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lyssie
8th November 2009, 11:46 AM
(Mods - if you think this is better in the Non Surgical forum then if nessecary could you move the thread, thanks guys ;) x)

Hiya all, I thought I'd let you all know that tomorrow I am seeing a pain management consultant Dr tomorrow (Monday 9th November at LBH) and I'll let you all know how it goes. I've asked around some friends and now I have a little bit more understanding of what to expect from the clinic! I am quite nervous! And dreading the treck into London, lol :p

Anyway I'll come and let you all know how it goes,

Love form Lyssie x x x

Little Ali
8th November 2009, 05:20 PM
Good luck Lyssie!! :gvibes::squeeze::luv::gvibes:I really hope they're helpful! xxx

mark
8th November 2009, 05:28 PM
Best of luck little dude

tonibunny
8th November 2009, 05:48 PM
Good luck Lyssie! Pain Clinics are wonderful. The doctor in charge of the one in Oswestry was flipping amazing, he was so helpful and dedicated and did everything in his power to help me.

Mustang Sal
8th November 2009, 06:54 PM
Hope it goes well for you honey :fingersx:

Simon
8th November 2009, 07:43 PM
Best of Luck Hun

lyssie
8th November 2009, 08:48 PM
Thanks guys, you all mean the world to me and just thank you so much! :) xx
Toni - Brilliant, I've constantly heard great things about pain management clinics, Mr Lam said he really likes this Dr to refer people to which I'm feeling nervous but positive about, as is only natural I guess.
It'll all take time (not even sure how long, could even take quite some time) but hopefully I'll learn coping strategies etc and I'll be able to cope with the pain better, and will suggest things and refer me for things to make my life that little bit more comfortable :) Feeling petrified if I'm honest, lol.

I'll be around tonight then off in the morning,

Love from Lyssie xx

cherrybird
8th November 2009, 10:32 PM
good luck tomorrow lyssie :gvibes:
hope it goes well, and the journey is noot too bad

Cassie
8th November 2009, 10:44 PM
Good luck tomorrow lyssie :squeeze: hope it's not too exhausting getting there and back and that you will start on a programme to help manage your pain. Be thinking about you, take care, xx:)

lyssie
9th November 2009, 07:10 PM
Hi All, thank you so much for the lovely messages. The pain Dr was so lovely... she is arranging me local physiotherapy with a certain pain specialist physiotherapist. Which I'd never heard of to be honest. She's gonna also arrange me CBT with a pain specialist psychologist and has given me instead of Amitriptyline, change to Duloxitene (if that doesn't help then Gabapentin)! And Butrans patches to have, and I can still take the tramadol because I explained my fear of withdrawl etc.
Like I said she was so lovely and I thought it was an extremely helpful first appointmnt, wants to see me in a couple of weeks! :)

Once again thank you all so much for being fab!

In agony!

Lyssie x x x

tonibunny
9th November 2009, 07:17 PM
Great news Lyssie! Well done :)

lyssie
9th November 2009, 07:39 PM
Thanks Toni, xx :)

cherrybird
9th November 2009, 07:41 PM
great to hear it went well lyssie, lets hope this is the start of things improving for you pain wise.

Lucy7
9th November 2009, 07:42 PM
Very positive 1st visit. Lovely news!

lyssie
9th November 2009, 07:44 PM
Thanks Claire and Lucy *mwah* x-x

Little Ali
9th November 2009, 07:49 PM
:jump::clap::yay::cleader:I'm over the moon for Lyssie! I really hope this helps you! xxx

lyssie
9th November 2009, 08:59 PM
Hehe, *hugs* for Ali and everyone! I hope this helps too. I feel it's going to be a long journey, but hopefully worth it. I'm feeling quite alright about this now! Appart from the pain right now, lol... But tomorrow starting the new painkillers! Not sure when they'll kick in and she said the cymbalta/duloxetine (which I'd actually expect to take a month or more to kick in because it's also an antidepressant as well as used to treat nerve pain) should help me sleep even better than the Amitriptyline! I'm reading up about the patch at the moment...

xx

Cassie
9th November 2009, 09:07 PM
Sounds like that was a really positive first step! :) and lots happening already, brilliant news. I am so pleased for you. Fingers crossed this helps you lots. Take care and rest up for this evening, it's pretty tiring all that travel. :squeeze: xx

GillyG
9th November 2009, 09:57 PM
Oh Lyssie, that does sound very positive :D Here's hoping you're on the right path to a pain free life :squeeze:

lyssie
9th November 2009, 10:30 PM
Cassie - Yep deff was a good first step :)
Gosh the traveling is awful, lol. You take it easy! *Hugs* x

Gilly - I'm feeling a tad more positive on my outlook on life right now (as dramatic as that sounds...) and I am just pleased that the Dr is actually willing to help me and understanding where I'm coming from and she's lovely, AND knows what she's talking about which means I am glad and really super greatful for that!

