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View Full Version : Back to square 1.. again!


Carly
16th September 2004, 05:10 PM
This morning i had physio. He was shocked to see how bad my back has gotten. He says my shoulder is really bad and my entire back is one big knot. He was surprised that I had not gotten tension headaches yet.. (but come to think of it I had a couple of headaches these past few weeks... I NEVER get headaches). He says that it is almost as bad when i first came to see him. Whenever he touched my back, it was so tense, and sometimes i almost shot to the roof. He then did some accupunture. Boy did that hurt but i know that it will help. I was a bit disapointed.. I thought this was all over but I guess not. He asked me what I wanted to do. Continue rigorous treatment or just occasional. I said I want the pain and tension to go away.. He wants me back in a week.
I will tell you more after school...

sins
16th September 2004, 05:20 PM
Oh dear, that's not good carly.Ask him for a physio programme that you can do at home on a daily basis.I really hope it helps.
Sins

BlueIce
16th September 2004, 05:28 PM
I'm so sorry to hear this! I don't have any words that'll make you feel better, so I'll give you a hug instead :hug:

titch
16th September 2004, 06:33 PM
I'm really sorry you're having such problems :( Hope the accupuncture helps, and as sins said, hopefully you can have some exercises to do at home and see if that helps. :hug:

lindzi_11
16th September 2004, 11:26 PM
i'm sorry hunnie =(

Amazed Jean
17th September 2004, 01:41 AM
Carly, Try some hot soaking baths with bubbles and candles and your favorite music - that is always relaxing for me. We are all here for you and remember your age is on your side. I know that's not what you want to hear but hang in there.

Kayla
17th September 2004, 06:28 AM
m sorry Carly. Do yout hink you waqnt surgery? Or is it even bad enough for surgery? I hope you do what feels most comfortable!

jfkimberly
17th September 2004, 10:42 AM
Aw, Carly, I'm so sorry to hear how bad you're feeling. When was your last xray and ortho exam? Do you have any idea what's going on with your spine to cause the pain and tension? I hope you get some relief very soon.

Little~shedevil~dee
17th September 2004, 03:08 PM
awww i am sorry carly
heres a hug for you :squeeze:

Carly
17th September 2004, 03:35 PM
kim-i dont know if my cirve has increased and then the muscles got tense and the muscles just got tense which pulled my spine out. My last ortho appt was in june, i think my mom is going to make an appointment

kayla- i dunno about surgury, if i was offered it i would take it but i dont think my back had gotten to that point

Liv
17th September 2004, 03:43 PM
Originally posted by Carly@Sep 17 2004, 02:35 PM
My last ortho appt was in june, i think my mom is going to make an appointment
I think that's a very good idea. Just to be sure.. *hugs*

sins
17th September 2004, 07:49 PM
Hopefully an appointment with a different surgeon than your last one.

Carly
17th September 2004, 10:09 PM
I dunno if I can do that because all my history is with my doctor that I have know.... i mean if this is my last appointment then is there a point in switching?? I think I will just go back to her and if there is a need for futher treatment then I will switch.. what do you guys think i should do?

Lieve
18th September 2004, 12:53 AM
Oh Carly, I'm sorry to hear you're having problems. A big hug.
First concern is to see what causes the pain, are the curves progressing and what treatment is necessary. If you're not satisfied with your doctor and you think you don't get proper treatment or advice you need to switch.

Joy
18th September 2004, 03:18 AM
*hugs* Carly. I can relate to the tension, even just having people rub my shoulders hurts. And physio is so frustrating when it doesn't even seem to be working.

I think going back to the orth seems like a good idea, but if you're really worried you might try to get a second opinion. Though in Alberta that's a lot easier said then done, I know!!

*more hugs* I hope you and your back feel better soon. Try not to worry to much.

sins
18th September 2004, 11:40 AM
Ask for your medical records and then switch.If you don't like your doctor's attitude then you'll never have a positive and helpful consultation with her.The last thing you need is surgery Carly at this point so try to focus on finding some form of exercise or physiotherapy which will ease the muscular tension in your body.I would seriously look into some form of yoga and it's very important to take some relaxing time out for yourself and unwind from the stress of every day.Tight and sore muscles can make your posture appear worse so try approaching the problem from that angle.
As for not having your medical records,it shouldn't matter when you see your spine specialist.You haven't had surgery and you're well capable of explaining your bracing history to him/her so a simple x ray will tell what they need to know.I thought you were discharged from your first doctor's care anyway carly so don't feel bad about moving on from her
Sinead.

BarmyArmy
19th September 2004, 02:09 PM
Oh I wanna join in with the hugs :squeeze: Sorry you got bad news Carly :cry: Here have another hug :squeeze:

Marti
19th September 2004, 08:14 PM
:hug: I'm so sorry. It's good that you're trying to get an appointment, and definitely try to get one with a different doctor. I hope you get a good physiotherapy routine you can do at home that helps! *hugs*

Carly
19th September 2004, 09:31 PM
Thanx guys! My back is feeling better but there are times when it just falres up... My headaches are also becoming more fruequinet but i dont know if that has anything to do with my back?!?

