View Full Version : spinal tethering

30th August 2004, 09:30 PM
Hi, you may remember me from slife, i wos pinksheep there as well, my real name is lottie though and i love sheep which many people think is wierd!!

wen i wos 5 i wos diagnosed with a tethered spinal cord and had a fatty lipoma on the base of my back, if it had been left it could have left me disabled. So i had surgery to detether it, it left me short of nerves and stuff in my left leg so now it is thinner, weaker and 2cms shorter than the other.

When we thought i wos through all that my mum noticed, when i wos 11, that i would always lean to one side and would have uneven shoulders. They took me to the specialist and i wos casted for a brace.I think my curve wos 19 and 30 degrees T12 to L5 and has remained that way. Over the last 3 years i have worn various different braces which has been really hard at school getting changed and stuff.

But now it all seems to be finishing, i wos signed of the great ormond street hospital cos it is unlikely that my spine will rether and HOPEFULLY in feburary i will no longer have to wear a brace! and will get away without surgery.

So basically i wos wondering if anyone else has got scoliosis because of other problems and wot....it would be great to hear from people...
Lottie xx :angel:

30th August 2004, 09:39 PM
hey lottie my scoliosis waS because of my chiari malformation. i am happy to hear your getting better!

30th August 2004, 09:39 PM
Hi there Lottie!!!! It's great to see you here :D


I'll keep my fingers crossed for you for February! I bet you can't wait to get out of your brace :D

Toni xxx

30th August 2004, 09:45 PM
Hi Lottie :welcome: good luck for February :squeeze:

30th August 2004, 11:45 PM
keeping my fingers crossed for you about your brace! you must be counting the minutes!

31st August 2004, 02:26 AM
Hey! My name is Lindsay and i'm 15... WELCOME WELCOME !! :D

31st August 2004, 03:12 AM
Hi! I have scoliosis because I also have NF1. www.nf.org

Hope you get out of your brace, I'll keep my fingers crossed!

31st August 2004, 03:13 AM
Glad you found us! :wave: Best of luck with the curves - braces are horrid.

31st August 2004, 03:54 AM
Hi Lottie. Good luck in February... I hope you get out of the brace and get by without surgery! How old are you now? About 14? 15?

3rd September 2004, 02:17 PM
Hey and welcome!
I have scoliosis because of a problem too...not paying enough attention to myself. J/k
I've never worn a brace, but I can sympathise, so good luck for when February comes!