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View Full Version : Mark's appointment with Mr Gibson



mark
22nd July 2008, 03:00 PM
Hi all

Well as most of you know my appointment was today, it started really well got to the hospital which felt really nice, clean and friendly, was asked to go get some x rays done which only took 10 minutes (the last lot i was waiting 2 hours), radiographer was really friendly and i had my first ever x rays done standing up (bonus) even bigger bonus was that were done before the consultation rather after has always had been the case in the past.

After the x rays went back to wait to see Mr Gibson, this is where it all went a bit pear shaped, it wasnt Mr Gibson i was asked to see but a regstrar, bad start, went in and i knew from the off things were going to be tough, i asked him what my curve measured and he said about 70 degrees, then he startede down the old line of how dangerous surgery was etc, etc, and started talking about physio and i waswnt a candidate for surgery. At which point i stood up for myself (for a change) and i said had come to see Mr Gibson as he was the specialist in adult complicated cases. he said no bother

20 minutes and i am sat with Mr Gibson, what a lovely man he is, he is caring, sensative and thorough in his examination and assessment, he sat me down said that curve was over 100 degrees (although he didnt give it exact and i forgot to ask) but what the hell, he said it was a really nasty severe curve, he then examined me more thoroughly than i ever had before, not just the adams bend but he had me lieing on front and back and messed with my calfs and legs, he also added that my back was very rigid (what ever that means), i gues i should asked more questions, now i'm thinking about it, i suppose they will save for another day

at the end he asked me what i wanted and i basically told him surgery at which point he started making notes in his dictaphone, at the end he reiterated what surgery entails which i told him i knew

The upshot is he is sending me for a MRI scan and i have to make another appointment when that letter comes through, he said that most surgeons will operate between 60 and 70 with some waiting till 80 degrees, which i took to mean that he thinks i am a candidate for surgery (well he must or he wouldnt be sending me for a MRI), he talked of surgery but didn't ask if i was commited to it, i think he took by the way i was talking that i wanted surgery, but that discussions probably for the next visit, which i going to be following the MRI

He also said that due to the degree of curve and the thick cartlidge that has developed over the years down my spine, i sit with my back right up against the chair and have done all my life which i presume has caused the growth, he said if surgery was an option he would have to go in from the front and the back, i took this mean anterior and posterior release could be wrong? can anyone help, if so would that make it a two stage operation, sorry for the questions i should have asked him but i was an emotional wreck by the end.

I left shaking his hand, i asked to shake it as i was so relieved i had met this wonderful person, so caring and understanding its no garantees of surgery but i have hope, i feel so up today, i know what degree my curve is for the first time ever, i know the complications, i think thats about it

O and Jean the flying monkey pin worked, i didn't take no for an answer from the first guy i saw, i pushed, got to see the guy i wanted, i had a proper consultation and i have given it my best shot, i couldn't be happier

Thanks everyone for your support

Mark

GloomCookie
22nd July 2008, 03:36 PM
Mark that is wonderful, wonderful news, I am so proud of you for standing up to that guy! It all sounds very positive - I am so pleased for you, that's fantastic.

:ghug:

Well done, this is the start of getting it sorted and we're behind you all the way.

RAH!! xX

alyssa
22nd July 2008, 03:55 PM
Oh Mark, what a day, WELL DONE for standing up for yourself with the first guy. That must have taken guts and I'm so proud of you. Mr Gibson sounds like a lovely fella which is succh a good thing, and makes it so much easier.
So by the sounds of it you're a good candidate for surgery, right? The MRI is a good sign too.

You deserve a nice hot bubble bath tonight, a nice soak! =] x =D

GO YOU! You deserveall good things,

sara1
22nd July 2008, 04:07 PM
Thats really great Mark, and good for you standing up to the first person you saw. Good job to wasnt it. Looks like youve got the ball moving now, im so pleased for you thats fantastic news.:D:D Well done Mark


Sara
xx

Simon
22nd July 2008, 04:25 PM
Mark i have a tear strolling down my face now ....Am so made up for you it sounds to me that you will have the surgery mine was not ridgid so they done it posteriorly so yes they will have to go in both ways but for having a mri scan is a good sign mate i had one to before my 2nd appointment then they put me on the list ..............

well done yes yes yes yes yes am so proud of you brother i really am ...........

Great news my friend ...................................

