a few races so not only do I really enjoy it, I am also very competitive, however because of the shape of my back, boy do I suffer with bruising and blisters the next day.
Things I canít doÖÖ. Feel comfortable around strangers, I am always conscious of my hump (hate that word ) I wish I could enjoy sitting on the beach on summer holidays. I love winter because jumpers and coats hide my back!!!

Amazed Jean
18th March 2010, 09:38 PM
Just thought I would pop on and say hello and Welcome to SSO.

macky
19th March 2010, 08:26 AM
Well I am 58, Oh Boy, cant believe it anyway and I can do absolutely anything I want. Because I am in pain I know it is going to hurt afterwards but that doesnt stop me. I still garden, touch my toes, walk the dog, run a little, can't vacuum, now isn't that a shame, swim, tai chi, the list is endless. Love all these answers.


Lorraine.

Collette
19th March 2010, 12:25 PM
I love this thread, it's made me feel so positive :):):)

Abbi
22nd March 2010, 09:02 PM
I've been quite active since my surgery (almost 5 years ago!!)
Fused: T1-L4
Instrumentation: 2 titanium rods, 16 screws and 5 hooks
Age: 23

Since surgery I have went abseilling, scuba diving, running, swimming, rock diving, cycling, rock and mountain climbing, go karting, body boarding, bowling, played tennis, badminton, gone to the gym (and done weights!), sleighing, parasailing, and rowing! :D

bronteamy
22nd March 2010, 09:16 PM
Fused: T2-L4
Instrumentation: 2 titanium rods, 22 screws
Age: 14

Since surgery three & a bit months ago i have cycled, played netball, swam, danced, played badmiton & done running x

Sam_M
22nd March 2010, 09:55 PM
Hi all.
Well I've not had an op yet. But here's something I've found that I can do at my pace & Sitting Down! (I find standing / walking a major issue)

http://www.facebook.com/?ref=logo#!/pages/Hants-CKD/149114966255?ref=ts (http://www.facebook.com/?ref=logo#%21/pages/Hants-CKD/149114966255?ref=ts)

If anyone wants any more info sned me an e-mail / message.
Sam x

mark
24th March 2010, 02:14 AM
i drove a ninety mile round trip yesterday, not bad for someone who is just shy of 3 and a half months post op

lyssie
24th March 2010, 09:49 AM
Alyssie Stewart, 21 years young! (lol)
Thoraco-lumbar anterior spinal fusion, T11-L3
1 rod and 5 screws - left sided,
And I can bop! :D :) :D

GillyG
24th March 2010, 05:29 PM
i drove a ninety mile round trip yesterday, not bad for someone who is just shy of 3 and a half months post op

Wow Mark, you've come such a long way :D

mark
24th March 2010, 10:45 PM
Wow Mark, you've come such a long way :D

Went a long way too Gilly lol

Round The Twist
25th March 2010, 11:22 AM
Hi,
I had my first surgery aged 15 with a harrington rod, fused T2-L1/2 (not sure), no-one else has mentioned this so.....I gave birth to two children when I was 22 and the 24 years old, so post-surgery, didn't need any extra help ie cesarean (sp?), also have made a bit of a career out of Roller-coasters over the years.
Had a 2nd surgery in 2006, still fused the same, 2 rods now plus screws etc am now 34 years old, I still go on Rollercoasters, ariel slides and other playground stuff with my kids, can cycle (but am lazy cos I have a car lol), can run ifI have to lol can do all aspects of housework, swim - but better on my back post-surgery, not really any different :D

GillyG
25th March 2010, 01:07 PM
Hey, not heard from you for aaaaages, great to hear how well you're doing :D

tonibunny
6th April 2010, 01:15 PM
Keep them coming everyone, let us know what you've been doing since your spinal op :) I know people get really worried that their life will be very limited if they have the surgery, so let's reassure them!

bara
6th April 2010, 05:04 PM
Walking (especially hillwalking, have 'bagged' a few Munros and Corbetts), cycling (and motorcycling in my yournger days), dancing, had 2 children - neither by caesarian - 28 and 25 this year, gardening, DIY, housework (when I can be bothered). Driving - my #1 son and I drove to the Czech Republic and back 2 years ago.

I am 54 and this is my 40th year post fusion - the only thing I find it difficult to do is ironing - this has probably nothing at all to do with the fusion!! Also recently had to give up wearing killer heels. Never been much into sport since school - again, I don't think that's a scoliosis related problem!
;)
B

mark
7th April 2010, 05:43 AM
I have started taking Bruno out again, Bruno's a nuts one year old flat coated retriever who pulls like mad until you let him of his lead

I' have only been out of the hospital 3 and half months following my surgery for scheuermanns kyphosis

The dogs mental and his dads not far behind him lol

lilliebeth
8th April 2010, 07:14 PM
Hi All,
I am a newbie to this forum, I am 17 years post op, Spinal fusion in 1993, similar to above I don't limit myself because of the op... I love the gym, running, cycling, playing tag rugby.. I do pilates once a week which is great for the back. I have a fusion on my upper back and not in my lumbar area so can do most moves but do find it difficult to do sit ups. but I wouldn't let it stop me doing anything.. bunjee jumping was the only activity i was advised not to do!

Does anyone suffer post op pain many years on? I find my back acts up when the seasons change!! that is mainly the only time though..

lyssie
8th April 2010, 07:34 PM
When I'm not in tooooo much pain pain I can dance lightly and actually have fun, for instance I was in a sari at my cousins wedding in the US dancing along to some Indian songs and it was so much fun as I had dosed myself up good and proper! lol... xx p.s. I'm fused T11-L3 :)

tonibunny
27th April 2010, 03:09 PM
I've been given permission to post this here, it was posted by a lady on Facebook :)

It's a video of her 13 year old daughter dancing four months after her spinal fusion. She's brilliant! :D

Dance performance, 4 months post-op (http://www.youtube.com/watch?v=sOLWRif5STs)

magnumlady
28th April 2010, 11:19 AM
I've been given permission to post this here, it was posted by a lady on Facebook :)

It's a video of her 13 year old daughter dancing four months after her spinal fusion. She's brilliant! :D

Dance performance, 4 months post-op (http://www.youtube.com/watch?v=sOLWRif5STs)

Wow how amazing.

crazylu
28th April 2010, 05:48 PM
That is an amazing video and an amazing young lady! Toni, if you can somehow thank her Mum for posting that, and let her know how much it helps anyone who is facing surgery for themselves or their child. Again just amazing. Thanks for posting this Toni.

magnumlady
28th April 2010, 06:16 PM
Jono walked a mountain last week and this week I've started doing the couch to 5k and he's decided to join me.....I hope he's OK to do that.

GillyG
28th April 2010, 07:18 PM
Oh my, what a beautiful dancer :D Please thank her mum for allowing us to see this Toni, she truly is an inspiration :)

greenhouse12
28th April 2010, 09:02 PM
Jono walked a mountain last week and this week I've started doing the couch to 5k and he's decided to join me.....I hope he's OK to do that.

Walking is fantastic,although i do find walking up hill a bit of a stuggle as gravity changes and it does put extra pressure on joints,so it would be normal if his back ached!

"OMG THAT VIDEO IS AMAZING"!! She's so graceful you wouldn't even know!!

I played baseball on monday!!! I was so proud of myself,lol.
I nearly got a home run ... but got tipped!!! :(:D

mark
29th April 2010, 12:19 AM
You young uns put us oldies to shame lol

Mustang Sal
29th April 2010, 12:33 AM
Oh my gosh, she's amazing! I got tired just watching her!

