View Full Version : I am thinking of giving scoliosis SOS a go...

13th April 2008, 12:40 PM
Although my spine is partially fused I have the smallest fusion (T12-L2) on this site.
I have been thinking about giving Scoliosis SOS (http://www.scoliosissos.com/index.html) a go.
I have filled out the online form, and expect them to contact me within a few days.
Has anyone used Scoliosis SSO or the Katrina Schroth method before?
Does anyone know how much it will cost? My fiance is going to pay for me and we are saving for a wedding so cost is a key thing.
I will post as much as I can about this treatment, but just wondered if anybody has any experience/advice/questions before I go ahead with it?

Nikki x x x

13th April 2008, 04:45 PM
Nikki, I would strongly advise you to read the previous threads about this centre before you part with your money. There have been some quite heated disussions about it and many of us aren't at all convinced by the 'improvements' they show in their before and after photos. If you perform a 'search' using 'scoliosis sos' and 'older than 30 days' for 'all forums' you should find quite a lot to read through.

Thaleias spirit
13th April 2008, 06:16 PM
Nikki.. I have to agree with Gilly, I'd be wary about trying anything without discussing it with your consultant first to see if it would be of benefit.

But anyways, I found some links about the discussions for you, as follows:

http://www.scoliosis-support.org/modules/i...l=scoliosis+sos (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4855&hl=scoliosis+sos)

http://www.scoliosis-support.org/modules/i...l=scoliosis+sos (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4060&hl=scoliosis+sos)

http://www.scoliosis-support.org/modules/i...l=scoliosis+sos (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4696&hl=scoliosis+sos)

http://www.scoliosis-support.org/modules/i...l=scoliosis+sos (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4314&hl=scoliosis+sos)

From what I've heard it's quite expensive so cost is going to be a major issue seeing as you're saving to get married.

Do you mind me asking why you are interested in giving it a try and what you think it might be able to do for you?

13th April 2008, 07:28 PM
We don't have anyone here who has actually been to the Scoliosis SOS clinic yet, but quite a few of their ex-patients appear to have posted on this blog:

"I'm Not Gillian McKeith" blog (http://notgillianmckeith.blogspot.com/2006/03/scoliosis-sos-clinic-uk-announces.html)

Schroth has a good reputation in Continental Europe. The clinics there use braces as an integral part of the therapy and they don't claim to always prevent the need for surgery. Sandman attended a clinic in Germany (they DO speak English there) and can tell you more about his experiences. There are also other individual Schroth practitioners here in the UK, who were certified in the method at the European clinics.

Good luck!

13th April 2008, 08:46 PM
Hi Nikki

I would strongly urger you to read the above threads and the link that toni has given you. Its a heck of a lot of money and you have to be dedicated tot the exercises for the rest of your life. I don't want to prejiduce you against it but i would urge you to really research it and then think long and hardf before you put pen to paper and sign up to something that may not help you a great deal but cost you a hell of a lot of money. Especially as you are due to get married shortly and need all the mney you can get to pay for tht.

take care


14th April 2008, 02:47 PM
Hi Nikki,

I haven't had time to follow the links to the threads above so sorry if this is a repetition!

I am booked in to SOS for July. I had a consultation there a few months ago and was very impressed. Its costing me 2,400 plus somewhere for me to stay for 4 weeks (as I live at the other end of the country) so it isn't cheap, but I don't see that I have any other options & feel I have to give it a go.

I'll happily feedback to you on the treatment during and after!

14th April 2008, 04:54 PM
Originally posted by Thaleias spirit@Apr 13 2008, 04:16 PM
Do you mind me asking why you are interested in giving it a try and what you think it might be able to do for you?
I am interested in giving it a go as I want to do as much as possible to maintain my stright posture, to prevent deformity or problems in later life. No words can express how happy I am with my new posture, and I am no way, unhappy with what has been achieved. I suppose the correct answer would be ' I want to wrap my spine in cotton wool'. I don't ever want my curves to get worse again, and feel it is important to do something to protect my spine. I want to protect all Mr Dunsmuir's hard work. I still have a completely unfused curve which appears to be slightly worsening each visit. I don't want to get 10 years or so down the line, and need another spinal fusion for this one.
I don't think I can affore it right now. After having time to think, I am going to do my research and maybe give it a go in a couple of years time. I think I am going to get all the research I can into different and maybe a lot cheaper alternative techniques too.

Caro - I would be interested to see how you get on. If possible could you take before and after pics and post them after your treatment. I'd love to see the physical improvement and I'm sure you caould tell us emotionally and pain wise.
Thanks for all your comments guys.
I really appreciate it.

Thaleias spirit
14th April 2008, 07:13 PM
Originally posted by pink_candy_swirl@Apr 14 2008, 03:54 PM
I want to protect all Mr Dunsmuir's hard work. I still have a completely unfused curve which appears to be slightly worsening each visit. I don't want to get 10 years or so down the line, and need another spinal fusion for this one.
Have you any upcoming appointments with Mr Dunsmuir Nikki? They always recommend that any other treatment should be carried out whilst also under the watchful eye of a scoliosis specialist. I'd speak with him and see what he thinks. Especially as you're already concerned about an unfused curve that seems to be increasing with each visit you have?

Definitely do all your research but I'd liaise with the consultant at each stage with this. He might be able to suggest other options that might work as well without all that cost.

14th April 2008, 07:40 PM
If it's mainly your posture you want to protect, you could give the Alexander Technique a go. It would certainly be cheaper :D

14th April 2008, 07:54 PM
That's a good idea Nikki - to do before & after pix. I'll do it!

the one bad thing is during my stay in Woodbridge where the clinic is I am renting a house with no phone or internet connection!!!!!! I do not know how I am going to manage! So I'll be a bit out of touch! I'll have withdrawal symptoms!

16th April 2008, 10:48 PM
Goodness me, since we started this thread someone has posted a very positive comment on the "Not Gillian McKeith" blog, the first comment in weeks (I've been keeping an eye on that page out of interest), and from someone who has only just signed up on Blogger too! If "Helen" is out there maybe she could come here and tell us about her experiences? :-)

17th April 2008, 11:37 PM
Ive read Alexander technique ist not so good as one should think for Scoliosis, so one has to be careful there as well...

Personally for my own health no money is wasted, a straight spine is more important than any wedding, that of course is purely my opinion...

I can say using Schroth you are more in control of your own Health over the years and seeing your relative young, you may expect a good outcome if done properly and regularly...