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bluestone
31st July 2008, 09:45 PM
Have any of you used spinecor bracing? Im looking into it at the moment as it does say it has been successful in some adult idiopathic scoliosis in managing pain and even halting progression of curves.I would love to hear from anyone who has tried it.

mark
31st July 2008, 09:48 PM
Hi bluestone, you may wish to pm sealy, her daughter has been in this kind of brace for a few years, i hope it works for you

mark

Lucy7
31st July 2008, 11:42 PM
Bluestone,

If you don't mind me asking, what degree is your curve and about how old are you?

I am 37 with an 35/36 degree S curve and I must admit I want to know more about spinecor. I just don't know if it works or if it is one of those things that gves people like you and I false hope.

I have an appointment in September and will ask about that kind of thing. What have you learnt so far?

Sorry about all the Q's!

Lucy

GillyG
1st August 2008, 01:16 AM
Rugby Laura's daughter, Immi, is also in a spinecor brace, although I must admit I hadn't heard of it being used in adults before ...

nutmeg
1st August 2008, 02:39 AM
Looking at the FAQs on the SpineCor webpage (http://www.spinecorporation.com/English/index.htm) it appears that using SpineCor for adults is new, and they are still evaluating whether it is beneficial.

carolad
1st August 2008, 11:31 AM
Hi Bluestone

I know of an elderly lady who is using it, and it does seem to help a bit with her pain. As Nutmeg says, it is quite a new development using this with adults, so its all a bit experimental at this stage.

Sealy
1st August 2008, 03:26 PM
Hi,

My daughter wears the Spinecor brace and we love it! She's almost eight years old. I have come across a few adults who wear the brace and some complain that the straps cut into their stomach and it can be quite painful while others have no complaints and even state that they've experienced curve correction in the brace. Whether the correction will hold once the brace is removed is anyone's guess. My layman's guess is that it won't.

bluestone
2nd August 2008, 12:12 PM
Hi Lucy7,
Im 42 years old and I have kyphosis with a 60 degree thoracic curve.I have a lot of pain and feel it is progressing which is why I am interested in spinecor-a couple of older ladies on the american forum have had success with it.Like you I am a little wary though as I think its very expensive.Google spincor as they have a website with all the facts.I am waiting to be seen again and will mention it.Im also interested in case my 12 year old daughter needs to be braced.She is waiting to be checked as there are worrying signs with her back.Let me know how you get on.

GillyG
2nd August 2008, 09:30 PM
Im 42 years old and I have kyphosis with a 60 degree thoracic curve.I have a lot of pain and feel it is progressing which is why I am interested in spinecor-a couple of older ladies on the american forum have had success with it.Like you I am a little wary though as I think its very expensive.

I'm not sure if it would be available for adults on the NHS, but your daughter would certainly be able to get the Spinecor brace for free, if she should need treatment. There are several centres in the UK that prescribe it (I know Mr Cole does here in Sheffield) so there should be somewhere within reach for you.

Cassie
29th August 2008, 11:22 PM
Does anyone know if an adult who has already had a fusion (not instrumented) could wear a Spinecor brace and if it might help with reduction of pain/curve?

Just wondering if it might help at all ........

Thanks :)

Unregistered
21st October 2008, 09:08 AM
hello

I have used the spinecor brace for a year now and not only i see improvements but the pain has also decreased... in fact my doctor at http://www.scoliosisspecialists.com has told me that my curve has decreased as well... anyways i recommend anyone with idiopathic scoliosis to try the spinecor soft scoliosis brace.. it really got me attracted to it cause i could wear it under my clothes and no one notices..

Jessica

jasonputt
22nd October 2008, 04:19 AM
any of the adults wearing the spinecore brace have had rod fusion? i been following the brace for several years hopping could help with the crippling pain i suffer,but yet been 2003 since first adult was fitted with one since only few hundred adults wear them they are yet to do a study on the actual benifits for adults, if brace was alot cheaper id just go try for self but since it's not cheap i want know as much expirence as possible from adults.

Sharon
16th November 2008, 12:25 AM
Hi everyone. I wrote an atricle earlier this year on SpineCor (check it out at sharondunn.com, the article is called Amazing Brace). My son got the brace last year at the age of 22 for terrible pain due to scoliosis. He is now painfree. I've received many letters from adults who have had similar great success with the brace. If you have any questions, you can write me at sharondunn.com

Sealy
17th November 2008, 02:22 PM
I read your article! :D It was in Macleans. One of the kids featured was Ruth's daughter Esme. It's such a shame none of the doctors in Canada prescribe the brace. I wrote to our previous ortho and I got the impression that doctors are waiting for long term results before prescribing the brace. They seldom rush into things - might give them whiplash! Dr. Weiss who is involved with Schroth Therapy and is a proponent of non-operative measures blasted the Spinecor brace in a recent article. His study dealt with children going through the adolescent growth spurt which is a volatile period. I do what I feel is right and we've been getting great results with the brace and I'm very thankful this option exists for my daughter. I wish it were available to more children with Juvenile Idiopathic Scoliosis. We go to Montreal and see drs Coillard and Rivard and will continue to do so until my daughter finishes growing. If her curve progresses during the adolescent growth spurt, I'm not going to be one of those people going down with the ship! I will switch braces, if necessary.

