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sins
21st April 2004, 12:12 PM
Kimberly's post has reminded me of a very common problem among patients who have had scoliosis from a young age, namely reduced lung capacity.If anyone would like to share their experiences here, the following information might be helpful to new users.
I have infantile idiopathic scoliosis with a lung capacity of 52%.
The current treatment for this is in the form of inhaled medication which is also used for asthmatics. Albuterol(Ventolin) and Beclamethasone Dipropionate(Becotide).It has dramatically reduced my frequency of Lung infections over the past two years and has reduced the amount of inflammation.
This level of lung capacity has not really affected my daily life apart from increased breathlessness under exertion although it caused some difficulty for me when I developed a chest infection late in my second pregnancy and developed pulmonary oedema following a general anaesthetic for the delivery.
Sins

DublinPauline
21st April 2004, 12:35 PM
As I mentioned in my medical history post, my congenital scoliosis has led to a restriction in my lung capacity and overall pulmonary function. This is the area of my health that most concerns me.

My Total Lung Capacity measured 47.7% in January of this year and my Vital Capacity was 44%. The good news is that these figures have been consistent since I first started getting tested, back in 1987 when I was 21. :-D I feel to some extent like I'm battling the odds because all lung capacities decrease over time, so maintaining capacity is good going. (A healthier lifestyle, more walking, less time in smokey pubs (now eliminated in Ireland :-D :-D :-D ) must be partly the reasons)

Also, my O2 and CO2 levels are within the normal range - unfortunately it takes my beloved arterial blood gas test to tell me this but it is quick and is worth it for the insights into how well your lungs are operating.

My restricted lung capacity hasn't much impacted on my life. I try to stay fit by walking and talking part in step and pilates classes but can't handle climbing. I haven't any problems with recurrent infections.

Like Sins, I had a major blip in 1999 after childbirth. I gave birth to my daughter at 38.5 weeks under a general anaesthetic. I had had a good pregnancy, up to week 37 but after that I felt out of breath and tired even on any mild exercise. Of course, I assumed this was normal late pregnancy breathlessness. After the birth, I suffered from pulmonary oedema. Then, when I was three days home, I had to be rehospitalised and was oxygen dependent for almost a week. I now feel that more careful monitoring of my oxygenation during the pregnancy, an earlier birth and careful management postpartum could have avoided or reduced the severity of my problems - There is no reason for this to happen these days.

I am happy to be now under the care of an excellent Respiratory Physician in the Mater Hospital in Dublin. Dr Sean Gaine, was Assistant Director of Respiratory Medicine in the Johns Hopkins Insitute in the US until a few years ago. He has outlined for me the risks of such limited capacity and possible interventions to maintain health in the medium to long term. He has specialised in Pulmonary Hypertension (PHT), a serious condition that can result from continued restricted lung capacity. He has mentioned the possibility of nocturnal Non Invasive Ventilation at some stage to prevent the onset of PHT. This is obviously not something I would relish but I think that I am lucky that this will be an option. I know that it is possible for people to live regular lives and effectively to prolong the life of their lungs using this type of intervention so why not?
Sorry if this is too long but it is a subject close to my heart :hammer: :hammer: :hammer:

mark
21st April 2004, 12:42 PM
I have severe kyphosis and had it from birth the last lung function i test for which was in February was 150 ml down from the average and 450 ml down from the top.

I did suffer from asthma as a child and was hospitilsed three times with it first time when i was a baby second as early teens and third time when i was 18. I suffer a lot from allergies and had to have injections every summer for pollen when i wa a child.

I still manage to play football but you should see me when i have finished i look about ready for a heart attack. When i slleep on a night i can not lie on my back as i feel like i am drowning.

