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View Full Version : back from neuro and mad



lynns
1st October 2004, 10:43 PM
ok spent 3 hrs at neurosurgeon :help: and got know where. they feel im not severe enough for anything. i mean nothing. :nut: no meds,pain management,or physical therapy. i told them of complete numbeness of feet, off and on hands,and other bdy parts, blurry vision,constant weakness and falling, nives in back feeling,stiffness,no sleeping,standing,walking or standing long.
they saw my mris and preveios x-rays and got more and they have the nerve to say its not severe. :nutter: i had one of doctors say and i quote"my dads back is worse than yours" : :niceone: now this doc is in late 4tys and his dad is what? between 60 & 70. duh! it better be. secondly the 2nd doctor who truly was in his 70s came in pulled my neck and arms around like im not hurting and mumbled a complete paragraph or so and i didnt understand a word he said. :thwack: how severe do i need to be? completely paralized :idiot: im so angry and feel like a fool for even going and will not and never go again. :evil: any one with anything could you tell me what i did wrong?

titch
1st October 2004, 11:57 PM
It's so horrible when they behave like that. I very much doubt that you did anything wrong :( I'm really sorry that you've had to go through something like that. Is there anywhere else that you can go, or can you get your primary care doctor to refer you to somewhere else? You might do better with an orthopaedist, although neurosurgeons can be godsends, some of them really don't seem to have the first clue about just how much pain and how many neurological symptoms a mechanical issue can cause. I really wish there was something I could do to help :hug:

lynns
2nd October 2004, 12:03 AM
my primary wont be back untill monday and she recommended this jerk to me. i just didnt think it could happen to me. i mean alot talk about the idiot docs. i talked to mom and friend and they feel that they didnt have me in their best interest. im just apoled at how doctors can be so inconcederate and not honestly believe our pain. i dont get it. and theirs not many docs that are secialised in this who except my insurance. :(

sins
2nd October 2004, 12:31 AM
I don't understand how a doctor can dismiss a patients pain or even try to quantify it.I think you have very little option but to ask for a referral to another doctor.Try to make contact with someone with your insurance company and ask them to find you someone who accepts their cover.it's annoying that you now have to wait all over again.Hang in there for your kids and try to be strong for a while longer.Many people find that this can happen to them and hopefully your next doctor will be more understanding.I can't believe they didn't even recommend some conservative form of treatment.Obviously your MRI scans showed problems.......therefore they're something that needs to be examined by someone else.Can you take your MRI scans with you for another opinion?
Sins

lindzi_11
2nd October 2004, 12:33 AM
awww sorry to hear everything... u need a hug :squeeze: =)

lynns
2nd October 2004, 12:38 AM
yes the mris are mine and there like last week recent. they didnt recommend anything but sarcasum that i did not deserve and to think about it isnt that against the law for docs. to do? as for my insurance its medicaide and anyone who has it can tell you its hard to find a proper doctor. heck when the 1st time i tried for disability they sent me to one of their doctors to see if my scoliosis was true and he saw nothing. but 2wks later im in hospital for a spinal cord injury. and they recognized the scoliosis and said and did nothing. that was 2yrs ago and now because of these doctors i have developed more pain and problems.

Amazed Jean
2nd October 2004, 12:59 AM
Lynns I'm sorry I'm new here where do you live etc. Maybe we can hire someone to go moon these doctors or something. I hate it that the treated you the way they did. They take themselves seriously why not patients? I cannot imagine how their heads got so deeply implanted up their assets....

lynns
2nd October 2004, 01:19 AM
i live in tampa florida. such a great state for hurricanes but not for any spinal doctors. im 28yrs old and have so much life to live but cant do it for the pain . im sorry guys im just verry depressed and i feel like ive been hit hard by this all. i no it sounds like im winning and i wish that was the case but someday ill wake up from this dream and be normal and happy again.