Thanks for sharing this Toni, it's so lovely to see youngsters like her getting on and doing the things they love :)

wzd9ff
29th April 2010, 12:47 AM
This is Kendall's mom....... We really wanted to share the video to give other dancers hope..... we looked everywhere to SEE what a dancer could do post-op and could not find anything (which made us nervous). Kendall wore a Boston Brace for 20 hrs/day for 3 years..... her curves still progressed and surgery was required. For the dancers out there.... she does do ballet, pointe, tap, jazz, lyrical ....... Can she do 100% - no, but she can do alot and continues to work on building those new muscles she needs to use to compensate for what she lost, she is blessed with a wonderful teacher and fellow dancers......Did she get sore? - absolutely, but it gets better. Does she still love dance? YES! Being a dancer was an advantage in recovery.... she was a strong athlete..... and some things (like breathing and balancing) are actually getting easier than before surgery.

mark
29th April 2010, 12:52 AM
Thats really inspirational, i am sure it will alay a lot of our younger members who have surgery up and coming, thanks a lot for allowing toni to post it

Welcome to the site, i hope you enjoy this little community we are a bunch of like minded people who just want to help each other get through life.

Take care

Mark

crazylu
29th April 2010, 04:13 PM
Thanks again to Kendall's Mum for letting Toni post that video. It is just amazing. Thanks to everyone for posting what they are able to do after surgery. It gives hope to all of us, instead of just the terrible fear of not knowing what will happen after surgery. You are all so inspirational. Lu

GillyG
30th April 2010, 12:21 AM
Welcome Kendall's mum :welcome:

I'm so pleased you let us see your amazing daughter's video - what an inspiration she is, you must be so proud of her :)

Dancerr..
1st May 2010, 05:30 PM
I've been given permission to post this here, it was posted by a lady on Facebook :)

It's a video of her 13 year old daughter dancing four months after her spinal fusion. She's brilliant! :D

Dance performance, 4 months post-op (http://www.youtube.com/watch?v=sOLWRif5STs)




WOWWWWW, she's fabb :D

mark
2nd May 2010, 06:04 PM
Lucy wants me to jump out of the back of the aircraft with her, that was the deal wasn't it Lucy

Angela
5th May 2010, 10:37 AM
Just wondered if there is anyone out there who plays guitar and if so did you find it more difficult post op?
My daughter has recently taken it up and I thought it might be a good distraction for her if she has to give up horse riding for a while but I've noticed you do have to bend over the guitar quite a bit whilst playing.

tonibunny
5th May 2010, 10:42 AM
You don't *have* to bend over the guitar, some people just do :) I play a bit and have never had any problems with regard to that. More of a problem is if you play a heavy guitar with a strap which pulls on your neck/shoulder - that's the sort of thing to be careful of.

Angela
5th May 2010, 10:46 AM
Blimey, that was quick, good morning Toni. That's good to hear. I think my daughter bends over the guitar as she's still looking to see where to put her fingers.

GillyG
6th May 2010, 12:52 AM
I think my daughter bends over the guitar as she's still looking to see where to put her fingers.

Yes, I remember my son doing this at first. He's much more confident now though and rarely watches his fingers at all - show off :p

mark
6th May 2010, 01:54 PM
Just wondered if there is anyone out there who plays guitar and if so did you find it more difficult post op?
My daughter has recently taken it up and I thought it might be a good distraction for her if she has to give up horse riding for a while but I've noticed you do have to bend over the guitar quite a bit whilst playing.


I'm fused pretty much my whole spine

T1 to L3 or 4

I have no trouble bending over my guitar

My surgery was last November

Angela
6th May 2010, 02:05 PM
Hi Mark, how soon post op were you comfortable enough to sit and play guitar. At the moment she is learning on a classical but we thought she may find an electric more comfortable as it's flatter and lighter.

mark
6th May 2010, 02:13 PM
It was 3 months post op before i picked up anything that didn't weigh much more than a knife and fork


I spent a lot longer in hospital than most do these days all told i was in for a week and a bit shorter than 2 months

I was very weak when i finally got out and i had lost 2 stone in weight (i only weighed 10 stone to start with lol)

I had 3 spells in hospital which is an another long story, like i say my surgery was not really the typical have op, hospital for a fortnight and start recovery

I hope that helps

Mark

Angela
6th May 2010, 03:24 PM
Ah, yes sorry Mark I wasn't thinking. I have been following your recovery so should have realised. Hope things are improving now.

mark
6th May 2010, 04:23 PM
Hi Angela, no probs, no need to apologise, thanks for following my recovery.

I'm on the mend, finally i think i have turned a corner, i am back to work phased return

Still having a lot of neck pain, and i am still being monitored every 2 months by my surgeon but i feel loads stronger and i don't regret anything

Thanks again for asking

Take care

Mark

Ps i don't think you are going to have any problems with the guitar. I hope she enjoys playing

Abbi
11th May 2010, 01:06 AM
I just thought I'd add that I went to Alton Towers, this past weekend. I went on all the 'major' rides. Oblivion, Air, Nemisis, Thirteen, and Rita. Oblivion pulls about 4.5 G's. I survived! :D

mark
11th May 2010, 05:27 PM
I just thought I'd add that I went to Alton Towers, this past weekend. I went on all the 'major' rides. Oblivion, Air, Nemisis, Thirteen, and Rita. Oblivion pulls about 4.5 G's. I survived! :D

Bad Abbi lol, only kidding, i am just pleased you are getting your life back and doing normal stuff

Great to hear from you too Abbi

I will never forget you and Gilly for coming to see me in the hospital it meant so much

wzd9ff
28th June 2010, 02:06 AM
Update on Kendall the dancer with the fused spine....

At 7 months she is now doing aerial cartwheels...... and she has qualified for a National Dance competition in the US with her piece I posted......

We are very lucky to live in an era where this surgery has progressed to a point where children can lead very active lives so quickly!

tonibunny
28th June 2010, 06:56 AM
That's so wonderful!! GO KENDALL!!!!! Please let us know how she gets on :D

pink_candy_swirl
28th June 2010, 10:52 AM
Im fused T12-L2 with 1 rod and 3 screws (and a lot of rotation). But can't do pretty much anything!

Can do:
Roller coasters, horse riding up mountains, climb and walk cliffs, clubbing (in heels), walking, work with children, shopping, waterparks, trampolines, ride a bike, learn to drive, alsorts!

Only things I can't do:
Sit ups, lift heavy things or bend forward when lifting (which you shouldn't do with a normal spine you should bend from knees), speed boats - especially abroad (surgeons advice, he did say I could if I really wanted to but he cringes at the thought, it puts too much pressure on the unfused spine when your bounicing up and down), oh and I can't twist to the left lol!

Angela
22nd July 2010, 11:38 AM
Just come back from a weeks holiday by the sea and was just wondering if the following things we did were still possible (or possible but more difficult)with a fused spine?
1. Rowing a boat.
2. Water slides
3. Surfing

tonibunny
22nd July 2010, 11:52 AM
I've done the first two with no problems Angela :D I didn't even think about my back, I've been on water slides and have rowed boats around the Serpentine countless times.

I wouldn't be worried about surfing either, but I've never had the inclination to try it.

redangel21
22nd July 2010, 05:59 PM
Hi everyone,

Very often, we have people coming to SSO who are worried that their life will be terribly limited after they've had a spinal fusion. I know we have a lot of very fit and active people here on the forum, so I thought I'd start this thread to show what people CAN do despite having fused spines :) Please join in if you'd like to! All info is optional, so it doesn't matter if you don't want to put your age or if you don't know the sort of metalwork you have.

I'll start!

My age: 34
My fusion length: T1-L4
My instrumentation: Harrington Rod T1-L3, Zielke L1-L3, Pedicle screws L3-L4
Things I enjoy doing: long distance cycle rides, climbing mountains, scrambling around under hedges and climbing over gates and stiles looking for geocaches. In my early 20s I went clubbing three times a week. I can also do sit-ups despite my long fusion - you tend to pull using your abdominal muscles rather than bending your back, which is better for you anyway, and it helps if you use a decline bench.

Hi,

I like this Idea, I havent had the sergury and hopefully wont....I just really would like to know more about what you can do with the rod.

