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caro
27th September 2007, 08:04 PM
Ok. On a previous thread I asked for advice and experiences of anyone who has used Schroth exercises to help with their back. It was a mixed bag of replies probably tending towards the negative, but with very little obvious justification.

So, I am going to go for an initial consultation. My back is agony & I really can't go on like this. I have to give something a try. Surely it is worth a go.

Why am I posting this? Because I could really do with someone saying that it is the right thing to do & that I am not wasting my time. Or, if you really do have reasons that it isn't then let me know what they are!!!!

Thanks

tonibunny
28th September 2007, 02:23 AM
Hi Caro,

It's up to you to decide, if you think it is worth a go then go for it :-)

You have already been shown the links to our discussions regarding the Scoliosis SOS clinic (here (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4060&hl=schroth))and you have also heard from Isabelle Grote, who offers the same treatment. Both clinics offer Schroth treatment and both clinics are relatively close to each other geographically; one charges a couple of thousand pounds for a course of treatment whilst the other offers a pay-as-you-go system, so you have a choice of which you'd prefer to do :-)

As Sins explained, it is important to point out here that this website doesn't endorse or recommend any particular clinic, healthcare professional or type of treatment.If any person is considering pursuing any form of alternative treatment, then it is best to satisfy yourself that you are making the most informed choice possible and weigh up the risks and costs involved.

If you wish to know more about both clinics then I suggest you do a Google search for the name of each clinic together with "Schroth" and see what other people are saying about them.

I think that it is a shame that you have told us you don't want to take painkillers, especially as you say your back is agony and you cannot go on with it. It sounds like painkillers could really help you, plus they are free on the NHS. But again, this is your choice.

Regards,

Toni

Amazed Jean
28th September 2007, 06:39 AM
I can add that from personal experience that the best advocate and caretaker of your health is you. You have to be the one who researches, asks more than one doctor or clinic, talks to other people, surfs the net or whatever it takes to be sure you are doing what is comfortable for you. Ultimately it is you that you have to live with whatever course you decide to take. Every case of scoliosis is different - there are hundreds upon thousands of people with scoliosis and so far no two are ever alike. I wish you good luck whatever course you take and please keep us posted. You will have lots to add to SSO.

mark
28th September 2007, 09:18 AM
As Toni says we as a website we can not be seen to advertise, endorse or favour any one paticular method of treatment or clinic providing that treatment. All we can do is inform each other on the experiences we have had be they negative or positive.

Which ever method of treatment you decide i look forward to reading about your experiences.

caro
28th September 2007, 09:07 PM
Thank you for your replies. I appreciate that this website is unable to endorse or recommend actual services or providers and of course, you are right - the only person who really knows about my body is me. However, it is very difficult, even with the benefits of Google research to know what to do for the best.
It has been suggested that it would be a good idea to investigate Schroth clinics in Barcelona or Germany - does anyone have the website of the Barcelona clinic? Then I could look into it (I have Googled but not had much success so far). Both my husband & I speak Spanish so it could be a possiblity.
I am willing to try things out. I am waiting for an appointment with a physio on the NHS for example, but yes I am very reluctant to become dependent on pain killers at what I consider to be quite a young age :-)
I hope to be able to share my experiences of whatever I do on this site - but was really hoping someone already had!! :-o

tonibunny
28th September 2007, 09:56 PM
Hi Caro,

Thanks for understanding that we can't recommend any treatment that we haven't personally experienced. There's little more we can tell you beyond the discussions we have had regarding the UK clinic, which you've already read. You're definitely doing the right thing, in searching the web for people who have had real experiences at the various clinics. It will be great to hear how you get on :-)

The Schroth Clinic in Barcelona is run by Dr Manuel Rigo, and is called the Instituto Elena Salvá. I'm afraid that I can't find a website for it, but that's probably because I can't read Spanish! However, Dr Rigo's email address is rigo.quera.rehab@eresmas.net .

As far as I know there are two German clinics. The following clinic is run by Dr Hans-Rudolph Weiss, who is the grandson of Katherina Schroth herself: Asklepios Katharina-Schroth-Klinik, Korczakstr. 2, D-55566 Bad Sobernheim.