Any questions about it mate let me no

Simon

sins
22nd July 2008, 05:04 PM
This is excellent news Mark,not only have you found a consultant willing to explore every option open to you but you seem to have found your voice and your inner strength.
At this point he will not commit to surgery,he'll need all the info from the MRI scan.
He certainly appears to be opting for the two stage procedure for correction, but you already knew the enormity of the surgery involved.
If he doesn't feel he can do the surgery,then ask him to refer you to someone who can.From what I've heard,he's more than capable though.
You could also chat to your Gp about physio though,it might relieve some of the pain while you're waiting for things to progress with your appointments.
I'm very very proud of you. Even though we're there for you,when it came to the crunch, you took matters into your own hands and did what needed to be done.
Hope you get a chance to sit down this evening with your wife and go through all the info with her.
Well done again.
Sins

carolad
22nd July 2008, 05:08 PM
Mark i have a tear strolling down my face now ....
Simon

Me too, I was very moved when I read your post Mark :) I'm just SO glad that you got to speak to a kind human being (who also happens to be a good doctor by the sound of it!) You have been messed about so much, and treated so unfairly, you deserve so much to have someone treat you with respect and understanding.

And aren't you VERY proud of yourself for demanding to see the consultant? You see, you really are much stronger than you give yourself credit for :clap:

Lets hope this is the beginning of the next wonderful phase of your life xx

jfkimberly
22nd July 2008, 05:25 PM
How does that registrar get off telling you the wrong measurement and giving you the brush-off?! 70 degrees?! What the heck?

Mark, I am so proud of you for sticking up for yourself and (politely) demanding to see Mr Gibson directly! You would have had a very different result from that appointment if you had not done that. And it does sound like you're on the track for surgery, which is super! Congratulations!

mark
22nd July 2008, 05:30 PM
Thanks for the well wishes everyone, they mean so much, i couldn't have done it without you lot

Amazed Jean
22nd July 2008, 05:40 PM
WOO HOO MARK! I am so proud of you. You must be over the moon! See you do have power and you know you deserve to be treated well! Whatever the outcome you just rocked it!:jump::jump::jump:

madmclw
22nd July 2008, 06:05 PM
Oh Mark that has made my day :) Is this not the day that you have been waiting for for years and years and years? I am so proud of you, and I know that everyone else is too. I hope that this appointment has not just shown you that something can be done about your back, but that you also have the inner strength needed to get it done. :squeeze: I'm thinking you need a celebration of your own tonight :squeeze:



:mwave:

lady p
22nd July 2008, 06:38 PM
Well done Mark, I am so pleased for you for stsnding up for yourself and getting to see the consultant. And it was worth it ..... things can only get better :-)

Take care *hugs*

cork_lass
22nd July 2008, 06:50 PM
Mark I'm writing this with tears rolling down my face....I'm so happy for you that things went so well for you. Well done for finding the strength to ask to see Mr. Gibson and not settling for what the register was telling you.
I wish I was there to give you a big hug but this will have to do :squeeze:

Sealy
22nd July 2008, 07:41 PM
Awww....that's such a great story Mark!!!! You really know how to stand up for yourself! Good on you! :niceone:

Abbi
22nd July 2008, 07:57 PM
Excellent news Mark! I am so glad you were able to stand up for yourself, speak out and get what you wanted. Mr Gibson seems like a brilliant consultant. :squeeze:

GillyG
22nd July 2008, 08:39 PM
I've been wickling about you all day Mark and have just got in and gone straight to SSO to find out how you went on.

I can't even begin to tell you how happy I am for you. I had a good feeling this appointment would be positive and I'm so proud of you for bypassing the registrar. Why do they always give people the 'surgery is not an option' crap when they basically don't have the experience or expertise to be sure of that, as was proved by the entirely different reaction you got from Mr Gibson - who sounds absolutely brilliant :D

Well, you already know that you're not in for an easy ride, but isn't it an amazing feeling when someone is willing to help you? I can still remember how I felt at that first appointment with Mr Cole. For the first time in my life I actually felt worthy, if you know what I mean? The fact that he was willing to help me gave me a huge boost to my self image, which I hadn't realised until then just how poor it had become ...

Good for you Mark, you're finally on the path to what you've deserved for so long :D

tonibunny
22nd July 2008, 08:52 PM
Mark!!!! :cheers:

I am so happy for you - I knew that there would be surgeons out there who would be willing to help. Many congrats on sticking to your guns and making sure you saw the consultant!!