About me
-40 degree curve
-Wearing boston brace

bronteamy
22nd July 2010, 09:12 PM
Fused: T2-L4
Instrumentation: 2 titanium rods, 22 screws
Age: 14

Since surgery three & a bit months ago i have cycled, played netball, swam, danced, played badmiton & done running x



now im back competing in cheerleading been on a bouncy castle & a jousting bouncy castle

Dancerr..
22nd July 2010, 10:09 PM
now im back competing in cheerleading been on a bouncy castle & a jousting bouncy castle


are you part of a cheerleading squad bronte? (:

mark
22nd July 2010, 11:53 PM
I hope to start running again in the next couple of months, probably leave it until November time, then i will be 12 months post op

Had another check up on tuesday, they are still worried a little about the loose screw so i'm back for another visit in 2 months but it appears not to have moved much if at all, so, once i hit 12 months and am more or less fully fused they are keeping a tight reign on what i can and can't do

So over all, things are on the up for me, wee hee, i ain't counting too many chickens but i o have a big grin on my face for the first time in a long while

GillyG
22nd July 2010, 11:56 PM
Mark, that's great news, so glad to hear you sounding so positive now, you've come such a long way :D

mark
23rd July 2010, 12:00 AM
Thanks Gilly

It has been a bit of roller coaster hasn't it

I suppose when i get a few years down the line i will be able to laugh about it all, not now though, its still a little raw lol

redangel21
23rd July 2010, 12:54 AM
Age: 20, 7 years post-op
Instrumentation: CD
Fusion: T2-L1
Activities: Since surgery, I have show-jumped, sailed, played soccer, run cross-country, travelled, worked outdoors, waitressed, and lots of other things. I can do pretty much whatever I want. I can also bend over and touch my toes.


Wow thats great for you!

I havent had the sergury...yet and might not and I cant even touch my toes!! :)

bronteamy
23rd July 2010, 08:17 PM
are you part of a cheerleading squad bronte? (:

yeah im on the school squad AG Cats were 17 times rossendale champions there has only been 17 comps & 4th place holders in our category in the north west nationals run by the UK cheerleading association

Bonnie
27th July 2010, 03:27 PM
My age: almost 25
Spine fused at 17 with 2 rods on part of my Thoracic spine.

Can do:
A lot... swim, dance, skate, cycle, play badminton.
To be honest I don't do them as much as I used to before my spine got fused, but getting fused wasn't the reason... aging naturally made me lazier ;)

Can't do:
Lift heavy things. On the rare occasions I have to, I use one of my legs to help my arms support the weight.

Did after op, but never did before op:
Being intimate (And I didn't start until I was 21). Before op and shortly after op, I have always felt funny about my body (therefore unwilling to go into relationships). But a few years after my back got corrected, I felt sexier and more confident than ever before.

KaraNicole1992
7th October 2010, 05:08 AM
My age: 18
My fusion length: T4-L2
My instrumentation: fugey rods hooks Pedicle screws
right now i can swim, read, bike, walk

sins
7th October 2010, 12:52 PM
I think I'm officially eligible to be classed as a fossil by now at 43.Fused to L1.
My surgery was done in 1983 when you were cautioned to avoid contact sports,horseriding and any high impact activity.I credit being so cautious for the fact that I manage a pain free life apart from a few neck pain episodes with headaches a few times a year.
My advice is to look after your spine,there's no need for any of us to prove we're superhuman by parachuting,basejumping or pushing the envelope to see just how much we can do.
Always keep fit and prevent weight gain,most people can cope well with running,cycling,aerobic exercise and dancing.
With current surgical techniques being so excellent,the emphasis is on living a completely normal life once a patient has recovered.
This includes having children,working for a living and enjoying a few active passtimes and hobbies.
I never went on rollercoasters,I think it places too much stress on the last few unfused discs.Things like kayaking could actually be very good as you use your upper body muscles. My husband and daughter kayak, and it's not like a canoe in that it's open so you won't get trapped if you tip over.Its just a bit too much like hard work for me though:D
Sins

Dancerr..
7th October 2010, 06:03 PM
yeah im on the school squad AG Cats were 17 times rossendale champions there has only been 17 comps & 4th place holders in our category in the north west nationals run by the UK cheerleading association



sounds wicccked. (: i ammm too.
i'm part of the derby diamondsss :D you can find some clipsss on youtube!! <3

KatzD
21st November 2010, 06:34 AM
Things I can do:

I can play violin. Post-op I took up conducting and have managed to adapt by using a tall stool during (otherwise long and achy) rehearsals and then I'm so buzzed up on the actual night that I don't get any pain.

I had never been sporty before the fusion but took up taekwon-do 9 years after the operation, which requires some adaptation of class activities but I have been able to progress so far.

I have in the past been on a roller coaster, ski-ed and kayaked.

Things I am working on:

Rehabilitation after my surgery was poor. I am redressing that now with physio - I have extreme tension in my neck and shoulders because my lower trapezius muscle is more or less disengaged and my upper trapezius is overactive.

bronteamy
21st November 2010, 01:41 PM
sounds wicccked. (: i ammm too.
i'm part of the derby diamondsss :D you can find some clipsss on youtube!! <3

the derby diamonds look really good hove they ever been to nationals?

this is a clip of all the pioneer teams except mine as its new
http://www.youtube.com/watch?v=dhru2Y8HTEU

Dancerr..
21st November 2010, 02:19 PM
just watched the video.. :) the little ones are sooo cute! ahaha,
but yeaah it all looks very good! :D
yeaah, we've done quite a very competitions.. and always came reasonably high up in the ranks :')

bronteamy
21st November 2010, 02:27 PM
just watched the video.. :) the little ones are sooo cute! ahaha,
but yeaah it all looks very good! :D
yeaah, we've done quite a very competitions.. and always came reasonably high up in the ranks :')

coolage were going nationals in may at the manchester veledrome

Dancerr..
21st November 2010, 03:04 PM
may see you there then! :L hahaaa.xx

bronteamy
21st November 2010, 09:03 PM
Oh one other thing you can do is survive a mosh pit within a year

Liv
21st November 2010, 09:21 PM
Great topic! :hammer:

Things I can do (and frequently do) with my T3-L2 fusion:
skiing, cycling/mountainbiking, tennis, badminton, climbing, kayaking, scuba diving, bodyboarding, roller coasters, horse riding, zumba, bodyattack/bodypump... and last but not least... becoming a gastroenterologist! :cool:

Round The Twist
22nd December 2010, 07:30 PM
Bump! :bump:

For our newer menbers :D

bara
23rd December 2010, 01:58 AM
My brother has been scanning old photos and putting them on Facebook (probably in an effort to annoy as brothers do, however old) and he came up withis one that I thought was worth a show - being as I was 19 and 5 years post fusion.

http://lh6.ggpht.com/_8OKPlRHor6I/TRKaIiz5X4I/AAAAAAAAAV8/FTMvhUvOyF4/s512/165637_1579649167255_1116422142_31363967_5715831_n .jpg

Things you CAN do with a fused spine - even if you give them up later!
:)
B

tonibunny
23rd December 2010, 12:07 PM
FABULOUS photo Bara!!!!

bara
23rd December 2010, 01:02 PM
FABULOUS photo Bara!!!!

