PDA

View Full Version : Surgery recovery taking longer than usual?


hvdeen
27th March 2008, 03:19 AM
Hi-I posted something way back I think in October before I had my surgery and haven't been much up to sitting at the computer for too long b/c I have been in a huge amount of pain. I had my surgery October 15, 07 and in December 07 learned that the one rod had come loose at the bottom of the right rod and have been in a brace since to keep the rod and spine in place. This was so the spine would heal in the correct position I think. The brace is awful-it is straight plastic from my bum to my shoulders and it has velcro in the front so I can take it on and off. The loose rod is giving a whole lot of pain and I am possibly facing a second surgery. It has been like 5 months-is it normal to still not be able to sit up for more than 1/2 hr due to too much pain? How long does it take to recover? I had visions I would be more out and about by now but I still have to go lay down and rest my back every 20min to 1/2hr and then get up again. The pain is mainly at the top of the rod that is loose on the bottom and it is just burning pain and is relieved by laying down. It is just that it seems like it is taking forever to recover from this and was never told that it would take at least half a year to recover. My surgeon said I can't do anything more than sit, stand or walk or lay down b/c anything more may cause a problem and I can not do anything more if I wanted to-still in too much pain. I also got bursitis that I thought had to do with my back and it got to the point that I couldn't walk at all and had a cortisone shot and finally it is better so I don't have to deal with that so I can now walk around at least w/o intense pain in my hip. I feel that I am starting to get depressed b/c I am just not really progressing much. I look outside and want to be doing stuff again and I am stuck in bed probably half the day. Sorry about complaining-I am having a really hard time with this. Thanks for taking the time to read through this.

pink_candy_swirl
27th March 2008, 10:54 AM
I had surgery for kyphocoliosis and lordosis,& your recovery sounds the same as mine!
I still had to lie down after half an hour at five months post op. I too had a brace as I had a prominent pin (& the brace worked a treat & kept it in place while it healed, & so thankfuly, I did not need another op).
Do to all the lying down & not being allowed to bend lift or twist until 9 months post op, my mucsles were pretty messed up & I had Physio therapy. It didn't help while I was having it, but now having being told to continue the exercises until further notice, it's working a treat.
I still get severe pain over a year post op, but not half as often as before.

I just want to let you know that the depression, for the same reasons as you, hit me hard too. I felt so alone as eveyone else my age having surgery was bouncing back in a month or two. I did have a complication with my lung collapsing in hospital, but that shouldn't have affected my back.

I want you to know your not alone & I went through the exact same, & have come out of the other side smiling. There is hope!

I am now waiting for an appt from a spine specialist in exercises. I have a 'bad' muscle which the surgeons completely seathered during surgery. It seizes up & gets cramp & causes awful pain, but I have full faith in her!

Have you tried heat packs and muscle relaxants (form your GP) to relax the muscles, relieving tension and *some* pain? The aren't super but do help slightly.

If you ever need to let off steam, please do. I can completely symphasise & feel awful to know you are going through what I did.
Please hang in there.

I'm sure others will come along with advice soon!

Nikki x x x

hvdeen
27th March 2008, 03:25 PM
Thanks for replying-your response has really helped me in the sense that I am not alone and there is maybe some hope of there being an end to this. It is really hard b/c I normally like to get outside when it starts warming up and all I can really do is look out my window. I also had a complication with my one lung in hospital and for some reason I had a broken rib as well. Thanks for your kind words! I really appreciate it!

Seeking_help
27th March 2008, 08:50 PM
hvdeen - I've sent you a PM.

pink_candy_swirl
27th March 2008, 10:46 PM
Originally posted by hvdeen@Mar 27 2008, 03:25 PM
Thanks for replying-your response has really helped me in the sense that I am not alone and there is maybe some hope of there being an end to this. It is really hard b/c I normally like to get outside when it starts warming up and all I can really do is look out my window. I also had a complication with my one lung in hospital and for some reason I had a broken rib as well. Thanks for your kind words! I really appreciate it!
Yeah, the broken rib you are talking about will have been used as bone graft. I had that too (they can use ribs, scrapings of the pelvis or bone from a bone bank).
I do hope things get better for you. I also know that you can have good and bad days. I used to feel silly on the good days and didn't know what all the fuss was about... then I'd have a bad day and it would hit me... hard!

Nikki x x x

GillyG
27th March 2008, 11:26 PM
I'm sorry to hear you're having such a tough time with your recovery :(

It does sound as though it's the loose rod which is causing the problems. I hope the brace does the trick of helping to hold things steady until your spine fuses, as Niki's did.

If you continue to have problems, I'd get in touch with your surgeon again, especially if you're beginning to feel rather depressed. I think you would normally expect to be doing quite a lot more by 5 months post-op, but it would seem your loose rod is slowing things down for you. I hope you start to make better progress soon.