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amandad
1st May 2008, 07:06 PM
Hi Everybody,
I have been on this website before and was wondering if anybody here has been to the Scoliosis SOS Clinic in Essex. I have been for a consultation and am thinkin of going. I have a 64 degree curve but have already been fused. It was 57 after surgery so there has been some progression. They have said that they can help to bring it back to the 57 degrees.It is alot of money to spend 3000 pounds so it would be great if somebody could tell me if it is worth it.

Any advice would be appreciated.

Thanks
Amanda

mark
1st May 2008, 07:23 PM
theres lots of discussions on that site in other forums i will try and dig out the links. I don't want to prejudice things for you, but personally, if it was me, i would save your money

I will dig out the linkks for you and then leyt you decide. As i said, i would read the posts in the links i am going to provide before making any decisions

Sorry, i should have welcomed you to the site, i'm mark from the North of England, i look after this forum

I'm sorry for the reasons that hve brought you here and i really hope we can help in any ways possible

Where a friendly bunch who just want to help one another through the good and bad times

mark

mark
1st May 2008, 07:25 PM
http://www.scoliosis-support.org/modules/i...&showtopic=4855 (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4855)

http://www.scoliosis-support.org/modules/i...&showtopic=5235 (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=5235)

http://www.scoliosis-support.org/modules/i...&hl=erika+maude (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=5235&hl=erika+maude)

http://www.scoliosis-support.org/modules/i...4060&hl=schroth (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4060&hl=schroth)

http://www.scoliosis-support.org/modules/i...5882&hl=schroth (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=5882&hl=schroth)

http://www.scoliosis-support.org/modules/i...wtopic=4314&hl= (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4314&hl=)


That is just a selection of discussions on the topic

hope it helps you make a decision

mark

titch
1st May 2008, 08:38 PM
I would ask them for confirmation of exactly how this is possible. Don't get me wrong, I'm not saying it is impossible, but as you're concerned about spendind that amount of money then you need to be sure about things.

A few things to be aware of:

1) It is not at all unusual for a spine to "settle" during the first 1-2 years following surgery, and this settling is typically 5 to 10 degrees. So if the measurement of 57 is an early one following the surgery, it is most likely that it has not progressed at all since it finished fusing.
2) Between different specialists reading the same xray, there is a margin of error of +/- 5 degrees. This means that if your first measurement was optimistic, and the second one pessimistic, there has been very little change.

3) You need to know over what vertebrae the measurements were taken. It is possible, especially with shorter fusions, for the vertebrae above or below the fusion to become involved in a residual curvature. What I mean is that say you are fused T5-T12, over the apex of your curvature, with a residual curvature of say 40 degrees, over time if you have degeneration below the curvature, there may be changes so that instead of returning to straight below the fusion, a couple more vertebrae tilt in the same direction as the ones at the bottom of the fusion. This can cause an increase in the curvature, with the increase not in a fused area. It may be possible if this is the case that you could see some improvement by learning how to return those vertebrae to the position they were in after the surgery. *However*, if the change from 57 to 64 degrees has occurred only over the vertebrae involved in the fusion, it cannot be straightened out.

I'm not in any way trying to say it will not help or that you should not do it, just that you should make sure that you're clear on how the benefits and curvature reduction will happen before proceeding. As you have the measurement of 64, and they have said that they will be able to return it to 57, does this mean that they have taken xrays already and will be taking more after the treatment has finished so that it can be assessed?

Anyway, while I'm sorry for what's brought you here, :welcome2: :-)

caro
1st May 2008, 08:38 PM
I am down to go at the end of July so will be able to let you know how I got on. I've got scoliosis - 30 degree curves. Personally, I think it is worth a go - anything to improve the state of my back but obviously it is a lot of money and a major committment of time.

mark
1st May 2008, 10:28 PM
Its all about disposable income

If you got the money then go for it

Don't let little old pessamistic me influence you

I just hope the results they give you LONG term justice the EXPENSE you have to outlay

Sorry for sounding so negative but i have seen too many people get burned emotionaly, physicaly and finacialy

Take care

mark

amandad
2nd May 2008, 04:40 PM
Hi all,

Thanks for all of your replies.Caro I would definately love to hear how you get on. I do have the money saved so can afford to do it was just wondering if it was worth it. I am first going to see Dr Sean Molloy in July in the RNOH who is involved in the study ( read this in the article in the Times ) to see what he thinks of my back situation and how bad it will get without any intervention. I am lucky on the pain side of things as my scolisos doesnt give me much pain except when I am lying flat and I get a pain in my hip. I was told I have a libeal tear and that any exercises that would strengthen my back and hip would ease the pain.
The doctor at the clinic didnt say that she could return my curve to 57 but said that the things I notice more now like,more prominate should blade, uneven waist these things would look better after treatment.
Look forward to hearing from ye in the future and will keep ye posted on how I get on.
Amanda

Sandman77
22nd May 2008, 11:11 PM
Go 4 it anything beats Surgery and I can highly recommend Schroth! :)

mark
13th June 2008, 05:27 PM
Hi all,

Thanks for all of your replies.Caro I would definately love to hear how you get on. I do have the money saved so can afford to do it was just wondering if it was worth it. I am first going to see Dr Sean Molloy in July in the RNOH who is involved in the study ( read this in the article in the Times ) to see what he thinks of my back situation and how bad it will get without any intervention.
Amanda

Hi Amanda

Can you remember roughly when this article was published in the Times ?

Thanks

Mark

Amazed Jean
13th June 2008, 09:13 PM
Just thought I would welcome you to the sight. I'm glad you are seeing a scoliosis specialist soon and he can ttalk with you about Schroth. Welcome Welcome!

tonibunny
15th June 2008, 11:04 PM
Hi chaps,

I think you should be careful to note that the Scoliosis SOS clinic does not provide Katherina Schroth therapy. Their treatment is now being called "Scoliogold" and is a hybrid of different treaments, and it only includes certain elements of the Katherina Schroth method. This is possibly why they are no longer claiming to be a dedicated Katherina Schroth centre. If you are keen to try Schroth therapy because you have heard great things about it from people who have been treated at other Schroth clinics, or because you have read research which proves it to be effective, please be aware that this is not the treatment you would receive at Scoliosis SOS.

However, this is not to say that the Scoliogold treatment is not effective - simply that it is not Schroth Therapy. I haven't seen any independent research one way or another regarding Scoliogold so I cannot comment.

Good luck!

Toni xx