I wouldn't go that far - but I did used to use the bike a lot when I was a student ...
:)
B

tonibunny
23rd December 2010, 01:08 PM
No, I love it, it's a brilliant pic :p

Dancerr..
6th February 2011, 09:54 PM
well you can do handstands up against the wall, whilst messing about in pe with your best mate!
just look at my picccture :D

tonibunny
6th February 2011, 09:55 PM
Oh Ellena, that's a such fab picture!!! :D

Dancerr..
6th February 2011, 09:57 PM
thankyouuuu. i loveeee it :D
just goes to show you can do ANYTHING, (in reason of course)

natalie 26
7th February 2011, 02:36 PM
what a great idea as im always wondering what i can or cant do although i feel i can do quite a lot 8 months post op but am just always a bit paranoid .. so thankyou for posting this its very usefull these forums gave me so much info and helped me cum to the decision to have surgery .ps how do i start a new thread ? :D

GillyG
7th February 2011, 04:32 PM
At the top of the forum there's a button which says 'New Thread' - just click on that and you're away :D

louise_23
7th February 2011, 07:57 PM
Hi Natalie :welcome:

And Ellena that pic is faaab!:D

Tbh I dont think I could have even done that before surgery...:eek2:

GillyG
7th February 2011, 08:29 PM
Ha ha, me neither Louise :p Fab piccy Ellena :D

bronteamy
7th February 2011, 08:39 PM
great pic ellena

Dancerr..
7th February 2011, 09:08 PM
thanks guys :D
hahhaa, messing about in PE with your best mate (gotta love it).. even the teacher tried it was actually hilarious!

tashi
8th February 2011, 02:42 PM
Can anyone tell me if a fused spine is a must for scoliosis surgery? Its been a while (13 years) since I saw my consultant, but I don't remember him mentioning fusion though he did talk about the rods. Is it just assumed that you need fusion with the rods? Thanks in advance.

bluestone
8th February 2011, 03:15 PM
Can anyone tell me if a fused spine is a must for scoliosis surgery? Its been a while (13 years) since I saw my consultant, but I don't remember him mentioning fusion though he did talk about the rods. Is it just assumed that you need fusion with the rods? Thanks in advance.

Hi Tashi,
The surgeon uses the rods to hold your spine straight.The fushion is the bone taken either from your hip or as in my case my ribs and crushed down.
This is then put in around the spine and in time this crushed down bone fuses the vertabrae's so the spine stays straight.

Hope this is okay, somebody else may be able to explain it in my detail. ;)

Mustang Sal
8th February 2011, 04:39 PM
Hi Tashi,

Sarah's right, the rods are put in to stabilise the spine while the bone graft forms a solid fusion of the vertebrae involved - this process usually takes 6-12 months. After fusion has taken place, the rods aren't strictly needed any more but they're normally left in place for life unless a problem with them occurs, like infection, a rod breaking or screws causing pain. So, there isn't really any surgical way of correcting scoliosis without a fusion.

Hope this helps :)

natalie 26
8th February 2011, 05:42 PM
thankyou although i still cant find the newthread button and im not a juniour member need to change that still getting used to the forum grrrrrr x:huh:

natalie 26
8th February 2011, 05:43 PM
hi everyone x

GillyG
8th February 2011, 05:49 PM
The New Thread button appears at the top of each forum before you actually click into it to read the posts, maybe you're looking for it once you're actually within someone's thread?

The reason you are a 'Junior Member' relates to the number of posts you have made, rather than your age :p So keep posting away!!! ;)

natalie 26
8th February 2011, 05:53 PM
arr right okey dokey will try that thankyou! ;)

natalie 26
8th February 2011, 05:57 PM
yay found it thanks gilly g :)

tashi
9th February 2011, 01:53 PM
Thanks for the info guys, that makes it clearer for me.

bronteamy
26th March 2011, 09:33 PM
Cartwheels
Round Offs
Sit Ups
Splits
Heel Stretches
High Kicks
Jumps
Lifting & Catching People (in cheerleading)

I really want to do a scorpian but that may be taking it too far

Mustang Sal
26th March 2011, 10:25 PM
Wow Bronte! :D

What an excellent example of what you can do after surgery! Keep up the good work :) (and be careful!)

bronteamy
27th March 2011, 02:20 PM
Wow Bronte! :D

What an excellent example of what you can do after surgery! Keep up the good work :) (and be careful!)

it is actually quite amazing what you can do

I am being a careful as possible but thats hard when you know in september you are switching to the senior squad that is representing the uk in Slovenia in july.

http://i54.tinypic.com/2e35x5y.jpg


http://i53.tinypic.com/2i27xux.jpg

Thats the seniors at nationals last week

http://menmedia.co.uk/rossendalefreepress/sport/s/1415015_pioneers-are-picked-to-represent-britain-at-the-euro-cheerleading-championships

Thats the artical about it

louise_23
27th March 2011, 06:14 PM
Cartwheels
Round Offs
Sit Ups
Splits
Heel Stretches
High Kicks
Jumps
Lifting & Catching People (in cheerleading)

I really want to do a scorpian but that may be taking it too far



WOW Impressive...

bara
27th March 2011, 11:51 PM
I couldn't do them before I was fused ;)

B x

mark
28th March 2011, 03:50 AM
Woooo hooooo BRONTE

go go for it girl

show the doubters exactly what fused spines can actually do

cherrybird
28th March 2011, 11:14 AM
Whats a scorpian bronte is it where you stretch your leg behind you almost up over your head? I don't think I'll give it a go seeing as I can even touch my toes :D

bronteamy
28th March 2011, 07:15 PM
Whats a scorpian bronte is it where you stretch your leg behind you almost up over your head? I don't think I'll give it a go seeing as I can even touch my toes :D
http://cheerleadingonline.com/blog/cheerleading-stunt-scorpion.jpg < that is a half scorpian to make it a full one you would hold your leg with the opposite arm (e.g. left leg right arm)

lyssie
28th March 2011, 08:36 PM
I couldn't do them before I was fused ;)

B x

Tellll me about it! lol :p

Dancerr..
28th March 2011, 09:00 PM
waaaahey Bronte ;D
go for it, i've been trying to do a scorpion since i've had my op too, still trying but getting closerrr :D
i do cheerleading too, 'DERBY DIAMONDSSS' :')
woopwoop, so yea i also do tricks and stunts too. throwing people and catching them :D so its true when you say 'never say never' :)

bronteamy
28th March 2011, 09:05 PM
waaaahey Bronte ;D
go for it, i've been trying to do a scorpion since i've had my op too, still trying but getting closerrr :D
i do cheerleading too, 'DERBY DIAMONDSSS' :')
woopwoop, so yea i also do tricks and stunts too. throwing people and catching them :D so its true when you say 'never say never' :)

I hopefully will get there

can you do heel streches?

oo and I may end up subbing at euros in july for the seniors

Dancerr..
28th March 2011, 09:12 PM
keep goingggggg! :')
nearlynearlynearly, my dance teacher makes me like lean on the wall and lift my legg, and makes me stand there! hahaa- it hurts lots and lotss!
oooh get youuuuu :D :D

Dancerr..
28th March 2011, 09:41 PM
http://tinypic.com/usermedia.php?uo=u3L5ZvFm2l4XUFkGisk4koh4l5k2TGxc

excuse the pjssssss :')
xx

bronteamy
28th March 2011, 09:44 PM
http://tinypic.com/usermedia.php?uo=u3L5ZvFm2l4XUFkGisk4koh4l5k2TGxc

excuse the pjssssss :')
xx


very impressive I would get a picture but I need to work on them again as I pulled my hamstring showing a girl at school a heel stretch two weeks ago. The moral of the story I must warm up better at school cheer.

bronteamy
28th March 2011, 09:48 PM
Oh and i am not even attempting to bet into box splits anymore hurts far to much

malung
4th April 2011, 04:01 AM
Let's see, how about win a major golf championship! Stacy Lewis earned her first LPGA (Ladies Professional Golf Association) title today by winning the Kraft Nabisco Tournament. This is considered a major tournament on the professional tour. At age 11 Stacy was diagnosed with scoliosis and spent the next 7 1/2 years wearing a brace. At age 18 her curvature required surgery. Today, at age 26 she won her first major professional golf tournament earning the winner's check of over $300,000.00

What made today even more special for my 17 year old daughter is that this weekend we had our first golf outing since her surgery last August. She had a great weekend on the course and we returned home just in time to see to see Stacy capture the championship. To see my daughters joy in being on the golf links once again was priceless!

cherrybird
8th April 2011, 06:09 PM
I can't remember if I mentioned it on here before, but I did do the race for life 5k fun run for cancer research on crutches in 1 hour 6 mins faster than my able bodied friend who also walked and she did it in 1 hour 26 minutes. This was before my latest fusion, but post harrington rod fusion. I will do it again one day though - the adverts on the tv just reminded me

mamfie007
13th April 2011, 08:16 PM
Great post!

