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cdugar
11th July 2009, 04:38 PM
:):DI had polio at 18 months old and developed an 's' curve around 9 or 10 years old. I was fitted with a milwaukee brace. It did no good, I had to sleep with it, also. All it did was tear my clothes. I was ridiculed by my classmates. I developed a complex. I am now 64 years old. I have never been a candidate for surgery because of the location of the top curve. It is a cervical curve. And it was an 82 degree cobb angle. The bottom curve was easy to remove and is no longer a problem. The only surgery ever offered to me was to remove part of my shoulder blade to make my rib hump appear less. Of course, I said no. I was always in a lot of pain and visited different spine specialists. I was finally told in 2007 that there was nothing left for me except spine shots. I think you can have only 5 and they are expensive. I don't really know that, the doctor wrote the prescription and everyone that I told said I could only have 5 and they were expensive. The doctor also said that I could get electric pulse therapy to help the pain (I don't know the official name) so, I called Dr. Kelvie Culpepper at Poplarville Clinic and asked if she offerred physical therapy. She told me she was going to be going to a seminar offerred by Dr. Woggon with Clear Institute on Scoliosis. She has continued to study under him and I have continued to be a patient since and have gone from an 82 degree cobb angle to a 40 degree cobb angle.
I am glad that surgery was not an option for me. I have had friends that had the surgery and as they got to be in their 50's and 60's the cages started pulling away from the spine. I had one of the worse cases of scoliosis, but I had a better turnout than they did. I encourage all of you, you can always have the surgery, why not give therapy a try. You will know very shortly if it's working for you. They set up measurements, so that you can always tell if you are advancing or not. I started out going to therapy 3 days a week, and now I'm at 1 day a week. When I get further along I'll only be going ocasionally. Remember, I've had this since I was around 9 or 10 years or even before. If you have surgery, you'll be stuck with a stiff spine and pain forever. Not even to count all that you have to go through worring about if the surgery goes well or not. Recouperating..

mark
11th July 2009, 04:42 PM
moved into non surgical forum as this is the proper place for non surgical discussions

greenhouse12
11th July 2009, 04:43 PM
Therapy isnt an option for most of us as it only helps stabilize the curve and doesnt fix it ......

mark
11th July 2009, 04:57 PM
I seem to recall reading one the Drs posts that the cobb angle was number 12 on one of the lists he has published and he deemed that the cobb angle was a fairly inconsequential factor in treatment. However i could be wrong with that recolection. I'm pleased you have managed to reduce your curve its all great to read successful stories.

In relation to your friends in your age group, surgical techniques have moved on imeasurably since they had there surgeries so its no comparison at all

Dr. Stitzel
11th July 2009, 05:00 PM
I seem to recall reading one the Drs posts that the cobb angle was number 12 on one of the lists he has published and he deemed that the cobb angle was a fairly inconsequential factor in treatment. However i could be wrong with that recolection. I'm pleased you have managed to reduce your curve its all great to read successful stories.

In relation to your friends in your age group, surgical techniques have moved on imeasurably since they had there surgeries so its no comparison at all

Cobb angles are worthless, but the general public doesn't understand anything else........at this point. Hense, I am left with no choice but to report my results in a manner the general public can relate to.....regardless of its relevance.