I think i kind of grew out of the asthma but i still suffer from allergies dust, housemites, cat / dog hairs (hence our dog is one that does not shed hair) and my allergy to hose dust is a great excuse for getting out of doing the house work

I suppose i should give up smoking as well. Well i am trying but its hard

:roll:

Jessica*
21st April 2004, 02:11 PM
When I have my appointment in September to consider a thoracoplasty, I'll hopefully know then my lung capacity. I really want to know *sobs*

tonibunny
21st April 2004, 04:02 PM
I also have infantile idiopathic scoliosis, and was fused from T1 - T12 when I was aged ten. My lung capacity is about 47% of what it should be, but I am not currently receiving any treatment for this as it does not seem to affect me greatly. There was the worry last year that I was suffering heaches due to nocturnal hypoventilation, but after a sleep study was done it was found that this was not the case. The only way that I am affected by my reduced lung capacity is that I get fatigued and puffed-out very easily.

jfkimberly
22nd April 2004, 01:19 AM
Oh my gawd, tonibunny! THANK YOU SO MUCH for posting that term, "nocturnal hypoventilation." Nobody's ever mentioned that risk to me before, and I often wake up with a headache and short of breath. I'm going to talk to my pulmonologist (who isn't well-versed in scoliosis, apparently) to see if she can order a sleep study. I need a scoli consult. Clearly, going ten years without followup for my severe case was a bad idea. At the least, I'm missing out on important aftercare tips.

-kimberly

DublinPauline
22nd April 2004, 11:42 AM
Kimberly

This nocturnal hypoventilation is something my respiratory doctor is also concerned about. The good news is that there are now devices called Non Invasive Ventilators (NIVs) which people can use at night to deal with this and the rest the lungs get at night allows them to oxygenate more efficiently during the day as well. I know that it sounds dreadful but I am hopeful that this can help me maintain my normal lifestyle even if my lung function does deteriorate in the years ahead. Unfortunately, if you're hypoventilating regularly, you're putting pressure on your pulmonary artery which is why secondary pulmonary hypertension can develop over time.

Do see your doctor and maybe see if she can refer you on to somebody with more experience of scoliosis? At least get her to do a full set of tests (spirometry, blood gas, sleep study) so that you know your exact status.

Pauline

iamcrooked
22nd April 2004, 02:11 PM
Ive had it since birth and well I was to do some breathing technique after surgery as child but no one ever made me do them and I forgot how to do them...

Marti
24th April 2004, 07:01 AM
I&#39;m constantly dizzy and am suseptible (sp) to pneumonia, but my lung capacity is normal. My pediatrician hoped the dizziness would go away after my surgery, but it hasn&#39;t. I&#39;m still hoping working on my breathing in my voice lessons will help. :bear: <----- I know this doesn&#39;t match what I said at all, but I really wanted to use it&#33;

BlueIce
24th April 2004, 01:01 PM
I&#39;ve got a question about this.. do you need to know your lung capacity before you get operated? cause i&#39;ve got absolutely NO clue about mine, and it&#39;s never been checked... I do wonder about it though, it&#39;s quite important to know if your lungs work well or not :roll:

sins
24th April 2004, 05:29 PM
It depends on the size and location of your curve.If you have a large thoracic curve, they might check it out before surgery, but for idiopathic scoliosis that you get in your teens It will never cause the type of damage to your lungs that having scoliosis as a baby will. If the hospital has any worries at all, they&#39;ll do whatever tests are necessary to make your surgery safer. I had 66% lung capacity at age 15 and had no problems.I&#39;m sure you have nothing to worry about.
Sins.

floralgypsy
24th April 2004, 11:18 PM
I had my lungs tested as part of the routine pre-admission clinic for scoliosis. I had to blow into numerous tubes and I knew my lungs were not as brilliant as they should be when he turned and asked me if that was all I could do. Those last couple of seconds when you blowing for a length of time really hurt. I could hardly walk afterwards.

I suffer from dizziness too, but I relate it to stress and anxiety. I can feel myself getting hot and shakey just before I start to feel dizzy.

jfkimberly
25th April 2004, 08:52 AM
I hate pulmonary function tests (blowing into all those tubes). I always have a headache when I&#39;m done, because I try to do as well as I can.

Carly
26th April 2004, 05:16 AM
are lung checks a normal aprt of scoliosis check ups? because i have never had one..

DublinPauline
26th April 2004, 10:01 AM
No, I don&#39;t think so. In my case, I was referred for pulmonary function tests when I was 20 because I was being released from the Scoliosis Clinic and they knew that I had very restricted lung capacity due to a thoracic curve of 100 degrees plus.