I think it is amazing the things we can all do!

I am 37 just finished my first Ski Season in Canada so Skiing nearly every day ( racked up around 80 ski days, and some snowboarding) Before the season I was not too active in the year or so before due to work and post Op pain after partial removal of my Harrington rod in 2009 (Origianl Rod and Fusion put in place when I was 19 - some 17 yrs before T2 to L1).

I have to say I am now in the best shape and the most pain free I have been in a few years and pretty much feel normal. Skiing has really strengthened my core so keeping active has definitely worked for me ;-)

Before my second op in my twenties and after my firs, I also have danced many a night away (too many) Ski'd a few times before. Swam, Ice Skated, Rode a horse, rode a bike, Surfed (a few days of a full on course in Lanzarote), Run a fun run. Ice skated, gone for hilly walks and moved house numerous times lifting stuff I probably shouldn't, and once parascended!


(I feel I have bigged my self up enough here ;-)

bronteamy
15th May 2011, 01:29 PM
Become a Cheerleading National Champion

tonibunny
15th May 2011, 07:11 PM
....Bronte, have you just done that? :D :treehug: :woohoo:

BlueIce
16th May 2011, 07:16 PM
Become a Cheerleading National Champion
pics or it didn't happen :p (j/k, but really, if you have a video I'd really like to see it!)


Another thing I've discovered I'm able to do is carry a whole pack of bricks (about 800kg in total) from point A to point B without being overly sore the next day! (Two bricks at a time, not the whole pack at once off course!) And my shoulders actually hurt less after digging holes all night long, who would've guessed...

bronteamy
16th May 2011, 08:18 PM
Toni we competed on Saturday at Manchester Velodrome for the UKCA (United Kingdom Cheerleading Assosiation) Community (lowest of private club cheer [split into three categories Community, Club & Elite]) Cheer Nationals. We now are going to compete in Club Nationals as we did so well.

My club (The Pioneers) took 11 teams of all ages from 2year olds through to parents and came out with 7 first places and 4 second places

tonibunny
16th May 2011, 09:34 PM
That is amazingly cool Bronte, well done!! :woohoo:

tonibunny
17th May 2011, 06:10 PM
:bronte:

bronteamy
17th May 2011, 07:17 PM
Heres the pictures :bronte:

http://i55.tinypic.com/1zfsh1t.jpg
http://i52.tinypic.com/op3gr4.jpg
http://i51.tinypic.com/21j38f9.jpg
http://i53.tinypic.com/2rc1grn.jpg
http://i52.tinypic.com/jubw95.jpg
http://i53.tinypic.com/2mdjnfq.jpg
http://i53.tinypic.com/dokrxl.jpg
http://i54.tinypic.com/34erszt.jpg
http://i54.tinypic.com/11gk6f9.jpg

tonibunny
17th May 2011, 07:26 PM
Wow don't you all look ace! :bronte:

Mustang Sal
17th May 2011, 08:38 PM
Fantastic pics Bronte! I just know your success with this will inspire others who've had fusions to follow their dreams. Massive well done to you :D :bronte:

cork_lass
18th May 2011, 10:34 AM
Wow Bronte well done, I love the photos. :bronte:

GillyG
18th May 2011, 01:46 PM
Wow Bronte, what a fantastic achievement :bronte::bronte::bronte:

ScoliJess
19th May 2011, 11:19 PM
Well done Bronte that's ace!!!

Some really good things on this thread.

I am hoping to prove in June that with a fused spine (and a total disk replacement) you can do the Great North Swim and raise money for MedEquipforKids...

Here's hoping!!

GillyG
19th May 2011, 11:27 PM
Jess, if you set up a 'Just giving' page, I'll gladly sponsor you for that :D

bronteamy
21st June 2011, 07:11 PM
Today I based a 3 teir pyramid (holding two people above you) without any problems at all :bronte:

tonibunny
21st June 2011, 07:19 PM
Well done Bronte! You're going from strength to strength :bronte:

GillyG
21st June 2011, 09:00 PM
:bronte: Awesome :bronte:

daniel7
22nd June 2011, 07:54 PM
Can you carry a ruck sack on your back with a fused spine?

GillyG
22nd June 2011, 08:13 PM
Yep, you sure can :D Not immediately post surgery, if course, but once things are nicely fused. In fact, I could never stand to carry anything on my back before because of my rib hump, but I find it much easier post surgery :D

mark
22nd June 2011, 08:49 PM
Yes you can, i was in the mountains about 7 months post op, mind u it hurt like hell for a few days but we were doing some stupidly idiotic stuff and i should have known better

But yes you can virtually do everything you did pre op

titch
23rd June 2011, 05:49 PM
I can and do - this has included lugging (not too far admittedly!) about 60 pounds of stuff for courses, both after my first surgery (T10-L2) and after my much more extensive T3-L4 surgery. I've also used a kiddy back pack to lug my monster around up until he was about 30 pounds, and that was going quite a bit further - kiddy packs are not as ergonomic though, and tended to set my neck off.

bronteamy
23rd June 2011, 09:50 PM
Can you carry a ruck sack on your back with a fused spine?

Yes you can I have my D of E final this weekend so I'll be carring a 60L rucksack all weekend.

My surgeon goes of no more than a 1/4 of your body weight but thats altered on build

daniel7
26th June 2011, 12:10 PM
Can You Ride A Bike?

tonibunny
26th June 2011, 12:17 PM
You absolutely can ride a bike, I cycle LOTS :D

GillyG
27th June 2011, 07:04 PM
Can You Ride A Bike?

No. Oh ... wait ... that's just me - I never learned :oops:

ALZO24
28th June 2011, 12:02 AM
Everything you want to do its never stopped me and I lift some serious weight all the time .
The question you want to ask is what's the consequence of it 10 / 20 yrs after op

tonibunny
28th June 2011, 12:08 AM
I had my first op 25 years ago :) No serious consequences of anything yet!

ALZO24
28th June 2011, 08:05 AM
I had my first op 25 years ago :) No serious consequences of anything yet!

I may be getting ahead of myself but if I have got badly worn discs causing me the problems I'm having if they extend the fusion to include these discs will it fix the problem ?
;)
Sorry off topic a bit

tonibunny
28th June 2011, 01:24 PM
I had a badly worn disc at the bottom of my fusion (it's pretty much expected for this to happen if you have a long fusion) so I had a small operation to extend the fusion and was back climbing hills a month later :D It fixed me, so I think it's worth considering surgery if you have tried nonsurgical methods and they haven't worked for you.

BeckyH
3rd July 2011, 05:30 PM
BUMP!

cycle the etape du tour: http://www.dailymail.co.uk/news/article-2010796/A-year-ago-Joshua-barely-walk--cycling-Tour-France-pioneering-surgery.html

bluestone
3rd July 2011, 05:46 PM
I had a badly worn disc at the bottom of my fusion (it's pretty much expected for this to happen if you have a long fusion) so I had a small operation to extend the fusion and was back climbing hills a month later :D It fixed me, so I think it's worth considering surgery if you have tried nonsurgical methods and they haven't worked for you.


As im fused to L4 should I be worried about the disc wearing out at the bottom of my fusion?

Sheila
3rd July 2011, 06:43 PM
Wow - how fantastic is that - my whole family are keen cyclists and I was worried I may not beable to do this - AWESOME :)!!

GillyG
3rd July 2011, 08:19 PM
As im fused to L4 should I be worried about the disc wearing out at the bottom of my fusion?