Dr. Stitzel
11th July 2009, 05:59 PM
:):DI had polio at 18 months old and developed an 's' curve around 9 or 10 years old. I was fitted with a milwaukee brace. It did no good, I had to sleep with it, also. All it did was tear my clothes. I was ridiculed by my classmates. I developed a complex. I am now 64 years old. I have never been a candidate for surgery because of the location of the top curve. It is a cervical curve. And it was an 82 degree cobb angle. The bottom curve was easy to remove and is no longer a problem. The only surgery ever offered to me was to remove part of my shoulder blade to make my rib hump appear less. Of course, I said no. I was always in a lot of pain and visited different spine specialists. I was finally told in 2007 that there was nothing left for me except spine shots. I think you can have only 5 and they are expensive. I don't really know that, the doctor wrote the prescription and everyone that I told said I could only have 5 and they were expensive. The doctor also said that I could get electric pulse therapy to help the pain (I don't know the official name) so, I called Dr. Kelvie Culpepper at Poplarville Clinic and asked if she offerred physical therapy. She told me she was going to be going to a seminar offerred by Dr. Woggon with Clear Institute on Scoliosis. She has continued to study under him and I have continued to be a patient since and have gone from an 82 degree cobb angle to a 40 degree cobb angle.
I am glad that surgery was not an option for me. I have had friends that had the surgery and as they got to be in their 50's and 60's the cages started pulling away from the spine. I had one of the worse cases of scoliosis, but I had a better turnout than they did. I encourage all of you, you can always have the surgery, why not give therapy a try. You will know very shortly if it's working for you. They set up measurements, so that you can always tell if you are advancing or not. I started out going to therapy 3 days a week, and now I'm at 1 day a week. When I get further along I'll only be going ocasionally. Remember, I've had this since I was around 9 or 10 years or even before. If you have surgery, you'll be stuck with a stiff spine and pain forever. Not even to count all that you have to go through worring about if the surgery goes well or not. Recouperating..

Way to GO Cduger!
I know how hard a patient has to work to make something like that happen.......you earned each and every degree! I am so happy and proud of you....

Isn't Dr. Kelvie Culpepper the BEST! I LOVE her spirit! I think I might love yours too.

Awesome......thank you so much for having the courage to share you story of hope and success!

mark
12th July 2009, 06:09 PM
My cosmetic problems as you may see from my pic have reduced me to several suicide attempts so if cosmetic reasons is the only reason i want surgery then my surgeon is keeping me alive because if he said no i'd be leaving a wife and child because if surgery was not an option to me i have already worked out the way i am going to take my life. If that means i'm pro surgery then so be it but to be honest if someone said i don't want surgery i would respect there decision, i respect any ones informed decision, i just hate it when any one, either a dr, surgeon, physio, chyro, who ever makes that god like decision for them

mark

cdugar
16th July 2009, 11:57 PM
Mark, I see from your picture that you have a bad curve, and I do understand your pain and your need for surgery. But, I also have a bad rib hump. Mine starts in my cervical spine and came down under my shoulder blade. It made my shoulder blade stick up horribly also. You cannot believe how much better it is. I don't know how to add the pictures of my cuvature to this post, but my beautiful 16 year old granddaughter is coming next week and she will help me. You'll be able to see. I'll keep you updated on my progress. Same as you I was always in pain. So I do identify with you on that. Take care, don't lose hope, it's everything.
Cora

mark
17th July 2009, 12:48 AM
Its not all about scoring brownie points, these studies both pro and negative studies seem to me to be so inhuman. Its about time we took into account the individual and looked at the cost and the price the individual has to pay, i wish the studies that we all read and know about and can quote took persons felings into account instead of point scoring.

After all its us individuals that should be the priority not someones study, not some ones PHD, not some ones ego

where the ones who count, us who suffer from this shitty condition

i just want to get the hman aspect over, the sufferer not the surgeon, practitioner, physio

US the ones who have to cope with the shit we have to cope with day to day, us who are scared both physically and psycholigically

after all where humans, and we deserve respect

cdugar
17th July 2009, 01:54 AM
Mark, the only thing that I can tell you is that we are so much better off than we were 10 years ago. I don't think there was any hope at all for most of us. One way or the other both of us are going to get to where we need to be. AT least now we can get on the internet and go to a web site and find someone that knows exactly where we are, someone that knows the pain, the frustration, the exhaustion, the lack of hope (most of the time). Every stage that we can be, we can find someone that has been there and understands. We can find a doctor, a chiropractor, a phiso who has studied and worked and studied and toiled and sweated to try to help us. Sure they are making money, but they really do care. Or most of them. Or some of them. Some are in for the recognition and prestige, but face it, to get prestige and recognition they have to do outstanding work to get there. And, we're going to profit from it, be it surgery, or manipulation. All we have to do is hang in there, keep a good attitude and lock on to good leads. Trust your instincts about when something might be a good way to go and follow it while looking for other things. You know you can always make a change in things as long as you are alive, but once you are gone you never ever have the option to make things better. You could have just been right around the corner from a real break through. I told my chiro a little about you,(I hope you don't mind) she was so impressed, she said she wished you were near so that she could treat you.