There's also a clinic that I know of in the US; it's based in Wisconsin and is called Scoliosis Rehab Inc.

I can understand how you're worried about the longterm effects of painkillers, but maybe taking some in the short term might help until you're able to sort out a physical therapy?

Good luck, I wish we could be of more help! Please stick around and hopefully we can help keep you cheered up, anyway :-)

Toni xx

caro
28th September 2007, 10:06 PM
Thanks Tonibunny,

Must admit I was close to tears with it all earlier on. Why isn't anything simple!?! :evil:
I'm going to compose an e-mail for Dr Rigo and try and find out about the Spanish clinic. Can't believe it is so difficult to find it.
Thanks for your help.

GillyG
28th September 2007, 10:10 PM
Good luck with the e-mail Caro. If you do go, be sure to come back here and tell us first-hand all about it! :-)

Gilly xx

caro
28th September 2007, 10:28 PM
Haven't got very far - the e-mail was returned as a delivery failure. Arghhhhh! So close!
If anyone else has a lead please let me know! TIA

sins
29th September 2007, 12:58 PM
Hi Caro,
I can understand how frustrating it must be for you, trying to find the best course of treatment while trying to deal with the pain.
If you want to speak with people who have actually undertaken a schroth course then perhaps check out the German based website
http://www.skoliose-info-forum.de
They have an english speaking section where you can read previous posts and can ask your questions.
Also Pm Sadie here on sso.She has travelled to Germany to see Dr Weiss and has had a consultation for her daughter.However her daughter's curve progressed very rapidly to 100 degrees and had surgery and never had the chance to try Schroth.
For adults who have pain and smallish curves where the NHS has nothing to offer them I see no reason why you shouldn't explore alternative methods.
My only worry is that it's an expensive undertaking and that you should make sure you're getting the very best value for your money.
If you're interested in Schroth, then have a consultation with one or more of the clinics, and satisfy yourself that you're comfortable and happy with the program.
Ask about the credentials of the therapists, their experience,training and qualifications and how they became involved in Schroth.
The least financial outlay involved the better, so if you can get a free consultation then all the better.
As an adult who is not a surgical candidate and a stable curve, you have nothing to lose but money.
The reason we are slow to recommend any course of treatment is very valid.It's not that we're a dismissive bunch or don't want to help people. But in my role as co founder of the Scoliosis Support asociation Ireland I have received a number of e mails from parents of young teenage girls who have been trying alternative therapies, from exercise therapists to chiropracters and alternative therapists who promised to "straighten out" their children.
In every case the curves have relentlessly progressed to need surgery, and some even progressed to a very severe and uncorrectable deformity.So you can understand why any alternative therpay will be greeted with negativity on this site.
However this situation is different to yours and if you feel you want to try it for yourself, then by all means check it out.
If you decide to opt for a schroth based therpay, then please share your experiences with us, it's only by sharing experiences and information that we can build up a true picture of how effective a treatment can be.
Sins

titch
29th September 2007, 06:31 PM
As another of the founders, what I'll say is that as long as you have the money to afford to try the treatment, and you feel comfortable with the practicioner (which unfortunately you'll only really get a feel for by actually speaking with them I guess, although of course testimony of others can be extremely valuable in helping you make a decision if you're still uncertain despite talking to them), then as an adult with stable curves I say why not try it :-)

As Sins has said however, in years on this and other forums, I've seen too many people who have been promised cures and told that the treatment is working, only to find that things have progressed significantly and the situation has become much worse even while they were told that they were improving. So generally speaking, even with adults I would advise to be under the care of a scoliosis specialist in addition to the alternative treatment if you are interested in gaining a genuine reduction of the curvature so you can always check what you are told by the practicioner against a consultation and xray by an orthopaedic specialist.