Liv
26th April 2004, 11:20 AM
Originally posted by BlueIce@Apr 24 2004, 12:01 PM
I&#39;ve got a question about this.. do you need to know your lung capacity before you get operated?
A spirometry (lung fuction test) and an ECG are standard pre-op tests... It could be that you have this done the day before the surgery, Leen. I had them a couple of months before the op and I have only 65% of total lung capacity. :woe: But the surgery wasn&#39;t a problem.

Sarah
26th April 2004, 05:34 PM
I have congenital kyphoscoliosis. My lungs only became slightly breathless when my kyphosis continued curving.

Since I had surgery for it now it makes me tired quicker and puffed out quicker than before. I had 2 lung function tests but I don’t know the percent of it, my surgeon just said it was ‘ok for my situation’. So my GP has me blowing in those peak flow puffer things every so often if I go moaning about breathlessness and has me on a brown and a blue inhaler because he wasn’t sure whether it would be back related to my lungs or asthmatic.

sins
26th April 2004, 07:03 PM
A lot of severe scoliosis patients take the blue and brown inhalers sarah.They made a huge difference to us and I suspect quite a few of us here are on them.
Liv,
My lung capacity was 66% before my op and as I didn&#39;t get any correction it made no improvement to my lung function.In your case did the correction improve your lung function tests?You got an excellent correction of a very large curve.
sins.

Liv
26th April 2004, 07:32 PM
I never have a post-op lung function test so I don&#39;t know, Sins. But I really don&#39;t think so. Maybe I gained a couple of milliliters but certainly not more&#33;

Little~shedevil~dee
26th April 2004, 09:27 PM
i havent had my lungs tested i some times find it realy hard to breath maybe i should ask to see if i can have one done

BlueIce
26th April 2004, 10:19 PM
Originally posted by Liv+Apr 26 2004, 11:20 AM--></div><table border='0' align='center' width='95%' cellpadding='3' cellspacing='1'><tr><td>QUOTE (Liv @ Apr 26 2004, 11:20 AM)</td></tr><tr><td id='QUOTE'> <!--QuoteBegin-BlueIce@Apr 24 2004, 12:01 PM
I&#39;ve got a question about this.. do you need to know your lung capacity before you get operated?
A spirometry (lung fuction test) and an ECG are standard pre-op tests... It could be that you have this done the day before the surgery, Leen. I had them a couple of months before the op and I have only 65% of total lung capacity. :woe: But the surgery wasn&#39;t a problem. [/b][/quote]
I think i&#39;ll give my doc a call and ask him.. I&#39;m quite curious about my lung capacity, i never seemed to have problems with it, but i&#39;d like to know for sure

jfkimberly
27th April 2004, 02:39 AM
Actually, my pulmonologist gave me the tests before my brain surgery in 2002. I had various options for dealing with the tumor (radiation, surgery, or "wait and watch" to see if it was growing), and I wanted surgery if I could have it. After the tests, my pulmonologist told me, "If surgery is your choice, sooner is better than later." She didn&#39;t say no. She said to do it while I was still in okay shape (because I&#39;ll get worse as I get older, I guess?). So if I was cleared for that, maybe I can have surgery to straighten my spine.

I&#39;ll find out sooner or later. I reminded my father (who is my sponsor, so he has to make the calls) that I needed an appointment at the clinic so I can get referred to a scoliosis specialist. Maybe he&#39;ll remember to call tomorrow. *smile*

titch
29th April 2004, 09:41 PM
*wearing admin/mod hat* If you&#39;re wondering where the rest of this topic is, it&#39;s because I moved it into the Common Room :-D Here&#39;s the link: Trig exams and Tricare (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=100)

chrisfrie
3rd March 2005, 02:07 AM
Hi&#33; This is the first time to your forum. Thank you for providing such a great service. My question is does anyone have thoracic lordosis along with scoliosis? I have both which is effecting my lung capacity. Also if you have information on this spinal deformity. Most information relates to thoracic kyphosis which is the opposite and most lordosis is in the lumbar region. In horse language, I would be a sway back&#33;

