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View Full Version : New here, got kyphosis and scoliosis


boofeemiggles
31st July 2007, 02:03 PM
hi, I am 24 years old and was diagnosed aged 15 with Kyphosis and Scoliosis, I was booked into the surgical hospital on Bolsover Street in London with Mr S Tucker but did not have surgery as they said I was too old. My left hip sits higher and sticks out which means that trousers tend to look like one leg is shorter then the other, my tops dont fit right cos the kyphosis, needless to say I dont feel that confident when I try to dress up, got nicknamed the hunchback which werent nice either. Anyhoo 3 kiddies later and a wonderfull husband helped me forget and just get on with it, but now I feel like its gotten worse, my ribs on my right fel like they are digging in, my left hip hurts like crazy when I walk and I been getting a pins and needles/fuzzy feeling in the middle of my back radiating downwards and pain there also like a hot burning feeling, also I dont know if its related but my left wrist (i'm right handed) really hurts and cant bare weight. Doc booked me for physio therapy without examining me but theres a 6 months minimum waiting list.
Any advice?

GillyG
31st July 2007, 06:45 PM
Hi there :welcome:

I can't believe they told you that you were too old for surgery at 24, I had mine last August aged 49!!

I had also spent my youthful years being told there was nothing could be done and just got on with things, like you do, but then I started to have real problems and my GP referred me to a spine specialist who wondered why I'd never had the surgery years ago!! :hammer:

I would definitely advise getting a second opinion. If you look through the consultant list at the top of the discussions forum you should be able to locate someone in your area, or thereabouts. Ask your GP for a referral to someone on there (although I believe Mr Tucker is one of them!) and get some up-to-date X-rays done to check whether your curve has progressed.

Recovery isn't easy when you're older, I'm still have some way to go 11 months on, but I can honestly say it's the best decision I ever made. :D

Good luck, please let us know how you go on.

Gilly xx

Little Ali
31st July 2007, 09:16 PM
Hi there :welcome2: You've come to the right place!

I can't believe you were told you were too old to have surgery at 24 either! That's a load of rubbish! Yeah, surgery and the recovery are more difficult but not impossible! I had surgery 6 months ago at 25 for kyphoscoliosis, although the kyphosis wasn't really corrected. I think that would've involved anterior surgery (performed from the front) which I didn't have. I went to see Mt. Tucker for a 2nd opinion and he seemed pretty sure he could correct mine, so I don't know whu he told you different. Have you got any other health problems that might interfere with spinal surgery?

Alot of the pain and symptoms you have sound just like mine, most of which have got better since surgery, so I suggest you seek a second opinion.

Good luck! I hope you have some success! xx

boofeemiggles
11th March 2008, 03:09 PM
Just an update - still not got any physiotherapy and the pain is awfull! went bak to the doc and she said I am on the waiting list and to jus keep waiting.

madmclw
11th March 2008, 03:15 PM
Waiting...tut. It's ridiculous, when you're in pain.

What I'd say [that I learnt from people on here] is just keep nagging. Nag and nag and nag until they start listening, and you start getting the results you want.

Other than that, the best of luck!

boofeemiggles
11th March 2008, 03:29 PM
Right well on that note I jus called the docs and got an appt for Thurs. Gonna ask wot my bends meausured on the cobbs angle too.

madmclw
11th March 2008, 03:36 PM
Do you know what they were when you were first diagnosed?

Kentish
12th March 2008, 02:16 PM
Welcome to SSO boofeemiggles.

I too had kyphoscoliosis and actually had my surgery at the age of 24 so dont let them tell you that you're too old. I remember the burning feeling well. I used to sit at work thinking that I might black out as my back felt like it was on fire. Never had that again after the surgery though :-)

Unfortunately physio does take a while. I think I was waiting for 8 months for mine and then within a month they knew it wasnt helping. Anyway with kyphoscoliosis it can take quite a while from the initial appointment to surgery as they like to monitor it for a while. After physio they might ask you to wear a brace/corset for a while too to see if that helps. Try not to see all this as just delaying surgery as I'm sure it works for some people.

Anyway, as the others have said, if you feel like they arent taking your problems very seriously, seek a second opinion. Good luck!

stargazer
13th March 2008, 01:59 PM
Hi welcome to the site. I'm new also -I have a daughter with Scoliosis.

Agree with what has already been said - being told that you are too old for surgery at 24 doesn't sound right. I would be asking for a second opinion too.

Hope that you get lots of advice and support from the site - only been here a couple of days but it is very friendly.

Sending best wishes