For pain reduction in adults though, the main caveat I would give is that while there is a certain truth to the old idea of no pain no gain, if you're suffering anything more than muscle fatigue which will resolve in a couple of days you may need to think carefully about whether it's really helping. Pain relief in and of itself is certainly an excellent goal of any treatment, many of us here know what it's like to live with chronic pain and anything which can help relieve that is extremely valuable.

All of that said, there is definitely a big argument to be made for non-invasive therapies aimed at improving core strength and thus reducing pain - it's something seriously overlooked by too many consultants, so if you decide to proceed with alternative therapies I very much hope they work for you and would be really interested to be kept up to date with how it's going :-) I would also suggest talking through the idea of painkillers with your GP though, as it's really not necessarily a case of starting them and then never stopping. Sometimes you can just get to such a point that taking - for example - a low to moderate dose of NSAID (non-steroidal anti-inflammatory drug) painkillers such as ibuprofen, diclofenac or naproxen (the latter 2 being prescription only) for a few days to a few weeks can in some cases help everything get back to rights, as it allows you to move better and guard less due to the reduced pain :-)

Sealy
1st October 2007, 02:27 PM
I have nothing to add to this post but I wanted to comment on Titch's photograph - you look absolutely BEAUTIFUL! :oops:

caro
11th November 2007, 02:16 PM
just to update those who are interested - I have now been for my initial consultation at SOS and am very much considering the treatment. I was impressed with the place and the Dr I saw and for the first time in my life someone talked to me as if I wasn't a lost cause!

sins
16th November 2007, 04:34 PM
Glad to hear your initial consultation was encouraging.Let us know how it all goes for you if you decide to opt for the treatment,your experience may be very valuable to many who are considering non surgical therapy.
Sins

scolioscott
16th November 2007, 07:18 PM
Don't think I'll be much help (as usual) but I know how I felt when I was considering this for my eldest daughter. You want somebody to tell you what to do really, but know they can't as you have to make the choice. It just all feels too much sometimes.

I think you're doing the right thing to try it out, otherwise you'll always wonder "what if?", and then you can tell us all about it too! We decided against it for our eldest daughter, but we do have another with scoli, so I'm always open to ideas.

H 8)

caro
16th November 2007, 08:21 PM
Well, I have decided to go ahead with it. Apart form the money and the time (!) what have I got to lose? There really doesn't seem to be any alternative that I can find and I am concerned that as I get older my back is going to get worse and worse.
As I'm a teacher I'm booked on to the summer course so that I don't miss too much school, so nothing is going to happen for some time.
I did research going to Germany and Barcelona (as I can speak both languages) but really didn't get very far. Also having a toddler it'll be much easier to be our own country (albeit at the opposite end!) so that friends and family can come and visit and help make it less of a chore.

I'd still really love to hear from anyone who has completed the course so if there's anybody lurking....!

hmftd
22nd December 2007, 10:04 PM
Hi Caro, Good luck with the Schroth treatment, I have been trying to find more about this method, but been singularly unable to find much. I have doing pilates with a qualified physiotherapist/pilates instructor who is also trying to find out more about the schroth treatment. The pilates has been changing my back, and possibly helping more dedicated exersise might help. If my pilates instructor can find more definitive info I'll pass on.
HairyMary

caro
23rd December 2007, 02:24 PM
Thanks HM. If your pilates teacher can help that would be brilliant.

Merry CHristmas!

Rosy
17th January 2008, 01:42 PM
Hi Caro

I have been reading your thread with interest. I have an 'S' curve and have more recently been getting discomfort and pain and when I was alerted to the Scoliosis SOS clinic I was quite excited.


I have now made the decision to go ahead with it as it seems to be a worthy investment. I have previously done Alexander technique, Feldenkrais and Pilates and have found them all useful for keeping my spine active and, in particular, the pilates was useful for building up my stomach muscles which assisted my spine, but none of them have addressed the issues I have had with muscle imbalance on either side of my body due to the S curve. I am hoping the course will assist with this and hope to do it later this year.

I would be interested in hearing about how you find the course and will put my own views up once I have done it.