Thank you&#33;
Christine

tonibunny
3rd March 2005, 02:19 AM
Hi Christine, welcome to our site&#33; :D I will look for some information for you, as I&#39;m not familiar with it myself, though I&#39;m sure other people here will be able to help. Where in the world are you from? How old are you (if you don&#39;t mind me asking)? We love newbies here, please do post and let us know all about you :D

jfkimberly
3rd March 2005, 07:47 AM
Hi, Christine, and welcome to SSO&#33;

I&#39;ll wait for Toni to help you with your questions. But please do share as many details with us as you care to. I&#39;m 31, congenital scoliosis (thoracic) fused at 11mos and refused at 18mos, 25-30% lung capacity, and I&#39;m on BiPAP at night.

Vicki
3rd March 2005, 08:57 AM
Hi Christine :)

I&#39;m 21 with scoliosis from birth fused at age 5, then harrington rods at 10. I have around 30% lung capacity but I&#39;m not actually treated for it, I just have annual appointments to keep an eye on me&#33;

titch
3rd March 2005, 11:22 AM
Hi Christine, :welcome2:

I&#39;ll have to have a hunt around and see if I can find any information on thoracic lordosis. I actually had kyphosis over T10-L2 as a result of my first surgery, with thoracic flattening secondary to that and a small amount of upper thoracic lordosis (it could be seen while lying down on MRI) which the first doc I saw described as showing that I was compensating well... I had salvage surgery done by a different surgeon in the end, and now have a somewhat more normal profile to my spine.

sins
3rd March 2005, 12:14 PM
Hi and welcome,
I do remember meting someone on another message board last year who was having surgery for Lordosis.I&#39;ll try and track them down and see how they&#39;re doing.

Jonny
3rd March 2005, 06:29 PM
Welcome to SSO Christine :wave: I had no idea there&#39;s such a thing as thoracic lordosis&#33; I have some upper thoracic hyperkyphosis - my scoliosis (and kyphosis) was corrected almost completely last summer, but my hooks pulled out of T3 and I&#39;m about to go in to have my fusion extended to T1.

I&#39;m 16 and live in England :-)

butterflylr
3rd March 2005, 10:43 PM
Hello Christine&#33;

I&#39;m 23 and live in the US. I have a double curve of about 45 and 30. I have never had surgery and if things keep going as they are, never will... I am currently doing some physical therapy to help deal with the pain.

Hope to see you often&#33; :welcome2:

DublinPauline
11th March 2005, 12:19 AM
I just had my annual visit to my respiratory physician today and he was satisfied that all is stable in terms of Vital Capacity (still around 45%), oxygenation (95.9%), etc. My CO2 levels in the blood gas were slightly up but he said he wouldn&#39;t be concerned at this point but he will keep an eye on it. He advised that I keep up exercise at as active a level as I can to maintain my heart and lung function. As usual, he said that a nocturnal Bipap or C-pap type device would be invaluable once he sees any signs of deterioration and I find that reassuring.

One interesting point he made is that the biggest thing I should be wary of is contracting a respiratory infection of any kind and he gave me a little talk on the importance of hand washing to avoid infection. I heard it first here on SSO. :-) He explained that what could be a simple cold for someone else could be extremely serious for anyone with compromised lung function.

On the topic of passing on respiratory infection....
In the Catholic church here in Ireland, there is a tradition of shaking hands, ie: making the sign of peace, at a certain point in the mass. This involves friendly shakes with anone within a reachable radius and can be very sociable. (I&#39;ve seen people embrace the people around them in rural villages in France but that&#39;s a different story :oops: .) He says this can be lethal as germs happily get transferred from hand to hand. He says he recommends that people at serious risk of infection wear lightweight gloves. :-o

Marti
11th March 2005, 01:07 AM
there&#39;s that tradition here, as well as holding hands during the lord&#39;s prayer. I try not to shake anyone&#39;s hand if I&#39;m sick. And I always make sure to wash my hands right away when I get home.

