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garff
28th January 2008, 09:22 PM
hi everyone!
this is my first post as im kinda new to this! i have a couple of questions to ask but first just a few things about myself, im 28 and i have a clinical obvious thoraco lumbar scoliosis convex to the right, x-ray showed scoliosis extends between T9 and L1 with its apex around about T11/12, it is convex to the left and measures 38 degrees, this was diagnosed 5 and half years ago and i was told the curvature will never change! i seen another spinal suregon a month ago to ask more questions and he also told me it wont get worse!
im not doubting these guys but i was just wondering if anybody here could tell me if it would get worse seeing as some people have the same condition!
and should i be having x-rays or regular check ups with a spinal surgeon/doctor to check that it is'nt getting worse?

if anyone could give me any info on these questions i'd be most gratefull! thanks!

GillyG
28th January 2008, 10:56 PM
Hi and :welcome2:

I think the reason you are being told your curve won't get worse is that you are skeletally mature and it is still often assumed that curves under 40 degrees won't progress further once growth has finished.

However, this is not always the case (I can vouch for that :P ), so I would definitely recommend getting regular check ups and X-rays to monitor the situation. That way, if it does continue to progress, action can be taken whilst you are still relatively young and flexible.

I was told the same as you in my 20's and didn't go for further check-ups until I was really bad and ended up having surgery at 49 by which time my thoracolumbar curve had reached 80 degrees and was extremely stiff, in fact it had even self-fused at the apex of the curve :-o

Can I ask, whereabouts are you and which surgeon(s) have you already seen?

I'm glad you've found us, it's always easier when you're amongst others who know what you're going through. :-)

Gilly xx

BeckyH
29th January 2008, 12:14 AM
can't fault gilly's post! keep getting checked out, but at the same time try not to worry about it and don't let it stop you from doing whatever you want to do :-)

Kentish
29th January 2008, 05:13 AM
Hi garff. Just wanted to welcome you to SSO

caro
29th January 2008, 08:42 PM
Hi garff,

wanted to welcome you to the site - hope you find it useful.

I wanted to echo what Gilly said - I was told that my curves wouldn't get worse when I was diagnosed with mild scoliosis but over the last 6-7 years and particularly since being pregnant 2 years ago my back has worsened considerably. It is worth getting check-ups and looking into some type of physio, or back training exercises eg Pilates, Alexander Technique or even Schroth to strengthen your muscles and improve your posture.

garff
29th January 2008, 09:15 PM
hey thanks for the replys and the warm welcome! to your reply gilly, i live near chepstow, s.wales and i firstly seen a doctor tayton at chepstow community hospital on 28/8/02 and i seen doctor gregory jones at st.josephs private hospital on 10/12/07!

i would defintely like to have another x-ray as this would put my mind at rest a bit, the last doctor i seen privately due to me wanting to get my answers more quickly but it come at a price ( 150) ouch!! but does anyone now how much an x-ray would cost privarely? i only wanna do this as im sure it would take a long time to do it on the NHS, but thats assuming its a a reasonable price!!

one more thing! i get pain in my right hip quite alot now, could this be related to my back, dr. jones said it was'nt but i thought i read it was! im not sure!!

hey caro! how bad was your curve when you first discovered it? and how much has it worsened since? if you dont mind me asking!

thanks for the replys everyone!

caro
29th January 2008, 09:58 PM
Unfortunately I don't know the degree of my curve when 1st diagnosed and the x-rays have been lost somewhere in the NHS! My COBB is now 30 degrees and my spine has rotated alot. I get alot of pain in my left hip and I've been told its the nerve pathways being compressed. Sometimes that pain is worse than my back ache. My scoliosis is still considered too mild for surgery but I am enrolled to do a course of Schroth physio in the summer which I am hoping will help considerably. You'll be able to find out more about that on a number of other threads on here!

Amazed Jean
30th January 2008, 12:43 AM
I had a scoliosis curve that according to the orthopedic specialist " wasn't going to progress." Er, Wrong ! Mine certainly did and now is probably worse than my last measurements 3 years ago. I can no longer undergo the deep anesthesia so I'll not be having any surgery. However I SO wish I had been checking regularily with a Scoliosis Specialist. I wasn't and now I know it is collapsing more of my spine (I'm getting shorter) and is palying hell with my lungs. SO yes have it checked by a Scoliosis Specialist.