subey
2nd October 2004, 03:32 AM
doesn't give me much hope for my neuro appointment in hopefully a couple of months...to discuss my "early degeneration at the junction" and my "ongoing degeneration of the lumbar region"

lynns
2nd October 2004, 01:42 PM
sueby,
dont get worried everydoc is different. i just happen to get a sucky one, your could be different, but i tell you now a shure sighn that they dont care is when they ask about your symptoms and they seem to not be realy listening or trying to interupt.
if you have loss of sensation in feet or hands theyll test them with a stick thats what they did and even when you tell them you cant feel it with your eyes closed mine you and they dissmiss it , and they seem to really not be listening than i would just leve. but i pray yours is better and cares. :P

jfkimberly
2nd October 2004, 07:13 PM
Lynns, I completely sympathize with you. I was on Medicaid for a time during my college years, and I found out firsthand that doctors really do treat you differently (in a bad way) if that's your insurance.

Do you have a good relationship with your primary care physician? Maybe when she gets back you can make an appointment to talk with her, and really calmly tell her about your neuro appointment. Then tell her that you've been doing some research, and you think that a referral to a good orthopaedist will help you get some relief so you won't have to make repeated visits to her office.

If you don't have a good relationship with your PCP, perhaps you could find a different one and start from the beginning. There are good doctors out there... we just have to find some for you. *encouraging smile*

Kayla
3rd October 2004, 07:22 AM
you have numbness in feet and hands? and your clumsy? I think maybe you should have them look at that MRI closely because those are symptoms of Chiari Malformation

lynns
3rd October 2004, 06:01 PM
i have no idea what chari is, but i have been clumsey like im drunk which i dont.
or im at start walking good the next im walking side ways to the left or right. or im always dropping things or just completely have no clue what i went into a room to do and remember 1 or 2 hours later.

Thaleias spirit
3rd October 2004, 06:07 PM
hi lynn..

been reading up on your posts...
its true that you should get your mri's looked at more closely but i found that if i was anybit stressed or in pain id get very unbalanced and as for forgetting things...well when you're worried abouut something its only natural to become absent minded too...

but do get it all thoroughly checkedout...even if its just for peace of mind...

nemesixia
3rd October 2004, 06:13 PM
@ lynns: I'd insist on another opinion of a neurologist. Your symptoms can be a sign of various conditions, from Chiari Malformation to Multiple Sclerosis.

lynns
3rd October 2004, 06:18 PM
my mris were done and read at st josephs and i hope they know what their looking at. guess will have someone else to read them. also i think i have posted this but who else gets blurry vision?

Kayla
3rd October 2004, 07:21 PM
I have chiari malformation and we caught it before my symptoms started but those are a lot of symptoms of chiari heres a def. for you

ARNOLD-CHIARI MALFORMATION - A condition in which there is displacement of the medulla and cerebellum into the opening in the basilar part of the occipital bone. It is one of the causes of hydrocephalus and is usually accompanied by spina bifida and menigomyelocele.

lynns
4th October 2004, 07:25 PM
after the friday quack job i called primary for my health insurance which is medicaid with share cost and they said that the doctor i saw was the only one who excepted it. :shock: the medicaid office said the best to do is to go to hospital.im just so sick of the pain and the always feeling of being high when it doesnt help the problem but mask it. :twak: im tired of the pain everywhere and waking up with a new pain that never had. now pain in hamstrings behind nee and back of thighs.
im confussed and angry at my self for allowing this to happen and feel its a dream cant get out of. whats the since in having medicaid if they dont have doctors in all medical feilds that takes it? these doctors and medicaid people need a strong beaten :nut: im loosing my mind and cant think or remember how to live normal and its killing me. im sorry guys but sometimes your at the end and its either vent or hurt and thats what im doing. when will it end and go away]? when will i have my life back? im only 28 and i feel like im 100 yrs old and i havent even begun to live my life and cant because of all this crap.
michelle

Thaleias spirit
4th October 2004, 09:26 PM
sorry to hear how your feeling michelle...yeah its so frustrating to need to see people but when there not cvered under your health insurance then it doesnt help anything...

i ended up with bad hip and leg pain last december that continued on for months...somedays the apin was so bad that id have to lie down (not great when your in work)...kept getting numbness and loss of sensation...

my doctor referred me to a physiotherapist who worked on my spine and leg...and whilst there are days that my leg plays up its nothing compared to what it was...thank god.