Amazed Jean
11th March 2005, 05:35 AM
Yep, My Gp just restated the same thing to me and specifically said to stay home from church or out of schools were hand touching was done. No more passing peace at our church or shaking hands and get this, he said we should avoid his office or come first thing in the morning when every flu bug wasn&#39;t hanging about on door handles and magazines. He reminded me that staying home from the grocery and washing off more than just the top of soda cans was important. I&#39;m starting to get a little paranoid about the whole thing. We were trying to be lots more careful so baby Aiden wouldn&#39;t catch anything from us - but I wonder if in a few years he would be a priss because we keep washing stuff off.

jfkimberly
11th March 2005, 07:21 AM
Dr. Campbell issued similar warnings. He told me the next chest cold I get could... uh... progress to pneumonia that I might not recover from, or it could further impair my lung function. I&#39;ve been avoiding illness for a long time, anyway, but he really stressed the importance. He also told me to get whatever vaccines are out there (particularly the flu shot).

sins
11th March 2005, 12:21 PM
There&#39;s also the pneumococcal vaccine available.My mother is always hassling me to get it but I haven&#39;t done so yet.
I&#39;m picturing a very ladylike Pauline at Church in her delicate lace gloves
shaking hands like the Queen :-D :-D
I don&#39;t have any problem shaking hands in church.I just always wash my hands when I get home and make sure not to touch my nose or eyes with my hands.
At risk of sounding like a hygiene freak, I bought a steam cleaner last year that cleans surfaces with hot steam at 140 degrees.I steam door handles etc and wipe pc keyboards with dettol as well.I keep away from phones at work that have been used by colleagues with colds and thankfully I haven&#39;t had a chest infection since 2002.I guess being a microbiologist, it comes a lot easier to me.
I&#39;m glad your appointment went so well Pauline,you&#39;ve earned another reprieve from bi pap. :bounce:
Sins

jfkimberly
11th March 2005, 12:30 PM
Oh, right. I had the pneumococcal vaccine when I was ~5, and a booster about 3 years ago. At first they were saying you only need to get it once, but now they&#39;re thinking every 5 or 10 years? I don&#39;t know what interval, but definitely get updates.

Amazed Jean
11th March 2005, 02:03 PM
I get flu shots every year and I&#39;ve also had the pneumo vax twice - the interval that the Doc told me is 5 years so I just had it again. I&#39;ve only had a slight reaction to the pneumo vax this year. It was a swollen arm and for the first time my whole arm hurt like crazy for 3 days after. Just lucky, I guess.

lindzi_11
12th March 2005, 05:45 AM
My 2nd follow up was alright.

I have to get Pulmonary Respitory Function Tests :roll:
I&#39;m always short a breath and so they suggested that....

Pikey
23rd March 2005, 12:33 AM
i&#39;ve just noticed i cann&#39;t breath as well as i used too and when i take a big breath my spine hurts like hell , when i had my neck op the nurses kept coming up and saying they had to come real close to see if i was still breathing as i didn&#39;t seem to take any air in .I wonder if thats why I cann&#39;t sleep at night .

jfkimberly
23rd March 2005, 06:52 AM
Hey, Pikey... long time no see.

What you describe might warrant a checkup. Long before I was diagnosed with nocturnal hypoventilation, people who saw me sleeping would comment later that it looked like I wasn&#39;t breathing. As it turns out, I wasn&#39;t breathing deeply enough. I stopped dreaming sometime years ago, and the sleep study revealed that just as I&#39;m entering REM sleep, my pulse ox drops, and I wake up. I haven&#39;t had a good night&#39;s sleep in years.

Amazed Jean
23rd March 2005, 09:43 AM
Hello Pikey&#33; We miss you&#33; (Need to go shopping at the grown up store?) You need to have a lung guy look at you and find out what can be done to enhance all the lung function and capacity that you have. I am so much trouble because I kept ignoring my difficult breathing, and bad headaches etc. When they do the lung function tell them to use figures from your arm span (corresponds to actual height). Good Luck nice to hear from you.

sins
23rd March 2005, 12:50 PM
Hiya Tim,
Although you did have a fusion at a very young age, you seem to be of normal height with a regular size torso.It&#39;s unlikely you had major lung damage, but there may be other reasons for your pain.You really need to find a new GP and have that old Harrington rod checked out.It&#39;s simply not good enough to accept that once you&#39;ve been discharged,it&#39;s over and done with.Stress also causes breathlessness and sleep problems so I think get a new Gp although it&#39;s a bit of a hassle to do this.
Look after yourself.
Sins