Sealy
19th December 2008, 02:25 PM
I wrote to Dr. Weiss regarding his study and as I’ve mentioned, he has very strong views against the Spinecor with regards to the adolescent growth spurt. In his study, there was marked deterioration after 9 months of wearing the brace. Up until then, the brace had close to 100% success. So I wanted to know why the deterioration at the 9 month mark???? I call this investigative journalism. ;) In personal correspondence, he states he had problems with the elastic bands losing tension after two weeks from initial fitting and many of the bands had to be replaced at that point. Any parent who is familiar with the Spinecor knows that the bands do lose their tension shortly after fitting but they don’t have to be replaced but rather tightened! In the Weiss study, the bands were replaced often! From personal experience with Dr. Rivard and Dr. Coillard, at followup visits the bands are tightened rather than replaced altogether. Furthermore, when progression was noted he changed the way the bands were placed on the patients in question. I don't know if doing this had detrimental effects on the outcome. One can only speculate???? Fluctuations are not uncommon and to be expected throughout treatment but overall it should stay within the same range.

Here is a letter recently published in Spine. This is dr. Rivard’s response to the Wong “Study”

To the Editor:
Re: Wong MS, Cheng JC, Lam TP, et al. The effect of
rigid versus flexible spinal orthosis on the clinical efficacy
and acceptance of the patients with adolescent idiopathic
scoliosis. Spine 2008;33:1360–5.


As one of the original researchers involved the development of SpineCor I have read with interest this paper by Wong et al, and I am concerned about the poor results of the SpineCor group. Although on the face of it this seems a well-designed study, I believe the methodology of the study is flawed and is the cause of the poorer comparative results of the “s” group.

It is important to note that the authors of this article are not formally trained in SpineCor treatment. My colleague Dr. Coillard gave a short introductory presentation to a group of physicians in Hong Kong but this did not qualify them to use SpineCor. A SpineCor brace cannot simply be taken out of a box and applied to a patient. Potential providers must complete rigorous training and certification criteria before they are considered effective providers.

No individual in the Hong Kong region has ever attained full certification in the SpineCor system. This raises the ethical issue about the use of SpineCor by unqualified professionals in this study, and because of the lack of training and experience the validity of the data they report.

Demonstrating this group’s lack of understanding of SpineCor, is the picture under Figure 2; the SpineCor brace is fitted without thigh bands, the comfort band is fitted incorrectly, and unsuitable clothes are worn underneath the brace instead of a body suit.

Fitting the brace without thigh bands makes the action of the brace ineffective by allowing the base to ride
up taking the tension out of the corrective bands. The incorrectly fitted comfort band will also reduce the effectiveness of the corrective bands, and the clothes worn by the child in the picture will cause discomfort and create problems toileting.1

The authors state their results were “very different from the findings of the SpineCor developing team,” which is clearly the case. However, I believe this is because of their lack of training and understanding, and their inability to correctly fit and maintain the brace. The results from independent international research projects carried out by trained providers show comparable results to the development team.1

The authors do not state how different their rigid bracing results are compared with other rigid bracing studies. Janicki et al recently reported only a 20% to 25% survival rate of their TSLO group. Perhaps the extraordinary results of the Wong study can be explained by the small sample or the fact they did not adhere to the SRS protocols on bracing studies published by your review in September 2005.


After the SRS reporting guidelines it has been shown SpineCor was 4 times more effective than TSLO type rigid bracing in stopping progression of the scoliotic curve. 2,3 SpineCor was also 71% more effective in stopping the progression to surgery compared with TSLO.2,3


For SpineCor to be applied by insufficiently trained providers is negligent and for these same providers to conducted a study on its efficacy is unethical. I believe their lack of training alone invalidates the SpineCor results of this paper and for certain this is the case when it is clear the brace was applied incorrectly.


Charles H. Rivard, MD, FRCS(C), FAAOS, FACS
University of Montreal
Montreal, Canada

mamaof3
13th May 2011, 10:01 PM
Hi Sealy glad to hear your daughter is doing well on SpineCor with Dr Rivard. One week ago, my 9 year old daughter was diagnosed with an s-shaped 16/21 scoliosis. The orthopedic team here in Calgary want her wear a Boston brace for the next 5 years. I have been researching braces and believe the SpineCor to be the best choice for my daughter. How does the process work for out of province patients? His office is out on holidays until May 25. Any information would be appreciated. I've been reading everything I can get my hands on about SpineCor.

tonibunny
13th May 2011, 10:41 PM
Hi Mamaof3,

I'm afraid that you've replied to a thread that is over two years old; Sealy no longer posts here. You may like to contact her through her Yahoo Group Infantile and Juvenile Scoliosis (http://health.groups.yahoo.com/group/Infantile_Juvenile_Scoliosis/), or I can put you in touch with her directly if you'd prefer. She's very a helpful and knowledgeable lady :)

Toni xx