mark
17th July 2009, 10:24 PM
Hi Cora

Nah, i don't mind you discussing my case with anyone, more who know about us the better, i doubt very much they would be much she could do for me my curves over a 100 degrees and the vertebra are wedged, but tell her thanks for the offer

Pancake
18th July 2009, 07:59 PM
Hi Cora

Nah, i don't mind you discussing my case with anyone, more who know about us the better, i doubt very much they would be much she could do for me my curves over a 100 degrees and the vertebra are wedged, but tell her thanks for the offer

Would you mind discussing your location information?

"Location: East Boldon, Nr South Shields, inbetween Newcastle and Sunderland on the North East coast of England"

While that looks very thorough, wouldn't it be quicker and easier to just list your latitude and longitude? :D

ETA: East Bolden, Tyne and Wear, UK
Latitude: 54 57' 34" N
Longitude: 1 25' 16" W

I, for one, could find you much quicker with that but I'm not familiar with the UK of course. :)

Simon
19th July 2009, 04:56 PM
Hey Why would you want longitude and latitude info for ????

Pancake
19th July 2009, 06:35 PM
Hey Why would you want longitude and latitude info for ????

To make a joke. :)

ETA: It just seems like a very long description to let people know where he lives.

Sorry it fell flat.

Simon
19th July 2009, 07:36 PM
Ok .. Pancake

mark
19th July 2009, 11:10 PM
Nah it didnt fall flat it made me chuckle and guess what i'm changing my address (at least for a week anyway lol)

Pancake, you made an old man laugh thankyou very much :D

Pancake
19th July 2009, 11:37 PM
Nah it didnt fall flat it made me chuckle and guess what i'm changing my address (at least for a week anyway lol)

Pancake, you made an old man laugh thankyou very much :D


LOL!

Thanks Mark. My humor tends to be dry sometimes. :)

I really had no idea if that is common for folks in the UK to describe where they live or not.

ps. you are about 10 years younger than me. ;)

mark
19th July 2009, 11:52 PM
You look a lot longer than me

Pancake
20th July 2009, 12:10 AM
You look a lot longer than me

Is that a pun!?!

Very clever!

mark
20th July 2009, 12:21 AM
No pun intended, you come accross as very youthful in your posts, in fact your a breath of fresh air for this forum, i just read your signature, mum of teenage twins yikes, i got one daughter and she's only five ( i started late) and i'm shattered and can't keep up with her and her mum (please don't tell me i get any easier lol) friends have been telling me that for years. You sound like a good mum

mark

mark
20th July 2009, 12:25 AM
Sorry, i'm going to amend that you are a good mum

mark
20th July 2009, 12:26 AM
Please don't tell me your a dad lol

Pancake
20th July 2009, 12:26 AM
Ah okay. :)

"A lot longer" sounded like "a lat lon" which is what I call it in my work. :)

I wish I was more sophisticated and more of a world traveler. I might have heard that phrase before now. :(

Pancake
20th July 2009, 12:28 AM
Please don't tell me your a dad lol

Not last I checked. :)

And my husband would be more than a little miffed at this point I think if that were the case.

Thanks for your kind words.

sharon

mark
20th July 2009, 12:34 AM
Heeh Hee Pancake, sorry, i meant a lot younger, it was a slip of my long fingers, sorry i really meant younger, no wonder you were confused

Yikes i must engage brain before fingers on the old key board. No wonder you were confused :)

Pancake
20th July 2009, 12:42 AM
Well actually I am confused enough that I just assume it is another incidence of it. :)