There is an increased risk Sarah as you now only have two discs doing all the work of the rest (but at least that's twice as many as I have :p) I wouldn't let it worry you too much though, having scoliosis in the first place puts uneven wear and tear on our discs, so one thing just balances the other I think :)

tonibunny
4th July 2011, 12:37 AM
As im fused to L4 should I be worried about the disc wearing out at the bottom of my fusion?

Now I am fused to L4 I asked Mr Tucker how long my remaining disc could reasonably be expected to last. He said that he's had plenty of patients for whom the discs have never worn enough to be a problem even though they've had fusions this long for decades, So it's not a foregone conclusion that it will wear out, just that it's more likely to. I wouldn't let it stop you doing anything! I don't :)

Alisonh
24th July 2011, 10:24 PM
Bryony is 4 weeks post op and I caught her smelling her feet this morning!! yes her nose and toes did make contact!!
Or is this just the joy of being only 16? :D

Round The Twist
23rd August 2011, 12:03 AM
Not sure if this has been mentioned on here before but it deserves another mention anyway - Go Ape! - Just completed my second full course today, had an absolute blast again, and don't ache anymore than normal this evening :D

http://goape.co.uk/what-is-goape

Here's a video link from their site :)

tonibunny
23rd August 2011, 12:04 AM
Oh wow Kat, that is SO cool :D A bunch of my friends did Go Ape just a couple of days ago and they had a brilliant time.

Round The Twist
23rd August 2011, 12:08 AM
Oh wow Kat, that is SO cool :D A bunch of my friends did Go Ape just a couple of days ago and they had a brilliant time.

It is awesome, I did my first course as a Hen Do this time last year and knew straight away I wanted to go again, so mu Mum bought us gift vouchers for xmas and we finally got round to it today, I'd recommend it to anyone who likes to do 'thrill seeking' type activities, it is a real adrenaline rush at times :D xx

madmclw
23rd August 2011, 06:15 PM
I LOVE Go Ape! I've done that a couple of times too :D

madmclw
23rd August 2011, 06:16 PM
Oh, and to add to the list - I've earned the nickname 'Limbo' at my Ranger unit, for defying all the odds and being really rather good at it...I was the best in the unit and surprising even myself with what I was able to do, when to all minds it seemed as though it should be impossible for me!! :D

louise_23
24th August 2011, 09:32 AM
Oh, and to add to the list - I've earned the nickname 'Limbo' at my Ranger unit, for defying all the odds and being really rather good at it...I was the best in the unit and surprising even myself with what I was able to do, when to all minds it seemed as though it should be impossible for me!! :D

Haha that's amazing!:D

I'm fused T3-L3 and one year on I do most things I did before surgery such as going to the gym, doing (light!) weights, pilates, swimming, going on walks up hills etc, dancing/clubbing, cycling, more recently - bowling!
I'm an active person and I don't let my scoliosis stop me:D

Don't think I could do the limbo tho:p

madmclw
24th August 2011, 01:42 PM
We have the same fusion though Louise, so never say never! ;) (Although perhaps you're much more sensible than I am when it comes down to it, so maybe don't follow my example :p)

louise_23
25th August 2011, 09:27 AM
We have the same fusion though Louise, so never say never!

Haha! Well you never know then...;)

Dancerr..
26th August 2011, 05:28 PM
go on a banana boat!!!:D

bronteamy
1st September 2011, 10:39 AM
Complete the Samaria Gourge Walk in Crete

16km of walking on uneven ground (over boulders and rocks) in 35+ degrees

It was tough but you can do it

tonibunny
1st September 2011, 01:18 PM
That's brilliant Bronte :D I love hiking.

Mustang Sal
2nd September 2011, 03:32 AM
Complete the Samaria Gourge Walk in Crete

16km of walking on uneven ground (over boulders and rocks) in 35+ degrees

It was tough but you can do it

I think that's the biggest gorge in Europe isn't it? I remember reading about it when I went to Crete a few years ago - the pictures I saw of it were pretty impressive! Well done Bronte, what an achievement :D

louise_23
2nd September 2011, 09:22 AM
Complete the Samaria Gourge Walk in Crete

16km of walking on uneven ground (over boulders and rocks) in 35+ degrees

It was tough but you can do it

Wow! Brilliant!!:D

GillyG
2nd September 2011, 10:39 AM
Nice one Bronte :niceone:

madmclw
5th September 2011, 02:54 AM
I just made this thread a sticky, so that new members might stumble across it and get some reassurance :) I didn't want it to be lost to the depths of the archives because I think it's a rather valuable list of achievements! :)

Speaking of which, well done Bronte! :bronte:

bronteamy
17th September 2011, 09:46 PM
I think that's the biggest gorge in Europe isn't it? I remember reading about it when I went to Crete a few years ago - the pictures I saw of it were pretty impressive! Well done Bronte, what an achievement :D

It is the biggest in Europe I believe (sorry about the late reply I missed these comments completely)

You can ride every thing in Alton Towers Except submission without a problem

marykay
27th September 2011, 05:48 AM
I am so thankful to have stumbled across this. I have been agonizing over my 16 year old special needs daughter needing this surgery and not wanting to put her through it. However these posts really have helped. Thank you all. Question I have -- does anyone still have pain post surgery? Do you know if that is very common? She currently has some pain around her curves but it is not severe. Any thoughts would be appreciated!:)

tonibunny
27th September 2011, 12:40 PM
Hi Mary,

Some people do experience ongoing pain, but usually it is nothing more than general aches and pains every now and then, and isn't anything that causes big problems. Occasionally someone will have more severe pain, and this is usually because screws are pressing on nerves or something like that (this can often be rectified with more treatment).

It's very unusual for a young girl like your daughter to experience ongoing pain problems after surgery. Most kids forget all about it once they have healed up :) Try not to be scared by what you read on forums like this one, where the small minority of people with ongoing problems tend to gather.

lots of love,
Toni xx

rforbes217
27th September 2011, 06:40 PM
YES! I KNEW it! They all tell me I will never get back on a horse. My back is just too bad. What if you fall off... etc. I am a very determined person. One of those people that when I get something in my head, I don't take no for an answer. I know , just to be on the "safe side", that I can also get an inflatable vest, just in case I do fall. I want to get back to riding more than anything. Of course, I understand your back may not be the the same as mine, but you have given me hope. Thank you!

tonibunny
27th September 2011, 07:01 PM
Hi RForbes! Welcome to SSO :welcome2:

Good luck with getting back on your horse! DO be careful, but please be encouraged - we have had quite a few keen horse riders here over the years :)

Dancerr..
29th September 2011, 11:28 AM
you can take part in a dance show!
i'm performing at the Guild Hall Theatre in Derby tonight and tomorrow night with my dance school:)!
we're doing a show called 'west end to broadway' :D
sooooo excited!

tonibunny
30th September 2011, 12:06 PM
Oh yeaaaaah Ellena!!! That sounds amazing, have a wonderful time!! :D

mark
9th October 2011, 10:22 PM
you can do just about anything you put your mind to, i never thought i would run again, granted it hurts more and i can't run as often or as far as i did pre op but i'm back pounding the streets

daniel7
9th October 2011, 11:00 PM
can you have a jaccuzzi ?

tonibunny
9th October 2011, 11:02 PM
Yep, jacuzzis are no prob at all, in fact they can feel GREAT :D

mark
9th October 2011, 11:03 PM
Yes

I've been in a couple of times, no problems at all

daniel7
21st October 2011, 04:07 PM
A person on youtube claims that the surgeon told them:
I wonít be able to do:-

- Rollercoasters :[ shame . . . . i like rollercoasters
-School Sports :S . . . donít like some of them but do like others
-Horse-riding . . . i love it
- bungee jump
- contact sports
- run a marathon
-Breaststroke, Butterfly, Tumble Turns and Dives (may be able to do these as i am a keen swimmer) still be able to swim though

but other people on here say they do most of them things so it confused me!
my main swimming stroke is breaststroke!