Pikey
25th March 2005, 07:05 PM
Hiya Kimbo , i&#39;m getting the feeling that I have a similar thing .The Doc gave me some sleeping tablets but i still woke up the first couple of nights when taking them , they just made me feel more exhausted .Then i up th dosage and i finally got a good nights sleep but i wont be telling the Doctor that .Trouble is now i&#39;m getting pulpatations , my heart seems to stop beating for a second or too , i got my wife to take my pulse and she was shocked when the beats stopped .She wants me to get checked out but i&#39;m sure it&#39;s to do with stress , well least I hope so .
Thanks Sins but my torso is actually 4 inches shorter than it should be .
Maybe this Aitkins diet i&#39;m on is messing my heartbeat about .
Oh and hiya Barmy , nice to see you on here too as well .God bless all .<><

Marti
25th March 2005, 09:58 PM
Tim, you really should go to the doctor... heart palpitations are not a good thing. I&#39;m so glad to see you&#33;

Amazed Jean
26th March 2005, 12:20 AM
Tim, At the risk of sounding like a big pain in the butt all the dam doctor&#33; Do not fool around with med&#39;s PLEASE. We need you in this world all smart and sharp. I know that doctor&#39;s are a pain but you are tool old and too smart for trying to be bullett proof and invincible. (Remember I&#39;m the queen of that and it doesn&#39;t work&#33;)

Pikey
26th March 2005, 01:03 AM
I did actually go to my Doctor about 8 weeks ago and told him about the pulpatations , he just took my pulse and said my heart beat feels alright to him .I did tell him it comes and goes and normally happens when sitting down and relaxing or trying to sleep but he didn&#39;t seem too concerned .Mind you my Doctors not been the best in the world and I should do what Sins says and find another but I hate making a fuss .I have another month off work with garden leave , so i hope i can relax a bit with my time off .Thanx 4 the concern though .<><

Amazed Jean
26th March 2005, 07:25 AM
I don&#39;t want to be a pain in the ask but Pikey, when i told my doctor that I had palpitaions and that it comes and goes especially at rest, he said "Classic signs of several things let&#39;s check it out. " We had some tests and found a heart murmur that led to having EKG etc. and tha&#39;s how my leaky heart valve was diagnosed. Having it is no big deal, as long as I take antibiotics for dental work etc.

Pikey
26th March 2005, 10:24 AM
i&#39;ve just read that and gone all swetty and clammy .Heart murmours and leaking valves doesn&#39;t sound good .I&#39;ll book anothr appointment .I heard somewhere there was a connection between dodgey hearts and scoliosis , my daughter has 2 holes in her heart .I&#39;m off paragliding now to take my mind off it .Have a good Easter .<><

William
8th July 2005, 06:42 PM
My lung volume is at 21,6%... Did some minor exersize but aint aimed for people with Scoliosis in mind...

shortgirl
9th July 2005, 10:01 PM
Heart palpatations(sp?) can be a sign of something worse. But also, some people just get those and it&#39;s nothing major. My mother and I both get them. She has high blood pressure, but my heart and blood pressure is fine as far as the docs have told me. I find that my heart does that when I sit funny, it&#39;s almost like my back causes it...weird enough. But yeh, Tim...it&#39;s always better to be safe than sorry. My grandfather died in his sleep at age 60 from a heart attack...no one saw it coming....:(


Also...Tim...ATKINS DIET=BAD&#33;&#33;&#33; I don&#39;t know why so many people go on that. My parents are on it too, and they have only lost little bits ofweight and always gain it back. Not to mention that it is not healthY&#33;&#33;
Take a look at where Mr. Atkins himself is.. right now....DEAD&#33;

Ok enough scaring people.....hehe.... ignore me

Pikey
16th July 2005, 10:48 AM
Thanx Julie , i&#39;ll pop down the undertakers and see if i can get a special offer .I&#39;m not on the Aitkins diet at the moment and my pulpatations have gone since coming off it , so i reckon i have a few weeks left in me yet but thanx anyway you&#39;ve made me feel so ............eeerrrrrrrr............OLD .Old kidding , i love you really .

shortgirl
16th July 2005, 10:40 PM
I wasn&#39;t trying to make you sound old, Tim.. sorry&#33; hehe I just get all upset when I hear about people going on those diets when it involves taking out everything healthy in your diet&#33; Ug.. hehe Much love to you too, Tim&#33;

healthinjoy
12th October 2005, 02:43 PM
I know this will sound strange but it is so refreshing and comforting “hearing” other folks talking about not being able to breathe worth a hoot.