I'm exhausted now,

xx

Mustang Sal
9th November 2009, 10:34 PM
I'm so pleased for you honey! I've got a really good feeling about this too :)

It's so important to get a doctor who understands what page you're on, and it sounds like you've found one - yay!

Fingers crossed those meds start working soon :squeeze:

carolad
10th November 2009, 10:49 AM
I am just pleased that the Dr is actually willing to help me and understanding where I'm coming from and she's lovely, AND knows what she's talking about which means I am glad and really super greatful for that!




I'm so pleased to hear you had a positive first appointment :) I think you are right - having a supportive, sympathetic doctor is SO important. Just having someone acknowledge what you are going through means a lot - such a change from the usual 'scoliosis doesn't cause pain, its all in your head' type attitude of many doctors!

I hope this really works out for you Lyssie - you deserve a break xxx

lyssie
10th November 2009, 05:30 PM
Sally, thank you so much hun, thank you for being so supportive and just fab! I know it's early days but I too have a good feeling about this and the first impression of my experience is really great! :) *much huggles* Yep it really is like a weight off your shoulders when you find a nice supportive Doctor! I will call her secratary tomorrow to see what's happening etc. with the physio and CBT. I guess I need to call my insurance as well, lol.

I started the first BuTrans patch today and the Cymbalta too,

Love from Lyssie xx

GillyG
10th November 2009, 09:58 PM
It's lovely to hear you sounding so positive Lyssie :)

Would you like me to move this thread to the Non Surgical room, to keep all the treatment stuff together?

lindaaanderson
11th November 2009, 07:31 AM
Lyssie this sounds really positive - so pleased for you.
Let me know the next time you are in London and perhaps we can meet for a coffee?
As ever apologies I always seem to be the last to post on here ...
Linda xxx

lyssie
11th November 2009, 09:54 AM
Thanks Gilly that would be fab to move it to the Non-Surgical room :)

I'm feeling positive about the whole thing, but a little down this morning so have called my CPN who will get back to me to have a chat. I don't know why I feel so down this morning! It's all so overwhelming! LoL...

Linda thank you so much hun, And don't apologise! Ohh I'd love to meet you for a coffee, that'd be fab! I'll let you know when I'm next down in London (which I might be able to let you know today or quite soon as pain Dr wants to see me in 2 weeks) and if you're not fee then I'll even pop down when I don't have an appointment :) I'd love to meet with you.
Hope you're okay, xx

GloomCookie
11th November 2009, 10:13 AM
Thanks Gilly that would be fab to move it to the Non-Surgical room :)

I'm feeling positive about the whole thing, but a little down this morning so have called my CPN who will get back to me to have a chat. I don't know why I feel so down this morning! It's all so overwhelming! LoL...

Linda thank you so much hun, And don't apologise! Ohh I'd love to meet you for a coffee, that'd be fab! I'll let you know when I'm next down in London (which I might be able to let you know today or quite soon as pain Dr wants to see me in 2 weeks) and if you're not fee then I'll even pop down when I don't have an appointment :) I'd love to meet with you.
Hope you're okay, xx

Honey you have been through sooooo much, I'm not surprised you're feeling a bit bit down; your emotions may well be a bit up and down while all these various things are being sorted, don't beat yourself up about it! Have a hot chocolate and watch something funny on TV or listen to some tunes and think about how awesome you are :heart:

lyssie
11th November 2009, 10:21 AM
Aww Els bless you, thank you, thank you, thank you... Movie it is! :) I guess I am going to have my feelings a bit "all over the place" sort of thing with a lot happening. Because there are SO MANY feelings inside of me! But that's only natural I recon. *hug* Hope you're okay today, xxx

GillyG
11th November 2009, 07:04 PM
Thanks Gilly that would be fab to move it to the Non-Surgical room :)


Done :D

lyssie
11th November 2009, 07:49 PM
Thank ye :)