GillyG
21st October 2011, 04:29 PM
I would say out of that list the only two no-no's would be bungee jumping and roller coasters - and some surgeons don't even mind the latter :)

mark
21st October 2011, 09:01 PM
I would say out of that list the only two no-no's would be bungee jumping and roller coasters - and some surgeons don't even mind the latter :)

Gilly is bang on, i'm back up to 36 miles a week running so it won't be long before i'm back doing 1/2 marathons and upwards

daniel7
21st October 2011, 10:03 PM
so you recokn you could do a marathon then mark??
how many miles do you run a day?

mark
21st October 2011, 10:08 PM
10 miles every other night with a couple of five milers chucked in between with 2 nights off

pre surgery i was doing

13 miles every other night with a five miler on the nights in between with a rucksack with weights in it

daniel7
21st October 2011, 10:13 PM
10 miles every other night with a couple of five milers chucked in between with 2 nights off

pre surgery i was doing

13 miles every other night with a five miler on the nights in between with a rucksack with weights in it

nice and was you in pain much?

mark
21st October 2011, 10:39 PM
hahahahahaha

Pain, yes, lots of it but the endorphins afterwards were/are worth it

titch
22nd October 2011, 12:43 AM
The only one from that list that I would really think of as a definite and absolute no is bungee jumping - and even then, that's only headfirst drops, as I wouldn't see a big issue with the ones where you're cranked down to the floor and then sprung up like a rubber band. The main issue with a typical head down bungee is the fact that inevitably the spine will stretch out, and if you're fused there ain't much that can stretch, so I'd worry about both mechanical injury and also the possibility of a (almost certainly temporary but even so) neurological injury, because rather than the stretching being evenly distributed, you could get a short, sharp stretch at just a couple of levels. I could be totally wrong about the biomechanics, but I just don't think it's worth finding out the hard way ;)

Swimming-wise, for some people breaststroke becomes a problem, but most people remain able to swim. The only reason I can't is that in the support of the water, I am more mobile, and this aggravates the nerves where my spinal canal is narrowed due to severe degenerative changes. I expect to be able to swim again once recovered if and when I ever have my next and hopefully final fusion, because for one thing they should decompress that area, but in any case I'll be fused all the way to the sacrum so it'll no longer be able to move too much where the stenosis is. Some people with high fusions find it easier to swim with a snorkel, so that they don't get neck strain.

tonibunny
22nd October 2011, 12:53 AM
Abbi's done a marathon following a T1-L4 fusion I think? If it wasn't her it was someone else who had a very long fusion :)

I was never excused school sports (including contact sports) after my first fusion at the age of ten. I was just expected to do everything everyone else did, and I had no real problems with that. I've never had probs with roller coasters either!

madmclw
27th October 2011, 04:33 PM
ROCK CLIMBING!! :D Oh man you guys I'm having so much fun. I joined the climbing society at uni and although I've only been out with them twice, I'm absolutely loving it :D I've done a bit of climbing before but not serious stuff and it's always been something I've enjoyed, so this is awesommeeee :D If anyone knows anything about gradings, some of the old club members told me that most freshers climb 4s and 4+s on their first few trips, but I managed a 5 and a 5+ on my first (which they all seem very impressed by) and yesterday I managed a 6a which I was told most people don't manage for a while. I have zero strength in my arms, my fitness levels are so low they're practically non-existent, AND I have a fused spine (which none of them actually know yet...) so heaven knows how I'm managing this, but it doesn't half make me feel good!! :D :D :D

mark
27th October 2011, 04:56 PM
ROCK CLIMBING!! :D Oh man you guys I'm having so much fun. I joined the climbing society at uni and although I've only been out with them twice, I'm absolutely loving it :D I've done a bit of climbing before but not serious stuff and it's always been something I've enjoyed, so this is awesommeeee :D If anyone knows anything about gradings, some of the old club members told me that most freshers climb 4s and 4+s on their first few trips, but I managed a 5 and a 5+ on my first (which they all seem very impressed by) and yesterday I managed a 6a which I was told most people don't manage for a while. I have zero strength in my arms, my fitness levels are so low they're practically non-existent, AND I have a fused spine (which none of them actually know yet...) so heaven knows how I'm managing this, but it doesn't half make me feel good!! :D :D :D

Fantastic sport, i'm really pleased you are enjoying it so much and wait a couple of months and look at your strength and fitness, you won't recognise your old self

Brilliant news, adrenline junkies everywhere should take the sport up, it teaches you a lot of leasons that will help you in life too,

tonibunny
27th October 2011, 05:18 PM
That is so totally awesome Maddy! My best friend climbs and I have wondered about giving it a go but I have never had any upper-body strength at all. Oooh :)

GillyG
27th October 2011, 07:47 PM
Oh wow, go Maddy, so pleased you're having such an awesome time :D:D:D

mark
28th October 2011, 01:17 AM
Upped the game tonight, 15 miles, felt good, back stood up to well, push it up another notch next week (no more running to monday its my bday weekend lol), got a 20 mile course worked out in my head, if i get two of them in and a little one inbetween i'll be a happy little sanddancer

Not bad for a 40 (1) (ish) going on 12 year old year old with a broken back, couple of rods ad a load of screws lol

ourlena
31st October 2011, 08:15 PM
My daughter Robyn is 3 years post op. She had a fusion from T5 - L1, going from 51* to 19*. She has full flexability, does dancing 3 times a week and recently climbed Tinto Hill in Scotland. Nothing holds her back.

stompkins
5th November 2011, 10:22 PM
Thanks to all of you for saying I can do it. I'm 50 years old, had surgery in 1972. Bad curve 89 degrees. Harrington rods and fusion. Worked well for almost 20 years. But I tell people that don't have scoliosis, just lower back pain, the usual thing that people get in their 40's, that you must stay active, work. Don't set around. You must go on with your life. Don't stop living. Stopping and setting around makes it worse. Go!!! People can't believe that I had surgery 39 years ago and have a active 12 year old and work 60 hours a week. And yes at my age it hurts, but not doing anything and setting around hurts them more and is hurting their families as well. I can't tell a 12 year old that mommy can't do it. And besides my husband and daughter think I can.:):):):)

stompkins
5th November 2011, 10:25 PM
My daughter Robyn is 3 years post op. She had a fusion from T5 - L1, going from 51* to 19*. She has full flexability, does dancing 3 times a week and recently climbed Tinto Hill in Scotland. Nothing holds her back.
Tell her to keep it up. Always.

Round The Twist
5th November 2011, 10:30 PM
ROCK CLIMBING!! :D Oh man you guys I'm having so much fun. I joined the climbing society at uni and although I've only been out with them twice, I'm absolutely loving it :D I've done a bit of climbing before but not serious stuff and it's always been something I've enjoyed, so this is awesommeeee :D If anyone knows anything about gradings, some of the old club members told me that most freshers climb 4s and 4+s on their first few trips, but I managed a 5 and a 5+ on my first (which they all seem very impressed by) and yesterday I managed a 6a which I was told most people don't manage for a while. I have zero strength in my arms, my fitness levels are so low they're practically non-existent, AND I have a fused spine (which none of them actually know yet...) so heaven knows how I'm managing this, but it doesn't half make me feel good!! :D :D :D

You sound like a younger version of me :D and I'll be willing to bet that its sheer bloody-mindedness of not being beaten and adrenaline that gets you up them climbs!!
:hehe:
Whatever it is go you and glad you are having a whale of a time :D

Round The Twist
5th November 2011, 10:44 PM
A person on youtube claims that the surgeon told them:
I won’t be able to do:-

- Rollercoasters :[ shame . . . . i like rollercoasters
-School Sports :S . . . don’t like some of them but do like others
-Horse-riding . . . i love it
- bungee jump
- contact sports
- run a marathon
-Breaststroke, Butterfly, Tumble Turns and Dives (may be able to do these as i am a keen swimmer) still be able to swim though

but other people on here say they do most of them things so it confused me!
my main swimming stroke is breaststroke!