Rosy

jfkimberly
17th January 2008, 02:38 PM
Oooh, Rosy, wonderful that you are trying this and will post your impressions! Can you share your pre-Schroth measurements with us? And, while pain is subjective, maybe we should establish a pain scale, like they use in hospital, so you can quantify it as best you can, then throughout treatment let us know if you notice a reduction in pain levels (which I anticipate being the biggest benefit to the treatment)... Perhaps a scale of 1 to 10, 10 being the worst pain imaginable? (I like quantifiable data so I can manipulate it to evaluate the results.)

Sandman77
17th January 2008, 07:29 PM
Rosy welcome to my "team" ;)

Im Schrother at the moment in a clinic... :)

Am getting a support brace alongside though...

caro
17th January 2008, 08:23 PM
Rosy! Its wonderful to hear that someone else is doing this. When are you going? I'll be there 15th July-ish - can't remember exact date.

jfkimberly
17th January 2008, 10:11 PM
Caro, you too! Can we get some pre-treatment figures? Finally, some first-hand real numbers to look at. This is exciting.

Rosy
18th January 2008, 02:07 PM
I would be happy to share details of measurements however it has been a number of years (like 15 or so) since I have been measured by a surgeon and I don't know my exact details - my curve(s) has appeared to stabilise but without seeing a doctor I am not clear on this. For my own treatment, I feel the measurements are less of a concern.... I know that Schroth measures curves but it appears to be done differently to how I have had it done in the past (would be happy to hear other people's views on this as I am not particularly knowledgable about this).

I am more than happy to do the pain threshold thing if it helps other people.

caro
18th January 2008, 08:09 PM
I have a COBB of 30 degrees. I also have some other measurements which are right at the top of my house - but as my back is agony this evening - I'm not going to go all the way up and get them! Sorry - will do in the next couple of days. I think the pain is also stress related - we have Ofsted next week!!

Will aslo happily do pain threshold thing...or anything really if it helps.

Thaleias spirit
26th January 2008, 01:37 PM
I found this on the Sky News website this morning ...


Help For Spine Sufferers - With No Rods
By Thomas Moore
Health correspondent Updated:01:09, Saturday January 26, 2008


A new clinic is claiming to reduce the pain from a disabling back condition, with nothing more than physiotherapy. Advocates of the controversial technique say it may even stop the spines of scoliosis sufferers becoming progressively twisted.

Scoliosis SOS is the first clinic to use the intensive Schroth exercise programme, which was developed in Germany in the 1920s. It works by relaxing and strengthening muscles on either side of the curved spine to help correct the deformity.

Therapist Dr Olga Gronowska explained: "We are hoping to stabilise the curve, because the main problem with scoliosis is the progression throughout life. We can stablise the curve and improve the posture and what the patient looks like."

Ayesha Jones, 17, paid £2,400 for the four-week course. Her backbone was so contorted that her ribs were squashing her lungs, making it difficult to breathe.

Hospital specialists told her that the only option was a major operation to straighten her spine. But the risk of paralysis drove her to seek an alternative.

She says the exercises have helped. "I feel straighter. I've got more lung capacity. I can breathe better. I feel more confident with my body. And my clothes fit me a lot better." She'll have to do 30 minutes of exercises every day to maintain her new posture.

But spinal surgeon Mr Jonathan Lucas warned there is little scientific evidence that the technique works.

He said only an implant of rods and bolts can permanently straighten the spine.

"What we can do is correct the curve. We can take away the asymmetry of the shoulders, and significantly improve their cosmesis. Only surgery can do that."



Link: http://news.sky.com/skynews/article/0,,91251-1302500,00.html

Sandman77
26th January 2008, 02:30 PM
Great find that news!!! There are tons of pics of people before and after and well thats proof enough... Sure a doc will say that they alone can do it otherwise hed loose his job...

tonibunny
26th January 2008, 08:14 PM
That's not bad, Scoliosis SOS are no longer claiming that they can correct scoliosis, only that they may be able to help stop it from progressing. Remember, they don't provide bracing as the other Schroth clinics do, so they won't be able to achieve the same results. I'm glad they have a spinal specialist stating that only surgery can correct curves.