Like Gilly, I also know how good it feels when you find that someone wants to help! I hope now that you can start looking forward to the future with optimism :D You're on the road mate xxxxx

lisalou
22nd July 2008, 09:04 PM
whoooooooo hoooooooooooo! go get em mark! well done!
im so pleased for you xx

Thaleias spirit
22nd July 2008, 09:07 PM
Mark, I am absolutely thrilled that you finally found someone to listen to your full story and do a full assessment. Hopefuly he will be able to do the surgery for you. You realy deserve it. I can imagine the relief you felt when you met him and he talked through it all.

*hugs*

Seeking_help
22nd July 2008, 09:37 PM
Good for you Mark. I think the MRI will help him determine what the surgical approach will be. I have a rigid curve as well (although my curve is aprox 80 degrees) - and the surgeon suggested a posterior only with osteotomy ( a route you may have as well).

In any event - good for you. Start writing down questions as they arise so you are prepared for the next meeting.


*Edit - My jaw dropped when the registrer said your curve was only 70 degrees (Ive seen your pictures). Clearly not very well trained. Good on you for standing up.

GillyG
22nd July 2008, 09:45 PM
*Edit - My jaw dropped when the registrer said your curve was only 70 degrees (Ive seen your pictures). Clearly not very well trained.

Indeed :p ... bit worrying though that so many of us could have estimated his curve more accurately with absolutely no medical training whatsoever :???:

Bows
22nd July 2008, 10:35 PM
:woohoo::jump: Way to go Mark, thats fantastic news i will be keeping my fingers crossed and my toes, infact everything i can cross i will :fingersx::squeeze::clap::clap2:

MOB
22nd July 2008, 11:04 PM
Well done Mark xxxxxxx

Seeking_help
23rd July 2008, 12:02 AM
Indeed :p ... bit worrying though that so many of us could have estimated his curve more accurately with absolutely no medical training whatsoever :???:

Thank goodness for google lol

Lucy7
23rd July 2008, 06:31 AM
This guy sounds so lovely. I love the fact that he is so thorough with you. This is such a good start. I know nothing about surgery but even I can see that it looks a great start. It also looks as if you already have a positive relationship with him which is also very important.

Ooooooh, I'll keep on praying,
Huge hug,
Lucy

Louisse
23rd July 2008, 09:39 AM
Hi Mark
It was great to log on and read this post - very encouraging news! I'm so glad it went ok yesterday. I too, was thinking about you all day.
Best of luck for the future.
Louisse

andrea
23rd July 2008, 10:02 AM
That's fantastic news Mark, and well done you for being determined enough to get what you wanted. The consultant sounds lovely and I really hope that surgery goes ahead for you. Fingers crossed you get that MRI date soon.

Andrea x

mark
23rd July 2008, 04:13 PM
Thanks again everyone who's posted, your comments mean so much to me

Phoenix
23rd July 2008, 06:05 PM
Who did the registrar think he was? Sometimes they get off on the power trip but imagine if you had been put off and sidled out of his room as it would have been so easy to do. Thoe apointments are emotional enough as they are. Well done for asserting yourself and asking to speak to the organ grinder and not the monkey.

BeckyH
23rd July 2008, 07:16 PM
mark that's fantastic, congratulations and well done for being so brave. i'd post a longer comment but i've just got home and am rushing around trying to catch up :D

Little Ali
23rd July 2008, 08:29 PM
:bdance::boing::clap::niceone::mwave::cleader:


YAY!! Congratulations and well done!! I am so unbelievably chuffed for you!! I know it takes alot of courage to stand up for yourself sometimes and you should be very proud of yourself!! We are! Although, that is terrible getting the size of your curve that wrong!!

Mr Gibson sounds fab and I really hope this is the start of a new start for you!

Go Mark!! :squeeze:xx

Mike
23rd July 2008, 08:53 PM
I've been out of the loop a bit recently, and only quickly read your posts here and elsewhere Mark.

Well done for getting what you wanted from Mr Gibson, and well done for telling the Reg. what you wanted. It's about time someone listened to you properly after all the years of pain (physical and emotional).

Made up for you :mwave:

Vicki
24th July 2008, 11:32 AM
Slightly belated reply but huge congratulations for standing up for yourself like that Mark, looks like you're well on your way to getting the treatment you need.