I missed this when I was away.

Won't be able to do or won't be allowed to do? There is a distinct difference!

I just came back from a holiday where I rode around 10 Rollercoasters of various speeds and heights(not including some of them twice) over the course of 2 weeks and my back is/was fine!

I was told the occasional Rollercoaster binge was fine as long as you stay under 4G's and not to make a career out of it ie going every weekend/trying to go on all the ones in the country/world.
Obviously leave it until you are fully healed and have permission from your Surgeon/Consultant before riding your first post-op Rollercoaster (Unlike me :oops:)

Contact sports, Bungee Jumps attached by the feet and any sort of Parachuting including Parascending is out of the question due to the forces on the Spine and/or landings.

I still swim (badly) with breaststroke, front crawl is however, difficult since being fused 20 years ago :hnh:

Hope this helps!

madmclw
5th November 2011, 11:00 PM
I'll be willing to bet that its sheer bloody-mindedness of not being beaten and adrenaline that gets you up them climbs!!
:hehe:

HAHA you're probably not half wrong either :p I did two more 6as last Wednesday, and even though I struggled I would just sit halfway up the wall refusing to give up and then all of a sudden it would just happen :D

One of the old members said on Wednesday that I am destined for great things :')

GillyG
6th November 2011, 07:05 PM
One of the old members said on Wednesday that I am destined for great things :')

I think we'd all agree with that :D:D:D

mark
6th November 2011, 09:46 PM
One of the old members said on Wednesday that I am destined for great things :')

Indeed you are

My week

Monday

10 mile run

Tuesday

5 mile power walk with dog

Wednesday

17 mile run, home for tea, 3 mile power walk with dog

Thursaday

5 mile power walk with dog

Friday

12 Mile run

Saturday

4 mile run

Sunday

8 mile run, home sunday lunch, 5 mile powe walk with the dog

basically you can do anything bar jumping out of a cage attached to a crane or an plane or cliff with a parachute on your back

Congratulations on the rollercoaster Kat

madmclw
6th November 2011, 10:59 PM
:ghug:

moneyblind
12th November 2011, 04:55 AM
Just want to input that this thread is a GREAT inspiration and load of information! To all of those that have done the surgery and posted your results, thanks for letting others benefit from your experiances! And for those who haven't; Good Luck! :)

KaraNicole1992
21st November 2011, 10:42 AM
My age: 19 had surgery when i was 18
My fusion length: Posterior Fusion T4-L2
My instrumentation: Fugey rods, screws, hooks and wires
Things I enjoy doing: I love swimming, doing sports, lifting wights,

bronteamy
21st November 2011, 06:44 PM
Become a Cheerleading Champion again...

This time at UKCA Winter Open @ The Echo Arena Liverpool. This Was in Junior B Community Pom Dance devision.

Pom dance is about 20x harder than stunting, the routine consists of dance and jumps with no lifts, it is all about arm placement & being strong while keeping it clean. After a 2 and a half minute routine you feel as if you are going to die.

GillyG
22nd November 2011, 10:56 AM
:bronte: Go Bronte! :bronte:

bara
23rd November 2011, 12:11 AM
Be on your local news just doing your job! (That's me in the black and white getup)

http://www.bbc.co.uk/news/uk-england-beds-bucks-herts-15839026

B

mark
23rd November 2011, 12:18 AM
wow thats great Bara, what a brilliant bit of film, you should be so proud

Mark

titch
23rd November 2011, 10:25 AM
I've just thought of a rather random one, and it's a lot more physical than you might think, as th fabric was enormously long and the slight train meant that the overall dress length was close to 9 feet at the angle the pattern piece was laid, and that's to make your own wedding dress!

I made a corset (toni has a photo somewhere of me wearing it as outerwear over a sheer top), a top, a skirt, an over-dress, and my husband's jacket, waistcoat and shirt :) Here's a picture of both of us:
http://farm4.staticflickr.com/3503/3844333345_c074885473.jpg
and one of just me to show the top and skirt:
http://farm4.staticflickr.com/3480/3844334491_a40801910c.jpg

GillyG
23rd November 2011, 10:26 AM
Nice one Barbara :D

cork_lass
23rd November 2011, 11:33 AM
Well done, Barbara. :)

titch
23rd November 2011, 11:57 AM
Yes, lovely to see you at last :)

Shame they didn't let you speak to give a teacher's perspective on it.

Dancerr..
24th November 2011, 04:23 PM
Dance at The Royal Albert Hall in London :)!
i've been offered a chance to be a part of my troupe again, so next April i'm off to London again :D its Olympic themed. sooooo excited:)!

mark
24th November 2011, 10:11 PM
Dance at The Royal Albert Hall in London :)!
i've been offered a chance to be a part of my troupe again, so next April i'm off to London again :D its Olympic themed. sooooo excited:)!

Thats really great news, i hope you really enjoy it, not many people can say they danced at the Royal Albert Hall, you should be really proud of the achievement

lyssie
25th November 2011, 01:45 PM
Stunning wedding dress, Titch :D

tonibunny
25th November 2011, 02:28 PM
Titch's wedding dress was breathtaking, and I did like 2C's breeches......mmmm, men in breeches....!!

titch
25th November 2011, 03:03 PM
A couple of minor amusements about the wedding outfit - the necklace is an antique one and probably completely unique, and at the time was considered worth about £500. The earrings, which went astonishingly well with it, were £3.50 from Claire's! The dress also consisted of opposites - the silk velvet of the over-dress was £45/metre, and the slate grey chiffon was £3/metre :lol2:

The breeches were actually a pair of my velvet leggings :D Hubs does have rather good legs, mind, being a cyclist :)

GillyG
25th November 2011, 04:42 PM
Ha ha, you sound as bad as me Titch for playing 'make do and mend' I also made my wedding dress and the bridesmaids dresses too, but mine was made of Broderie Anglaise because I just didn't 'see' myself in all those fancy, ruffled dresses that were all the rage post Princess Di's wedding ... here's a pic of me and my lovely mum (I look a bit like a gypsy!!)

http://i42.tinypic.com/jkzwx5.jpg

cork_lass
25th November 2011, 06:05 PM
Oh wow Gilly, what a stunning bride, I love your wedding dress it's so beautiful and really suits you. :)

titch
25th November 2011, 10:48 PM
Oh wow! You've described your dress to me before, but it's so lovely to see it - it was perfect! Absolutely beautiful job and you looked gorgeous :)

mark
25th November 2011, 11:13 PM
wow Gillian, Petes one of the luckiest dudes in the country, he sure had/has a good eye, come to think of it so does your dad to give you such good genes

tiffany.m
25th November 2011, 11:21 PM
You're all so beautiful!
I may have not been fused, but with my scoliosis - I've ridden 9 or 10 rollercoasters in a day - can't bare to think how many in the two weeks! Also major shopping girlfriends! :hehe:

Mustang Sal
25th November 2011, 11:39 PM
Oh Gilly, what an absolutely stunning bride you were! Your dress is beautiful (and at least you never wore one of those enormous 80s puffy sleeved monstrosities to look back and cringe at :p) and your hair - so pretty and feminine :)

lyssie
26th November 2011, 12:10 PM
Just wow, Gilly :D

wildcats56
26th November 2011, 04:55 PM
Hi Titch and Gilly what amazing dresses, you both look beautiful if the photos. How cleaver are you two making those lovely dresses, it much of taken ages. Myself I can just about sew a button on!! Well done girls. Sue x

GillyG
26th November 2011, 05:00 PM
and your hair - so pretty and feminine

Thanks everyone *blushes* but regarding my hair ... I tried all sorts of pin it back, pin it up etc etc styles, and in the end I just washed it and left it to dry naturally like I usually do :p in fact, on the first photo in our wedding album (taken at my mum's before we left for the church) my hair is still wet!!