I dont know if physio is an option for you...but maybe discuss it with your own doctor and get the names of some chartered physios in your area and check them out with your medical insurance company..

either way I hope you get some answers soon...

lynns
4th October 2004, 09:39 PM
thanks for the reply. id have to ask primary in which it probly doesnt. hey thought hope it cover therapy for the mind cause im going to need it the way its going. :thwack:

butterflylr
5th October 2004, 06:36 AM
I totally feel your pain. I am practically in the same situation. I hate it! I am in the process of trying to find a new job so I will have some medical paid for me. I just signed up with some and I can't even do anything with my back until 9 months has gone by!!!!!!!!!! It's already been 2 years since I have checked on it! Stupid medical companies and their dumb policies of "pre-existing" conditions! :soapbox:

titch
5th October 2004, 09:42 AM
I'm so sorry that you're going through so much. I know the feeling of waking up to yet another weird new pain that was never there before :( I'm 3 years older than you, and had salvage surgery 2 years ago, by which point I was in a complete mess. It's almost impossible to describe how wearing it is, and how scary. Please hang in there - I know it's an uphill struggle, but you *will* find someone to help you, who takes your insurance. It's difficult to keep fighting, but we'll be here for you every step of the way :hug:

Pikey
5th October 2004, 07:34 PM
i guess i'm just getting old so i guess i can expect pain and the aches from now on .I will say they that over the years i have had loads of differant aches and pains and managed to get rid of most , however they do seem to be hanging around a bit more these days .The muscles around your lower back go down your legs and to your knees .Lower back pain can lead to hamstring and knee problems , a good physio should be able to give you some stretching exercises that might be able to help .I know the aches and pains get get you down and make you really depressed and I know drugs or drinking to ease the pain only seem to make things worse . Try and get your mind focused on something else , take care .Pikey

Abbi
5th October 2004, 10:30 PM
Originally posted by lynns@Oct 4 2004, 05:25 PM
im sorry guys but sometimes your at the end and its either vent or hurt and thats what im doing. when will it end and go away]? when will i have my life back? im only 28 and i feel like im 100 yrs old and i havent even begun to live my life and cant because of all this crap.
michelle
Michelle, dont be sorry, I totally vent all the time....about everything and anything....I totally 100% sympathise with you....I am in pain right now...my back just kills me everyday, esp in school when i sit in those hard chairs *grr*
I cant believe that i have to suffer so much pain, and I am only 17 (well 18 in 5days :rox: lol)
Don't you hate it but, when ppl r like ow my back is so sore, or something like that....and your like...yeah, you want a sore back? lol...sometimes i feel like saying you dont know what real pain is hunny....but that would just be mean....and im not mean.....lol!!!

butterflylr
5th October 2004, 10:39 PM
Originally posted by Abbi@Oct 5 2004, 12:30 PM
Don't you hate it but, when ppl r like ow my back is so sore, or something like that....and your like...yeah, you want a sore back? lol...sometimes i feel like saying you dont know what real pain is hunny....but that would just be mean....and im not mean.....lol!!!
I totally feel like that all the time! If only I could have ONE day without pain! That would be nice, wouldn't it?

Amazed Jean
5th October 2004, 11:42 PM
Pain is something we all live with. Some scoliosis patients have more pain than others but we can all sympathize. When the pain really sucks I get in a hot shower and cry as long as I need to. Its weird that we all tryto hide the pain and end up suffering alone but I guess that's how we are put together. Another thing I always do is remind myself that is always someone worse off and I really try to remember the old saying "There but by the grace of God go I." Even if you aren't religious (I'm not usually) you can appreciate that there are many people in the world that didn't get as fair a shake as you did.