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Danite
13th September 2004, 10:15 PM
This is very interesting, I really never thought about a name or a title for Scoliosis maybe because I personally don't believe it deserves a name. But I will surely because of the feed back and information here give it some thought, very little of course.
I'm new on this forum or Scoliosis support group, first let me say I'm really honestly glade and excited that this exist, it has been such a long, long time for me not to have some peers to discuss certain things with, TAB's or the Medical Specialist sometimes just don't get the picture or understand our fight.
I will keep this short but I would love to discuss anything related to disability rights and scoliosis with you, my surgery was experimental back in 1954. It lasted for over ten hours, and I wore a plaster cast for just under one year, with two or three good old milwaukee braces for another two years. I have no metal support rods or metal of any kind in my back, and it is totally fused except for two lower verts.
I have just recently applied for SSDI and retiring from work because of my condition, heavy breathing problems, rotation of the spine, spinal stenosis and more. Before you ask, no surgery for me, at my age and the condition of my spine it would not be worth the pain and discomfort to go thru it again, besides no guarantee if it will even work. Please feel free to write, I would love to hear from you.

sins
13th September 2004, 11:52 PM
Welcome Danite! :welcome:
It's great that you finally made your way here.I've read some of your posts on other forums and It's wonderful to meet likeminded people.
I had the same type of fusion as you had in 1983 as my curve was too severe to successfully insert the harrington rods.I'll find out in 48 hours if the curve has held for the last 21 years.It's incredible to think you faced this surgery when you were the same age as my youngest son.
technology has come a long way even in the last 20 years but I respect your decision to avoid revision surgery.
Feel free to post and join in any discussion.We look forward to hearing from you.The other gentlemen here will be delighted to meet you!!
Sinead.

Amazed Jean
14th September 2004, 04:19 AM
Welcome Danite,
I promise you are going to love these site. There is an assortment of people here. While I'm fairly new and I bumble around on the site, I haven't met one person who hasn't been the nicest . Some of us are a bit round the bend age-wise but all those youngsters keep me laughing and remembering. Did I see you are from Michigan? We have some friends and relatives up there. Welcome! Welcome. Welcome. Hey by the way Sorry about Saturday's Football results. Our family has ties to Notre Dame Football so we were cheering the other direction maybe I wouldn't have yelled quite so loud if I met you sooner.

Blair
14th September 2004, 12:35 PM
OMG! Another Michigander!!!! (stupid name, eh????) Whereabouts are you from? I'm near Flint....

tonibunny
14th September 2004, 01:16 PM
Welcome Danite! :welcome: :party:

We're all very friendly and love newbies here. Welcome to our gang! :D

Kaja
14th September 2004, 05:20 PM
Welcoooome! :D :wave:

titch
14th September 2004, 05:42 PM
:welcome2: :D

jfkimberly
14th September 2004, 09:01 PM
Hi Danite. Welcome to SSO! As they've all said, we love newbies, and you're going to love us. *grin*

As for disability rights and SSDI, I've been receiving benefits off and on since I turned 18 (since I was "disabled" before the age of 18, I was able to apply under my father's earnings). I'm now fully retired and receiving SSDI and Medicare. Feel free to email or PM me, or post a specific question in the forum if you want to know anything more.

DublinPauline
14th September 2004, 11:25 PM
Welcome Danite. :welcome: I'm 38 and live in Dublin, Ireland. I had a fusion and Harrington Rod inserted in 1979.
Sounds like you've been through the wars. :-) I guess your breathing problems stem from restricted lung capacity? I'm on the same boat, with about 47% total lung capacity. I've had to keep a closer eye on my respiratory function since I ran into major problems following childbirth nearly five years ago.

Carly
15th September 2004, 12:07 AM
WELCOME!!

:welcome2:
I'm carly and I am from Canada. You will love it here...

Jonny
15th September 2004, 12:17 AM
Welcome Danite! :wave: My aunt had a metalless fusion at about the same time as yours, but I don't know details.

lindzi_11
15th September 2004, 02:54 AM
WELCOME!! my name is Lindsay and i'm getting surgeory on my 57 and 31 degree curves on november 10th. WELCOME WELCOME!

Marti
15th September 2004, 03:09 AM
Welcome! I'm fifteen and I had surgeryin July '03. Michigan!!! Woohoo! Another midwesterner! I'm from Chicago.

BarmyArmy
15th September 2004, 03:22 AM
Hi Danite, welcome to our fun friendly world.

My name is Leona, I'm 28 and I live in Scotland. I have mild scoliosis but I have a lot of pain from it, due to this I can only work part time.

I hope to see you around the site :squeeze:

gabrielle
15th September 2004, 05:52 AM
:welcome:
Hi Danite! I tried unsuccessfully to get SSDI two years ago, haven't done anything to pursue it more... for me, personally, the fight just doesn't seem worth it. I do understand that for many it is. Well, best of luck and chin up.

jfkimberly
15th September 2004, 09:30 AM
Gah. I must be in really bad shape, then. I had no trouble getting it. I applied, went to the referred medical exam, and they started sending me checks. Two years later, I got Medicare.

andrea
15th September 2004, 01:35 PM
A bit late as ever, but WELCOME!

Little~shedevil~dee
15th September 2004, 01:39 PM
welcome Danite :welcome: :welcome2:

Joy
16th September 2004, 12:32 AM
:welcome2:

Kayla
16th September 2004, 01:11 AM
Welcome to the site!

Lieve
18th September 2004, 12:31 AM
Welcome to SSO, Danite! My name is Lieve, I'm 31 years old and live in Belgium.