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ourlena
15th October 2007, 06:21 PM
Hi again, managed to get some great info on this site.
My daughter Robyn has her 2nd orthopaedic appointment on Wednesday and i am not looking forward to it. She has a 30 degree thorasic curve wich was diagnosed on her appointment 6 months ago. We were told nothing about any treatment just told to go home and not worry,(easier said than done).
I am now wondering what questions should i be asking. Should she be braced?What do i need to know?
I think i am right in saying treatment in Scotland is very slow, should i accept this? If need be how do i go about getting 2nd opinions or private treatment? I am totally in the dark and very confused.

Little Ali
15th October 2007, 07:47 PM
How old is your daughter? I'd ask if they think the curve is likely to progress/has it progressed since the last appointment?

sins
16th October 2007, 02:02 PM
I don't think there's much you can do until Wednesday.If the curve has not progressed it's unlikely they'll do anything other than wait.It seems that bracing is falling out of vogue at a lot of treatment centres!!
If the curve has progressed into the 40's that would make her a candidate for surgery and it would be too late for bracing.
Treatment in Scotland seems to be slow but at least you're in the system.Ask how long waiting lists are for surgery and ask if they believe that bracing helps slow or stop curvature.
Sins

ourlena
18th October 2007, 06:19 PM
Thanks for your replies, they were very helpful.
We went to Yorkhill Hospital yesterday and saw Mr Rowland, a new orthopaedic consultant. He was very nice and gave Robyn a full examination, but i felt like it was a first appointment, therefor our six month wait was a waste of time. Her curve has only increased by 3 degrees which is great, but because she is having pain(the same pain she was having 6 months ago) he has refered her to a spine specialist, Mr Adams, in Edinburgh.
Hopefully we will not need to wait very long. He did say it would be up to him what future treatment Robyn recieves, but bracing is not usually done due to poor compliance. She is only 11 years old and still has a lot of growing to do, so who knows what will happen. Will let you all know what happens at the spine specialist.
Thanks again. Bye for now.

GillyG
18th October 2007, 06:51 PM
I'm glad the appointment went well and you have been referred on to a spinal specialist. The waiting game is always the hardest but at least now you're in the system to be seen by someone who will be able to give you her future options. Hope you don't have too long a wait....

:squeeze:

Gilly xx

Black Star
23rd October 2007, 03:37 PM
It might be worth trying yoga or seeing a physio who can give your daughter some stretches to help ease any pain. I've also found that just carrying less and being conscious of how you sit in chairs/ avoiding sitting for long periods of time can help alleviate any pain or discomfort.
- talking to my school was great for this. They let me have two sets of all my textbooks so that i didn't have to lug them in to school each day and they let me sit on different chairs for exams etc. (they even suggested that i could have time mid-way through exams to leave the room and walk around for a bit!)

As far as seeing how the curve is progressing, it is just a matter of waiting - there's no way of telling what will happen over the next few years. My advice would be to try to put it out of your mind when you aren't at appointments and not worry about it too much until it gets a lot worse (if it gets a lot worse). - however from my experience, I know that this isn't so easy for parents!

Hope it all goes well! :-)