You might have to give me a motivational speech before my next appointment! :D

Hans Datdodishes
24th July 2008, 08:11 PM
That's excellent news Mark and I hope it all works out for you and you get the positive results you deserve :)

sally333
14th September 2008, 01:35 AM
Hi Mark
I am just outraged that you have not been able to have surgery yet for your Scheuermann's kyphosis. I had surgery for this almost three years ago and I can uderstand the pain and frustration that you must be going threw. My kyphosis was a very progresive form and I had my surgery just a few months after being seen by the doctor. I think by looking at your photo's your is progressive also. Mine was 110 degrees or more before my surgery and it is now 53 degress. It is the most painfull surgery to have. This is what my doctor told me and after the surgery I totally agree with that statement. It is just not the pain or how it looks before surgery but also the damange that it creates with your organs that makes it so dangerous. My spine was pushed into my esophgus so tightly I had horriable acid reflux and chocked on it at least 6 to 8 times while I was sleeping and actually it had started while I was awake also. No warning everything just comes right up. The lungs are squished, the stomach is pushed up and anyway it is very uncomfortable and painfull. I think some how you just need to get away and find a better spine specialist. I am 100% sure that you need this surgery and even if you end up in half as much pain after the surgery it is well worth it. This surgery will also prevent mine from progressing as I am sure the same for you. You need to have this done. I am screwd and fused from T2 to L2. My problems now are I was in a car accident and this year had surgery at C5/C6. I need one more surgery because the accident caused my T1 vertabra to fall onto my T2 one makeing me unstable. I am having surgery to connect the two surgery's together and will end up being screwed and roded from C4 or C5 straight down to L2. I will loose the ability to bend my neck at all. Right now I have all together 40 screws,two cross-links,one plate,two 1/4 inch rods that are from T2 to L2, almost two feet long. Several fusion's T4 to T11 AND C5/C6. The last three years have not been to pleasant that is for sure. I am just sad for you as I know you are hurting and I know you need the surgery. Good luck and never give up. Sorry this was so long but I have never interduced myself hear before. I was a member of the old board though. Have not been on for about two years. Man I have tears thinking of what you are going threw and still what is to come surgery or not.

Amazed Jean
14th September 2008, 05:16 AM
Welcome back Sally333.

sally333
14th September 2008, 03:03 PM
Thank you Jean. It has been almost three years since I had my surgery and I really feel that I am a lot more up on this Scheuermann's kyphosis then I was a few years ago. The time around when my surgery was done I just about new nothing about it. Alot has happened in the last three years with my kyphosis and surgerys that I have had since the first one. I have really done my homework as we all now that with Scheuermann'a kyphosis even if we had the surgery it will always be a big part of the way we live are lives.

Buffalowilliam
15th September 2008, 11:30 AM
Many congratualtions Mark on your fantastic news! glad to hear your consultant is nice, its such a relief when you finally talk to someone who can help you who appreciates exactly what you're going through. I had the posterior/anterior surgery, was all done in one eight hour operation. First four hours they made an incision on the side of my chest, collapsed my lung and then removed sections of vertebrae, then stiched me back up. Then the second surgeon made an incision from my neck to my lower back and attached the metal rods.

Stood up 24 hours after I had srugery (with a walking frame) and was out of hospital in under a week. Hope things progress quickly for you. good luck!

Simon
15th September 2008, 01:18 PM
Hey mark (brother)

How Are you not heard of you for a while hope your well and the meds are working can you give me a update as and when you feel ready

mark
15th September 2008, 08:44 PM
Hi all thanks for the warm posts, i haven't been around for a while as i have had my medication changed and its all a bit lucid at the minute, hopefully i'm getting my head together and i'm trying to eat more regularly, still have issues and i nly weight 8 stone and a bit, but the bit is the main thing

Anyone wants to check out my story have a look at the pinned thread at the top or look at the link in my signature

peace and love to you all

mark

Bows
16th September 2008, 01:15 PM
Good luck with the med's Mark,
i know how much of a struggle that can be.
keep up the good work you are doing so well:clap2:

Rachie
16th September 2008, 09:33 PM
Somehow I completely missed this thread!

I feel very proud of you for standing up to the registrar and I'm so happy that you have a lovely surgeon looking after you. At least now you know that the best will be done for you.

Rachie x

mark
22nd September 2008, 09:15 PM
Thanks Bows and Rachie, it means a lot that you are thinking of me

sara1
24th September 2008, 09:21 AM
Well done mark for fighting your corner you must be so pleased that you did aswell. Your surgeon sounds like a lovely bloke. It can be a struggle at times especially when your not used to be forceful in the first place. You have done really well im so pleased for you.

That spanish wine you recommended to me went down a treat, :D:D


sara
x