Kayla
20th September 2004, 02:19 AM
Originally posted by Carly@Sep 17 2004, 07:35 AM


kayla- i dunno about surgury, if i was offered it i would take it but i dont think my back had gotten to that point
Oh really? What are your curves?

Carly
20th September 2004, 03:51 AM
It is 35 degrees last time i checked..... i only have one curve

jfkimberly
20th September 2004, 08:55 AM
Isn't 35 kind of borderline for worrying about surgery? How old are you?

Carly
20th September 2004, 03:18 PM
I think 40 is borderline for surgury- i am not sure though. I am 16...

I just came home from the gym and my back is very tight. I am not doing weights anymore and just do gentle cardio. I make sure to strech it out afterwards as well.... It is mostly my lower back. I hope that it is only tempoary and doesnt start happening all the time cause I love going to the gym (and I need to ;-) )

jfkimberly
20th September 2004, 07:03 PM
Yes, you're right... 40 is the threshold at which they start talking surgery for AIS. Now, I don't mean to scare you, but just to get you thinking. There's not a big difference between 35 and 40 (two different doctors could come up with a discrepency in measurement of that much!). I'm shocked that you're only 16 and you have a 35 curve, and your doctor released you from care. You should be monitored into early adulthood. Is it possible for you to see a doctor with a personality you can get along with, and who will treat your pain aggressively? If you're already living with back pain at 16, that doesn't bode well for when you become an adult. I really think you should find a doctor who will do something about this--more than sending you for physio. Going back to see your old doctor just sounds like a waste of her time and yours to me.

Carly
20th September 2004, 11:49 PM
WOW! I guess i never really considered how close 35 and 40 are... I guess i just reminded myself that it was far away and I would never make it to that point.
My doctor hasnt exactly released me from my care. My last appointment in June was to see how my brace wearing was going and she made the decision that I would be done in August, she then told me to come back in September. I am going to talk to my mom about switching doctors but I know what she will say. She belives that even though I need to be monitored, my treatment is pretty much done. I dont think she realizes that surguery could potentially (but most likely not) an option. Even if we were offered surgery, she said she would have to think long and hard and get a second opinion before she would make a decision...
i dont even know if it is possible to switch.. AHHH I AM SO CONFUSED! i just want to get xrays NOW and see where I am at!

Joy
21st September 2004, 01:35 AM
Carly, you sound like you WANT surgery. Why?

Carly
21st September 2004, 02:58 AM
I dont want surgury- but i also dont want always worrying about the state of my back and if it is progressing. Yes i know it can still progress after surgury....

I dont really know what I want- I just want a pain free, relatively straight back!

nutmeg
21st September 2004, 06:41 AM
Carly

I agree with what others have said, about it being a good idea to have some form of exercises to do on a regular basis at home. I've heard a lot of good things about yoga, although I've never tried it myself. There are some yoga exercises designed specifically to help people with scoliosis. You can find out more at www.ebmyoga.com (http://www.ebmyoga.com)

Personally I found Alexander Technique helpful. More info at Alexander Technique (Canada) (http://www.canstat.ca)

I wonder if some of your problems are just that your back is still readjusting to not wearing a brace.

I think it unlikely that you would need surgery, especially if you have finished growing (don't know whether you have as people vary so much in the age at which this happens). Although 40 degrees is often quoted as the point at which you need surgery, as far as I can see from browsing the web, this is really only for people who are still growing. For "adults" many surgeons would only consider cases over 45, or even 50, unless there are other problems. Although curves over 40 degrees may progress, one site I saw suggested that the total progression over the whole adult life would only be 10-15 degrees.

Hope you manage to get this sorted out soon

Meg

Carly
23rd September 2004, 05:10 AM
I had physio again this moring- he said I was looking a lot better. He did some accupunture and streched me out. He said that he wants to see me with "rock hard abs" cause that will be great lower back strength. I have decided that every night I will do pilates! HEHE what motivation to get great abs.
I have also taking up Yamuna body rolling- wow does it ever strech you out! I have never gotten such a good stretch. I guess it is a fairly new technigue and the class is offered once a week. the instructor was telling me that she designed it for people with problems such as scoliosis
Look here (http://www.yamunabodyrolling.com/index2.html)

ivanleg
23rd September 2004, 05:01 PM
My curves supposedly didn't progress from 1992 to 2002. I've heard curves can get 1 degree worse per year during adulthood so maybe I've been lucky. Or maybe curves can be steady for a while then deteriorate all of a sudden. Hmm, maybe I am due for another checkup; I've been feeling pretty crooked lately.

I'm sure the fellas wouldn't mind seeing you with rock hard abs Carly ;-)
I checked out the Yamuna body rolling thing, it reminds me of Rhythmic Gymnastics where they run around with that ball.