Am I the only one who uses diet and “alternative stuff” to keep my airways clear? Anyone else?
Joan

sins
12th October 2005, 03:47 PM
I think you are the only person who uses diet and alternative stuff&#33;&#33;&#33;
We had a brief discussion before about using diet to help but there&#39;s a TV personality Gillian Mckeith who has severe scoliosis and used some very unusual food substances which almost all of us agreed we could not or were not willing to even taste :-D
What foods do you eat?
Best of all, if you wish start off a new topic about diet and scoliosis then let&#39;s hear about it from a dietary point of view from someone who sticks to a disciplined diet.
Would be interested to learn more.
Sins

BeckyH
12th October 2005, 03:48 PM
what does gillian mckeith eat to supposedly help, sins? and just to be a bit nasty for a second - for a woman who supposedly is very healthy etc, i always think the looks very pale and skinny

sins
12th October 2005, 04:01 PM
she eats walnuts, almonds,quinoa,millet,raw shelled hemp seeds,sea vegetables,pulses,nettle tea,sprouted seeds,broccoli and cabbage.
She avoids red meat, crisps,Chips,alcohol,White rice,Chocolate,Whirte sugar,flour and pastries as well as flax seed energy bars."
being Irish and raised on Cabbage and spuds(Broccoli is positively exotic) I have no idea what even half those substances are :cry:

BeckyH
12th October 2005, 04:05 PM
well of the list she avoids, i regularly consume all but one (i&#39;m not a huge fan of red meat) but stuff that, i&#39;ve had surgery :D

oops - i mean, hey if it works for people, go for it. i&#39;m thankful that i don&#39;t have to learn what all those things are. my mum said she saw a TV advert for a magazine and mckeith really does look quite severe in the scoliosis department

healthinjoy
12th October 2005, 04:11 PM
Oh how funny&#33; How did you know? I have been thinking about a new post on nutrition.

When a person struggles to breathe they will go to great lengths. :-) I can assure you all that I was a regular meat head... cooked supper so I would be sure to have it for breakfast. MEAT&#33; HAD TO HAVE MY MEAT&#33; No one was going to fool with the way I ate, I assure you. But alas, after starting to experiment on myself I ended up getting nauseated when I ate meat. And I therefore ate none at all for about 8 years. Was a vegan. But now I eat fish occasionally... usually salmon... considered more alkalarian.

scoligirl
12th October 2005, 06:16 PM
I am sorry you are having trouble breathing, how do you know your torso is 4 inches too short? I was told I have a very short gap between the bottom of my ribs and top of hips so I am very short in the middle too. I am sure one of my lungs is bigger than the other(or just my ribs sticking out)

The Atkins diet is actually said to be bad for the heart by the way, get some fruit and veg.

Asthma people breath too much so breath less

Lizzie89
12th October 2005, 06:23 PM
I had no gap between my hips and my ribs on one side, they grided together as i walked at one point&#33; Salmon is good for you, as are most fish, lots of omega 3 and stuff.

The stuff to avoid probably makes up most of my diet at the moment, and besides they are fine in moderation, i thnk people get abit hung up on these things really. Unfortuantly im allergic to hemp seeds, what a shame :-P

Amazed Jean
14th October 2005, 01:43 PM
Scoligirl,
You can find a pretty close guess at your true height by measuring your arm span. So you measure from fingertip to fingertip while your arms are spread eagle. It should be closer to intended height for most people with a degenerative spinal disease. ( I&#39;m a short 4&#39;7" but if you measure my arm span - I should be 5&#39;5" to 5&#39;7".) I&#39;m sorry I can&#39;t convert this to whatever way you all measure but you get the idea.